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New to capecitabine

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Re: New to capecitabine

Hi Walsh,

I started Capecitabine in May this year.  Its really alright, I haven't found the side effects that bad (luckily!) and my hair is fine.  I was started on Cape as the Onc was worried I had tiny new mets in my liver.  I haven't had a scan yet to see how the mets are responding to the Cape as I had a 3 week break after cycle 1 unintentionally as the hospital messed up my appointments.  So I've just re-started them again and Onc said scan after 3 cycles.  I've heard lots of good things about Cape so hang on in there xx

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Re: New to capecitabine

Thank. you.Started in June but not being scanned until end of August the wait is awful.like you I have liver mets which where growing,I do hope this gives better results always a worrying time but that’s the nature off this disease.

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Re: New to capecitabine

Hi Walsh,

I've been on capecitabine since January. I had a CT scan about 4 weeks after starting it and it showed a reduction in tumours in my liver and stability in my lymph nodes. I think time for a scan varies and mine was done fairly quickly as I had had a problem with my liver being blocked and ALT levels of over 1000. This was before I started the capecitabine! I hope you have good results with this chemo as it is less stressful than having chemo intravenously and your hair should not fall out. Having said that my hair has thinned a lot but not noticed by others, just me. There is a long thread with tips on taking Capecitabine which is well worth a read. I miss people posting there as at one time there was a regular community keeping in touch. Wishing you all the best. Bee

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New to capecitabine

Hi wondering if someone can tell how long before scan to show if this treatment is working.Was. On pablociclib and Letrozole stopped working after a year,now on 2 week plus one week off cycle.Started new treatment in June.

thank you