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New to capecitabine

13 REPLIES 13
rosie53
Member

Re: New to capecitabine

Hi, Nicky/Gillyflower Thank you for your replies. I feel a little better this after an unsurprisingly decent sleep, it’s usually once you get in bed the thinking time starts doesn’t it!!

To be honest from day one I didn’t get along with Ribociclib so I think it just wasn’t for me. Hoping Cape will be a more trusted friend!! 
hugs J x

Gillyflower
Community Champion

Re: New to capecitabine

Hi J, no worries, I am also always doing that lol.

Just had my first scan after 3 cycles of Cape and whatever the unidentified lesions were in my liver, they've reduced by 30% already so Onc is very pleased.  Bone mets is a bit more complicated as I have had new mets pop up in pelvis, but the Onc thinks it may be because I had a month's break in treatment before I started Cape (and the break came after my last CT scan).  They can't tell anyway, so have to wait and see what happens in the next 3 months!  I find Cape very easy to tolerate so I am hopeful that I get to stay on it for a bit.  Hope it goes well for you! xx

rosie53
Member

Re: New to capecitabine

Hi ladies, only just seen this thread, I just started a new thread......should have looked through first!!

 I am being changed treatment from Ribociclib to Cape, bone mets have remained stable but it’s not working on my liver.

Got to have a blood test DPD blood test first, then should be starting Cape in a week or so. 
I feel more confident having read these posts, never felt brilliant on the Ribociclib and had to be reduced to the lowest dose so I’m praying for better results with Cape.

I see a few of you were due scans/results, how have you gone on??

hugs J x

Gillyflower
Community Champion

Re: New to capecitabine

Hi Puglia,

I can't remember if I've already said this elsewhere on here but like Walsh I also found Capecitabine to be much better treatment than Palbo/Letrozole!  I feel so well its amazing.  I do have some skin issues (I have eczema regularly on my hands anyway) and Cape has aggravated this slightly.  The main thing is to keep your hands and feet moisturised regularly (especially with all this extra hand washing thanks to Covid!).  But otherwise I have no problems whatsoever and my blood results have been better than they were on Palbo up until now xx

Walsh
Member

Re: New to capecitabine

Hi puglia

I was diagnosed in 2017,with breast cancer,lumpectomy,radiotherepy and tamoxifen.Then in 2019 secondary breast cancer to hips,pelvis,spine and mets in liver.Then in May this year was told suttle growth in two of liver mets,then started capecitabine.Just a little dryness in feet and a bit red but nothing to worry about I have hydromol ointment that helps if feet are to dry.

Walsh.xxx

 

Puglia
Member

Re: New to capecitabine

Hi again

 

sorry I forgot to ask did the Capecitabine effect your hands and feet at all? My specialist mentioned some patients have problems with skin redness in these areas.

Regards

Puglia xxx

 

Puglia
Member

Re: New to capecitabine

Hi Walsh

Many thanks for your reply. I think I just seem to home in on all the side effects!

I was like you I had problems with the higher dose of Palbocicilib and managed to tolerate 75mg and my white cells were extremely low towards the end of the treatment.

i was just gutted that they stopped working with regards to my liver! When did you have your initial breast cancer diagnosis?  Mine was back in 2006 with surgery/chemo/Tamoxifen  and then 13 years later metastatic breast cancer arrived! Initially I was really quite shocked after the length of time.

All the very best with your scan results. Let me know how you get on.

Very best of luck and take care

 

Puglia

 

 

 

Walsh
Member

Re: New to capecitabine

Hi puglia

I have found capecitabine much better than Pablociclib and Letrozole.My white cells where always to low ended up on 75mg,always felt washed out.With capecitabine I have had absolutely no issues have been on my new treatment since May. Family have also commented on how much better I look,I have first scans on 27th August.Results on the 10th September.So quite anxious about this.Hope you find this treatment kind to you.Xx

walsh

Puglia
Member

Re: New to capecitabine

Hi

Just joined up and read your post and felt a connection through your message. I too was on Palbocicilib and Letrozole for a year but it has not worked regarding my liver. My consultant is suggesting I go on to Cape in a couple of weeks time. I’ve read the side effects and must admit I feel rather concerned taking this drug. How did you find being on it?

Tah65
Member

Re: New to capecitabine

Hi

I started Capecitabine-xeloda in May. Mets in my Liver - my markers came down significantly by half after the first 2cycles. I had a MRi scan and CT today so waiting for the pictures. Fingers crossed its in control. It's fairly easy to tolerate compared to IV though hands and feet were sore. I read the tips on this site and now have that in good control. I have just learned from the scan that I have a clot in my inferior venna cava. I was called back before leaving the hospital and started on blood thinning treatment. The doctor explained that chemo and cancer make this likely. It's spooked me

Gillyflower
Community Champion

Re: New to capecitabine

Hi Walsh,

I started Capecitabine in May this year.  Its really alright, I haven't found the side effects that bad (luckily!) and my hair is fine.  I was started on Cape as the Onc was worried I had tiny new mets in my liver.  I haven't had a scan yet to see how the mets are responding to the Cape as I had a 3 week break after cycle 1 unintentionally as the hospital messed up my appointments.  So I've just re-started them again and Onc said scan after 3 cycles.  I've heard lots of good things about Cape so hang on in there xx

Walsh
Member

Re: New to capecitabine

Thank. you.Started in June but not being scanned until end of August the wait is awful.like you I have liver mets which where growing,I do hope this gives better results always a worrying time but that’s the nature off this disease.

Bee3
Member

Re: New to capecitabine

Hi Walsh,

I've been on capecitabine since January. I had a CT scan about 4 weeks after starting it and it showed a reduction in tumours in my liver and stability in my lymph nodes. I think time for a scan varies and mine was done fairly quickly as I had had a problem with my liver being blocked and ALT levels of over 1000. This was before I started the capecitabine! I hope you have good results with this chemo as it is less stressful than having chemo intravenously and your hair should not fall out. Having said that my hair has thinned a lot but not noticed by others, just me. There is a long thread with tips on taking Capecitabine which is well worth a read. I miss people posting there as at one time there was a regular community keeping in touch. Wishing you all the best. Bee

Walsh
Member

New to capecitabine

Hi wondering if someone can tell how long before scan to show if this treatment is working.Was. On pablociclib and Letrozole stopped working after a year,now on 2 week plus one week off cycle.Started new treatment in June.

thank you