62197members
327452posts
cancel
Showing results for 
Search instead for 
Did you mean: 

New diagnosis

20 REPLIES 20
Member

Re: New diagnosis

Mine was also lobular but of course at 38 I wasn't having mammograms in UK but I had found a lump hence mastectomy and then chemo etc. Have faith, stay hopeful and as long as you feel ok live life to the full

Member

Re: New diagnosis

Mine was also lobular but of course at 38 I wasn't having mammograms in UK but I had found a lump hence mastectomy and then chemo etc

Member

Re: New diagnosis

Hi rosiet 

Thank you for your reply. I see you do not appear to have had many treatments over all them years. You were so young to be diagnoised with breast cancer . I was 57 when I was diagnosed with breast cancer and bone mets at same time.  It was a shock I can tell you as I had always had mamagrams but unfortunately mine is lobular which does not show up on mammogram till much later. 

Linda 

Member

Re: New diagnosis

Hi Linda,

After initial diagnosis chemo,radiation and surgery in1991 I developed bone mets in sternum and was put on exemestane sand then Denosumab. Stable till about 2003 when developed more bone mets which didn't bother me until skull mets 2017 and more radiation. Now peritoneal and pleural mets hence new treatment. While I only had bone mets Onc didn't want to change treatment. Have always felt well with minimal discomfort so feel very lucky. Now nearly 69yrs

Member

Re: New diagnosis

Hi Rosie

Nice to hear you are 20  years down the line with bone mets. 

I am 10 years with bone mets. Over the years I have had quite a few treatments. If you don't mind me asking until recently have remained stable? I have not had the treatment you are about start. Hope it works well for you with few side effects.  

Linda 

 

 

Member

Re: New diagnosis

Hi Rosiet, just been reading your post and read that it’s been 20 years since you were diagnosed with bone mets!!! This is so good to hear, I’m 5 years in from dx of bone mets and reading this has really helped me look more to the future. I know that not everyone is the same and cancer is very individual and some people or not so lucky but being positive and not letting my dx rule me has helped me to stay strong! 

Thank you again, hugs Janette xx

Member

Re: New diagnosis

I was the first person at my local hospital to be out on this combo it appears to have good results in America so let's hope it does same for us over here .Best wishes for a long future we can best this horrible disease x

Member

Re: New diagnosis

Here's hoping your results are good Caz.Glad to see that more of us are being put on Abemaciclib/Fulvestrant combo - I was first at our hospital. Just hope it helps. Although my disease has recently progressed I've lived quite well with multiple bone mets for 20yrs - original breast cancer was 1991 so maybe one day cancer will be seen as just another chronic disease to manage like arthritis or diabetes

Member

Re: New diagnosis

Hi sorry to hear about spread of disease I am on 4th cycle of abemaciclib and faslodex I have not really suffered many side effects except the runs .Getting results of bone and ct scans and brain mri as a lesion was seen on a spine mri earlier this month feeling very nervous

 

Member

Re: New diagnosis

Have had stable bone mets for 12yrs but tumour markers went up last few months and latest CT showed spread to peritoneum and pleura. Started on Abemaciclib/Fulvestrant combo a week ago. So far mild abdominal discomfort, manageable diarrhoea without need for Imodium yet and fatigue. Not too bad!

 

Highlighted
Member

Re: New diagnosis

I was diagnosed with SBC in June 2017 liver and bone. I have now been on Abemaciclib and Fulvestrant for three weeks and the side effects for me have been diarrhoea, tiredness and loss of appetite. Nothing too bad and so far I am coping with it. My blood results were OK last week when I had my second round of Fulvestrant. Sorry to hear about your fall and hope you are feeling better soon.

I think this will be the standard care and there will be many more of us on it in the coming months.

 

Sue

Member

Re: New diagnosis

Hi it's good to to hear your treatment is being effective  long may it continue to reduce tumours best wishes to you x

Member

Re: New diagnosis

Hi I am one month into my treatment have had the runs apart from that been ok  .As this is a relatively new treatment even my specialist nurse does not know long term side effects.Hope your ok after your fall let's hope this treatment is effective for a long time 

Member

Re: New diagnosis

hi I have been on Palbociclib which is similar initially had a bit of nausea tummy discomfort but started on Lansoprasole 15 mgs after second month and been okay since then now been on letrosole and palbo for a year which scans show secondaries in lungs base of spine and pelvis stable 4 of 6 tumours smaller. Hope you get on okay with abemaciclib Liz

Member

Re: New diagnosis

Hi all

had bc diagnosed Nov 2017 ,had chemo. ,mastectomy ,radiotherapy then 

i was diagnosed with secondary bc few months ago ,liver mets .i am being treated with

fulvestrant injections and abemociclib tablets 150 mg , had them for last month ,had bit of diarrhoea,treat it with Imodium,and feel sick but no actual sickness.,also stomach pains . I feel not too bad but went to center parks last week ,fell off bike onto my back ,so not sure what is causing a problem this week ,pain from fall or pain from medication 

going back on Friday ,will be one month of treatment,so will see how blood test results are ,seeing oncologist on Tuesday 

i m interested to see how we all get on

positive thoughts to all

good luck

janet

xxxxx

Member

Re: New diagnosis

Hi,

ive been on Faslodex for 9 months and have hardly any side effects. We are adding Abemaciclib to the mix. I’m concerned about the tummy side effects. Has it continued to be ok for you?

Thanks 

Debs

Member

Re: New diagnosis

Hi let's hope this combination is effective it has only just started being used  by my consultant at my local chemo unit at Chorley hospital

Member

Re: New diagnosis

Hi Caz1963,

I was diagnosed with secondaries to the liver, bone and remaining node in 2017. I first has BC in 2003 with a recurrence in 2014.

 

i have had a couple of different treatments over the last two years but will be starting Abemaciclib and Faslodex next week. I think this combination has only just been made available at my hospital which is in Liverpool. Hopefully this will work for a reasonable amount of time for both of us.

 

Sue

Member

Re: New diagnosis

Thanks for your reply that makes me feel much better I wish you well too 

Member

Re: New diagnosis

Hi Caz1963

 

I am sorry to hear of your diagnosis, I have not that long been diagnosed myself so am no expert but I am on Abemaciclib and Letrozole, I have found the Abemaciclib absolutely fine, the only real side effect I've had is upset stomach but a couple of Imodium a day keeps that in check.

 

I hope you take well to your treatment and can continue with your normal life too.

 

X

Member

New diagnosis

I have just been told secondary mets have progressed to spine starting abemaciclib and faslodex on Tuesday can anyone on this treatment let me know what to expect feeling scared