Hi Dot13, Metformin is one of the drugs Jane McClelland took, and one prescribed by the COC clinic. The Facebook group is Jane McClelland Off Label Drugs for Cancer https://m.facebook.com/groups/697546077022478?ref=bookmarks It’s a very helpful group but I would agree with what Jane herself says and advise reading the book first, because it’s really a discussion group for the book. Also, it’s useful to either make notes as you read, or use highlighter in the book, because at the moment it doesn’t have an index and there’s so much to take in. I haven’t yet read How Long Have I Got but can thoroughly recommend Radical Remissions and The Cancer Revolution. Kate x
Hello Kate, my partner has been taken off Palbociclib as it is too toxic for her. Oncologist said it was killing her and she couldn't prescribe any more. She said there was no other chemo she can have and to stay on the Letrazole only. I was interested in you mention Metformin. My partner is taking Metformin as she has type 2 Diabetes. Is Metformin helpful to secondary cancer? Can you also tell me the name of the Facebook group please?
I am researching the best supplements and foods for her to eat so it will help the Letrazole get her as many years as possible. We are told the mets are only in her spine and are slow growing because they are oestrogen dependant and it is breast cancer that has come back in her spine, mainly T4 vertebrae. I am going to buy the books mentioned in this thread. Thank you so much, Dot13
Paris, good luck with the neuts. I was in and out of hospital monthly due to mine crashing and I’m afraid I’ve found nothing to help. There wasn’t much the hospital could do either, but when I was in a bad way ( neuts of .05) they gave me gsf injections for a few days and I did pick up. I take Manuka honey daily for sore throat and ulcers and find it quite magical. It took a year to get me stable but I’m doing great. I’m on 75mcgs, 2 weeks on and 2 off. Unfortunately some supplements do interfere with both Palbociclib and Letrozole so I would check with your Onco. Keep in mind there is no research to provide evidence that they work but just lots of anecdotal evidence by vulnerable people like us who are willing to give anything a go. 🤫 I started off by buying loads of stuff but then have adjusted my diet so I include loads of natural herbal ingredients in it. The Royal Marsden cook book is a great source of information. Best wishes with your treatment. My mets haven’t grown in three years. X
Hi ladies, interesting piece on BBC news re supplements. My Onco is not averse to my taking supplements but likes to check what I take in case of contra indications with my cancer meds. C
Hi Paris, as I’ve said previously I take a lot of supplements and have for several years, another book that I find very useful if you haven’t heard about it is The Cancer Revolution from the Yes To Life charity. It has an excellent chapter explaining many supplements and is also a good all round handbook about integrative treatment. Just to add the Sloan Kettering hospital website is an excellent resource for checking drug/supplement/herbal interactions and incompatibilities, Kate x
Hi Jefner. Do you mind me asking what supplements you take? I currently take vitamin b complex, tumeric & black pepper, omega 3, half an aspirin per day, Adcal, plus palbo, and letrezole. I've ordered some melatonin which is on its way to help with sleep and I've been recommended Life Mel Honey too to help with my neuts which keep crashing below 1 so will give this a go too. The lady who recommended it to me said her bouts never fell below 1.9 whilst taking the honey. I have my next appointment on 18th December with my Oncologist so will be asking him about berberine and also metformin. I must literally rattle after I've taken all the supplements each morning but none of them can do me any harm! Thanks for the other book recommendations, I will get them ordered too! X
Hi Jefner, I couldn’t agree with you more! Radical Remissions is one of my favourite books and I regularly return to it, just to say I’d say How To Starve Cancer, although a story about Jane’s illness, it’s more medical (for want of a better expression!) but certainly if you like those books I’m sure you will this. I’ve just got How Long Have I Got, so it’ll be my next read! Kate x
Thanks for highlighting this book. I've read Radical Remission by Kelly Turner and am now reading How Long Have I Got by Fi Munro, which both have suggestions about lifestyle and dietary changes which can strengthen your own body's healing systems. They sound similar to the book you recommend, which I will read, as I find it encouraging, empowering even, to read such books; they give me a sense of control, knowing that I am doing all that is possible to give my body the best chance of keeping the cancer at bay (alongside conventional treatments).
I saw a herbalist (in Edinburgh, would highly recommend) when my I received my cancer diagnoses and started taking some cancer fighting supplements; the results I got after a few months of chemo were apparently 'unusual' in that all residual deposits had disappeared (yay!). I don't of course know if that was solely down to the chemo or the supplements, or a combination, but I'm certainly not coming off the supplements now!
I have the book and also went to hear Jane speak last year (I have posted about it in another thread). I’ve been adding and taking supplements since my diagnosis over 4 years ago now, and do believe they have really helped me, along with the other lifestyle changes I’ve made (which Jane also did) such as getting more sleep, regular exercise and of course diet, which I personally think is paramount, and as you will have read Jane agrees with this. The research she uncovered is incredible and it does make you wonder why there aren’t more trials into these drugs, especially when you consider the side effects compared to chemotherapy!
You probably know there is a Facebook group, which I have found very helpful and informative, especially when working out my Metro Map, and also a website.
I asked my Oncologist about Metformin at my last appointment, she didn’t want to prescribe it at that time because my scan was stable, but agreed to discuss again in the future. I had just added Berberine to my supplements prior to the appointment so I was happy with that. My Oncologist has never objected to me taking supplements but she knows I do research them first and if I have any doubts ask a pharmacist before taking. Please let me know how you get on and what you decide to do after reading the book.
Hi everyone. I was at an oncology appointment and a lady sat opposite me started to tell me about supplements that she swore were effective alongside conventional treatments. She told me to read "How to Starve Cancer...without starving yourself" which was written by Jane Mclelland who was diagnosed with stage 4 long cancer and given 12 weeks to live. 17 years later she was cancer free. I've started reading the book and I cant put it down! It's so informative. I would recommend everyone to read this. It will make you think about your role in your treatment and how supplements alongside conventional treatments can starve the cancer. I plan on discussing what I've learnt to my oncologist next month. Apparently it's important they are on your side, as a lot of doctors dismiss alternative therapies despite research proving otherwise.