Thanks for the reply Sarah.
The cough is easing off now but need to ring the pleural nurse today as my drain is infected.
Feel like it's just one thing after another!
Following on from a few months of very bad breathlessness and an awful cough I was scanned and had fluid around the heart and in both pluera. After the heart was drained the coughing and breathlessness stopped and a week later had the Rocket drain fitted on my left side. I have a smaller amount on the right which they have decided to leave and put me on a diuretic to help.
Since having the Rocket drain the coughing has started again . A non producing irritating cough which is exhausting. I'm not sure if the drain aggrevates the lung which is causing the cough. If I take some ibuprofen it eases off which makes me think it is irritation.
Anyone else have the same issue?
I've had my drain for 4 month. I was desparate to take it out - didn't happen. The amount of fluid decreased significantly but it still keeps acccumulating. Recently I drained every 3 days, however, my doctor mentioned that there is a chance of me going for auto pleurodesis and advised to drain every other day. Apparently it helps when you keep it as dry as possible. Also, since the position of the tube was reviewed on xray I was advised to drain lying on my back and slightly leaning to the side. I am on letrozole, palbocyclib and zometa for bones. Thank you for posting, it feels good to hear from others in similar circumstances. Xxx
I'm new to the Rocket Chest drain fitted last week. Draining myself twice a week. Can manage about 300ml then it starts to hurt so stop it about there. So far so good. Also about to have 2nd Paclitaxol on Thursday.
Sarahlew & Sandy, I just wanted to say hi! I also have lung mets, but haven't had any major issues with fluid. I have had some fluid but with a, chemo change it always dried up.
Sandy, I hope you can go on your vacation. I know for me every time something important to me comes up something goes wrong. I always do so well and then boom. I spent my 30th anniversary in the hospital. Got pneumonitis from my chemo a couple weeks before my daughter's wedding. Had to go on O2 and change treatment. The new treatment killed my knees! Ended up on crutches. Had to take lots of oxycodone to be able to walk at the wedding. Luckily I didn't need the O2! Then last year was 35th wedding anniversary and I needed to change treatment. Told the Dr I wouldn't change til after my anniversary. This year I broke my back in 2 vertebrae and had surgery on 21st of Dec. My 1st granddaughter arrived early on Dec 30th. I wasn't supposed to be lifting. I couldn't bend and pick her up. Crossing my fingers for you to get rid of the fluid and the chemo to be kind! FF
Yes, thank you for sharing. When you have some type of treatment that isn’t the norm it’s very difficult to find anyone to speak to to find out what it’s like. It’s good to know that your drain is working well, and your treatments, and that you can get on with life - especially the travelling 😊