Just wanted to say totally understand where you are coming from Im 13 years post first diagnosis and told dr I was worried in AUG 17 but wasnt diagnosed with secondaries til Feb 18 been on palbociclib letrozole and denosumab since April 18 with secondaries in chest spine and pelvis have scans every 3 months and am responding to treatment. Previously worked in NHS 30years and like you gave good care. One of my neighbours had this diagnosis 12 years ago and is still doing okay so Im being positive although its not curable being treatable can be a positive thing . Keep fighting the good fight. Liz
I’m sorry about your recent diagnosis. I’m in a similar position to you. I was diagnosed with secondaries to my ribs in December, 2 years after my initial BC diagnosis. I’m 39 and have a 4 year old daughter and worry constantly that I’m not going to see her grow up.
I also work for the NHS and found them to be completely unsympathetic to how difficult it was to come back to work after my first diagnosis and treatment. I’ve been signed off work since my diagnosis but am dreading having to go back after what happened first time round. Can you get a referral to occupational health? At my Board we can self refer if your manager won’t, they would be able to adjust your duties. Also cancer is recognised as a disability so it’s illegal to discriminate (threatening loss of contract). Maybe speak to union rep or HR and see what they suggest. I agree it is a kick in the teeth, you would think the NHS would deal with this so much better.
I hope things get better x