Thank you for writing on this website! I was diagnosed with liver mets in May 2017. I have been taking Ibrance and Faslodex. The response has been excellent, my markers are almost normal. I feel well and positive. But visits tot he doctor get me down. It is very inspiring to hear from you ladies. I was originally diagnosed and treated for breast cancer in 2009 (I am BRCA2), had a double masectomy and ovaries out. All was clear until last year (May 2017). Mets only in liver, staying positive taking meds, walking my dog, loving my children. Any adivse on what else you all have done is incredibly welcome.
Hi Lillypin (and Nicky),
just wanted to reassure you that some of us are still going strong! I've just celebrated 10 years since liver mets diagnosis and my liver is clear. Im generally fit & well & have a good quality of life, although feeling a bit bleagh today after chemo yesterday (I have mets in my abdomen - peritoneum).
wishing you all the best in your treatments
Im not sure if any of these ladies are still around, unfortunately some, I know, have since died. However my liver mets were diagnosed in 2013 and I'm still here! I usually post on the Bone Mets thread as any Liver mets thread tends to slip down the pages too far and no one sees them!
This was 5 years after my bone mets diagnosis so I have had mets for 9 years now. I can't say it's been easy at times it, equally, I have had long periods of stability or shrinkage. Over the years I have responded well to hormonal treatments so I hope you do too and keep the big guns until much later! Other than the normal, NHS treatments available for your type of BC there are also many trials being run at leading cancer centres in the UK so there are newer treatments being tested all the time and some are very targeted. You can always ask for a second opinion at one of these centres if you have one near to you at any time you are not happy with the treatment plan you are on. For now it sounds like it is right for you and certainly has less side effects than some of the harsher regimes such as chemo.
I was diagnosed with Liver mets back in February 2015 and in March I was put on weekly taxol and 3 weekly herceptin. The taxol was stopped mid September as the side effects were knocking me bandy and I was struggling to combat even a simple cold. The scan showed no worsening/growth of the cancer, but also no real shrinkage. I am now just having the herceptin and Anastazole.
I can say that I am now starting to feel much better physically, but psychologically I am terrified that I am not doing anything to fight it. Every ache and pain I get panics me and I started to have panic attacks. The Complementary Therapist at the Hospice I attend weekly as a day patient made me up an inhalational aromatherapy stick which is helping alot with the panic attacks, and I am finding that my main coping mechanism has to be positive thinking and keeping myself busy.
Not sure if this is any use to anyone but I felt that I would like to share it as I feel quite lonely and isolated at times as I am sure all cancer patients do - despite having a great deal of family and friends that support me.
That is great to hear, I also have liver mets I am 2 years on now, changed treatments. Nice to hear someone that is 5 years on. Hope you keep well
Sorry you have had to join us but welcome. As Helen says we are all here for you and really are very friendly. Good luck with your treatment and do stay on this site. It is so helpful.
Love Sheila. Xx
Welcome to the BCC discussion forums where I am sure you will find support from users travelling a similar path to yourself. Here at BCC each Tuesday evening we run a 'live chat' session which is dedicated to those with a secondary diagnosis. The session is hosted by a nurse and a facilitator so there's always someone to talk to. I've put the link for you below to have a look at if you'd like to join in, you'll be made most welcome by the regular users who are a wonderful support to one another.
This is just what I need to read just now. What an inspiration! I was recently diagnosed with bone and liver mets and I'm scared stiff. I have an 8 year o;d boy and my biggest fear is not to be here as he grows up. This story gives me hope. I start my chemo for the second time this Wednesday.
Thanks to you too quality street. Hope you continue to do well for a very very long time!. Sheila. X
Hi Celia, thanks so much for your post. Am currently on taxotere for liver and lung Mets. Also have Mets to spine. Your news has helped me a lot. Take care. Sheila. X
jolly pleased to be able to share. would have really appreciated knowing what was possible when I was first diagnosed. Still have great quality of life too :-)
So glad that other peoples good news are helping you feel more positive. The onc. advised me on Wednesday that they will now just use blood tests and how well I am feeling to monitor situation. Have they advised more chemo? I was given 3 choices but went for tablet form and showed improvement immedietly. Wishing you all the luck ine world and hope you will be posting on the inspiring news thread very sooooon xxx Gen
Just to say that a couple of weeks ago it was 5 years since I was diagnosed straight at stage 4 with spread to liver and bones. Have had mets in liver and bone ever since but they wax and wane and I change treatments as they alter. Just wanted to share because I think that often a diagnosis of liver mets/organ involvement can be scary.