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New to forum

9 REPLIES 9
Gillyflower
Community Champion

Re: New to forum

You most certainly aren't 💟 Ask questions or just pop on to chat, whatever you feel like xxx

joannen66
Member

Re: New to forum

Thanks Bernard, I’m starting to feel reassured that there is a lot a support if needed. At first I felt alone but now realise I’m not 💕

Bernard_BCN
Community Manager

Re: New to forum

Hi joannen66

Just to say welcome to the Forum, and I hope you find the support and information that you need here. Please remember our team is here to chat if you ever need someone to talk things through with. Our breast care nurses are on freephone 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Our support is free, friendly and confidential, so don't think twice about calling.

Sending our love

Bernard

joannen66
Member

Re: New to forum

Thanks Gillyflower for the support, I’m allready starting to feel more positive knowing that I’m not alone, I have an appointment next Thurs with psychologist so hopefully that will help me.

i look forward to the day that it’s not constantly on my mind and I know this will come with time xx

Hope everything is going well for you 💕

 

Gillyflower
Community Champion

Re: New to forum

Hi Joanne,

Sending you a big hug as many of us on here can relate to that feeling of your mind being taken over by thoughts of cancer and all the horrible thoughts that come with it xxx

I was diagnosed with primary in 2018 then secondaries were found in January this year.  I found once I'd settled into a routine with appointments and meds I felt loads better and also had days where I didn't even think of the cancer at all!  I only tend to get really bad days now when something changes in my treatment plan or I have to deal with disease progression.  But even then, I find myself bouncing back and getting on with life again!

Everyone's reaction and coping methods are different but the general consensus does seem to be that you find a way of adapting.  I would highly recommend getting some support such as counselling or referral to a local hospice or psychology services if you feel that you are struggling mentally and emotionally.  Having someone that isn't family or friends to talk to about your fears and and difficulties is important to help you process everything xxx

joannen66
Member

Re: New to forum

Thanks for the re-assurance that it will start to become the new normal and won’t be the only thought on my mind.

Hope all going well for you xx

 

Bish12
Member

Re: New to forum

Hi, my mets were diagnosed in Jan. It took time for the cancer not to be my main thought, along with the disbelief and anger that comes with it. But as life settled into a new normal routine the other parts of me resurfaced. I do get overwhelmed by the thoughts sometimes, but that does end. I hope it helps to know you are not alone, that it is ok to feel sad but there will also be times in the weeks to come when you will feel laughter and joy again xx

joannen66
Member

Re: New to forum

Thanks for reply, I’m a positive person and physically fine, but do struggle to not think about it, it seems to be constantly on my mind, but I will take what you have said and hope with time it gets better. X

catokitty
Member

Re: New to forum

Hi, sorry you have had such a shock to the system but the answer is yes, it does get better over time as you adjust to your new normal.  The seemingly endless round of appointments reduce as you settle on your meds and any side effects are dealt with.  I have been stable for the last year and have monthly appointments now.  Most of the time I am fine and get on with life as best I can under the current Covid restrictions.   I can truthfully say I enjoy life and don't think about cancer most of the time.  All the best xx

joannen66
Member

New to forum

Hi everyone - recently diagnosed with secondary breast cancer, hormone receptor positive and HR negative, I was under impression I was getting chemo then mastectomy but after PET scan was done I have a patch on pelvis and lymph node involvement in both axilla. 

started on Zoladex ribociclib and letrozole 2 weeks ago, Can anyone let me know does it get easier with time as at the moment it’s on my mind form morning till night,  Thanks in advance