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New Diagnosis of Mets

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Re: New Diagnosis of Mets

Hello Mishy, 

Absolutely gutted to hear about your secondary diagnosis. You have been through so much since initial treatment and yet always seemed so helpful to other people on this site. 

Hope you get a treatment plan and info soon that resolves some of the anxieties for you. All the best Mishy,

Chick 🐥 ps. Also sent a private message. 

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Re: New Diagnosis of Mets

Hi everyone I'm newly diagnosed too finished treatment Jan 2018 for TN breast cancer only 1 node affected with my cancer so it's was an absolute shock when a routine chest xray for pain in rib are resulted in a ct request which was questioning scarring from surgery, this resulted in a phone call from onc to come in been diagnosed with mets in both lungs 5 all in this was 24th Jan, no treatment yet on watchful waiting as onc doesn't want to start chemo just yet 😨😨😨😨 this is totally freaking me out as you can imagine I am to be scanned in another 4 weeks then see onc to see if nodules are growing or stable and when to start treatment I'm anxious and my sleep quality is terrible feeling tired all the time but still no symptoms isn't it horrible xxx

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Re: New Diagnosis of Mets

Thank you so much for replying. I’m sure i’ll feel a bit better when I have a plan. Best wishes to you too xx

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Re: New Diagnosis of Mets

Thank you for this info..much appreciated. I just needed to know what to expect. I have been on Tamoxifen for past 9 years wasn’t suitable for Herceptin. Not sure if this will be the case again. Think I will get a lot of reassurance speaking to ladies like yourself. Xx

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Re: New Diagnosis of Mets

Hi Clarissa,

Your liver biopsy will confirm your hormone status and depending on the result you might be able to have hormone treatment instead of chemo. Your bone and liver mets will be treated “ systematically” that is the same treatment will treat your bone and liver.

My bone mets were discovered over 4 years ago, 16 years after my primary and I was given Exemestane ( a hormonal tablet) and a once a month bone strengthening injection called xgeva. This kept me stable until last October when a Liver met was found so have now moved to Faslodex as I’m strongky ER/PR positive. 

Now if you are ER positive too you might be offered Letrezole plus a new target drug named Ibrance as it’s your first line of treatment for metastases. I don’t qualify for Ibrance unfortunately as I’m on my second line of treatment and the NHS currently only fund it for first line.

If you are found to be HER positive you will be offered herceptin which is another very successful drug. 

Lots of info to take in but just tried to give you a bit of information I’ve learnt along the way. 

There is so much info on this forum and you will see that ladies are living a long time with Mets so take heart xxx

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Re: New Diagnosis of Mets

Hi Clairssa,

i’m in a similar situation. Primary diagnosis in 2012, chemo, mastectomy and lymph node clearance and radiotherapy. Been turing up to annual check ups and mammograms for 6 years and told all Ok. Went to my GP with a rhinitis based cough, she sent me for a chest x-ray for peace of mind back in October....then bam...diagnosis of lung and liver mets, no symptoms at all, Goodnesss knows when I would have discovered this otherwise. I’m on Docetaxel chemotherapy, along with Herceptin and Perjeta.I’m still completely stunned. At least now treatment has started, I feel like progress is being made, but the fear of what the future looks like can be quite overwhelming. I hope you get your treatment plan soon, and send you best wishes.

 

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New Diagnosis of Mets

Morning

Don’t know if I’m doing this right so please bare with me. So last week after being in hospital with suspected appendicitis I was told that I had leisons on my liver. After further tests I’ve been diagnosed with Liver ,Lung, Abdo, sternum and pelvic mets!!!! My primary Breast cancer was diagnosed in 2010 and after mastectomy, ANC,radiotherapy, I have been quite fit and healthy. This has come as a huge shock. Had a liver biopsy on Monday and have an appointment with oncologist next Monday for treatment plan. I presume this means more Chemo. My heads in a whirl. I’ve not asked any questions yet..not sure if I want to know the answers. So I suppose I just want to know if anyone is similar to me. I’ve 2 teenage daughters and supportive husband who are all devastated so I’m trying to be brave for them. Appreciate any advice.  X