The mobility component (or part there of) gets paid to Motability if you elect to get a car. You can spend up to your weekly allowance (or pay extra to get higher spec of car etc). If you look on the Motability website I am pretty sure there's a price list so you can look at the costs by car make/model/type etc and decide what you want based on what you want to spend. If you don't spend the full amount you get paid the excess along with your living allowance proportion. Car insurance, tax, RAC, servicing etc all included within the costs quoted. I found best thing to do is if you know the make and model of car you are interested in, make an appointment with their Motability adviser at the dealership and they can then give firm pricing and also look at what models are available and ready at the factory gate. They then sort all the paperwork out. I found it really easy and I think I had car about 3 weeks from getting my letter. Some manufacturers give better "value" than others. Vauxhall - who I think started the whole scheme - are one of the biggest suppliers (think the Mokka is the most popular model in the scheme at moment) and for example include parking sensors as standard for all motability customers. Hope that helps.
Jst to let you know i went through the macmillan centre at my hospital who passed it on to my Onc but he refused to sign the dsform as i wasnt 'terminal'...to me if you cant be cured and will likely die of the disease then whats the difference. Anyway, i then got a macmillan nrse come to visit me ( i think it was via my district nurse) and she said 'leave it with me. The next thing i know i have the higher rate pip and a blue badge...what an angel. Persevere and try any avenue available. Good luck.x
Forget the "terminal" wording. Pop and ask your GP for a form DS1500. They are obliged to give you one upon request. It's a very short form which simply confirms you have SBC. Call the DWP helpline and "apply" over the phone via the "special measures" - just need your name, NI number and bank details from memory. It's a very quick call - maybe 5 mins max. They will tell you to send in the DS1500 form by post to them. Then they process and you'll get a letter confirming award. You do not need to complete any forms.
i think the 6 month thing confuses everything. The way I interpreted it was "would it be a surprise if I died in the next 6 months" ..... Umm "no because I have SBC". That does not mean I will or an expected to die in that timescale (I am very well, feel I have a while yet to go!). Indeed the award is given for 3 years! It's non means tested and has no affect on any other benefits or insurance etc. I am 47, the way I look at it is I am unlikely to get my state pension which I have paid towards for the past 30 years, so this is replacing that.
It seems so many have issues claiming, it's such a shame - so please go and get your PIP!
hope this helps.
Just a quick question from everyone...i was told to apply for this a while ago. Hearing thet you have to be classified as terminal to be eligible is a bit worrying...my hospital doesnt class us as terminal, they call it 'chronic breast cancer' when I apply for travel insurance they always ask if I have bern told im terminal and I say no, even so..its a big slog getting travel insurance. As it sounds like you have to be 'terminal' to claim PIP im a bit afraid of shooting myself in the foot!any comments please?
Also seems as good a place to mention this as any. Just been told by RAC that we can get sane plan as before but with 40% discount because of my blue badge! Xxx
Chrisjonesey, there is a special number to ring if you have completed a ds1500. Have you phoned that. This should not be happening and you need to stop it before the assessor arrives. If you can't find the number then post back and I'll look it up for you. When you phone up they do ask you some questions about yur mobility so look back through the thread and be prepared. Remember to take it on yur worst day - so can you walk 10 meters on your worst day - I'm sure the answer is no.
Do not ignore this - you need to find that number and ring it up - there is an option for special circumstances and you are that. You are put through to another department and will therefore avoid the assessor.
please do this - you cannot let them treat you this way.
Chrisjonesey you have been treated terrible you need to take it further.
I applied back in June finnally got it standard £55.10 until 2017 if circumstances change I can reapply I already the mobility because I have MS.
OMG Chrisjonesey I cannot believe that it is disgusting!!! Get your MP involved.
The government are too busy taking care of the low life's of this country and it's us genuinely ill people that are going to suffer....god it makes me so mad 😠don't give up if you get turned down appeal.
Please let us know how you get on.
Hugs Janette xxxxxxx
I had to complete the full PIP claim form and have been told to attend an assessment next week, my benefits advisor has warned me I will probably be turned down. Reason - I have been living on death row with Metastic Breast Cancer in my Sternum for 9 years, I am HER2 positive so have been on 3 weekly infusions of Herceptin and therefore have stayed reasonably stable, so, in Ian Duncan Smith's view, I have lived too long. I am 65 now, so if they take away my benefits and then a few months down the line my health deteriorates I will be unable to re-apply, only for Attendance Allowance, which does not provide for the Mobility component. PS I should mention that my gp completed the ds1500 form also, but made no difference.
Thanks for this, I'm hoping to get an appointment with McMillan advisor, so fingers crossed she can point me in the right direction or at least make things a bit clearer.
i claimed PIP but the hospital did all all for me. I didn't have to do anything..... not sure if that helps you
Not finding claiming for PIP, as straightforward as I thought it would be. Sent in DS1500 filled in by GO but then sent the huge 'how your disability affects you' form, with no accompanying letter explaining why I needed to fill this in, so I rang them, apparently they are not satisfied that my disease is terminal, as my primary diagnosis was in 2005, my SBC was diagnosed in 2014. I am hoping to get assistance from McMillan CAB but appointments are scarce. Any advice would be much appreciated
Yey that's great news Helen, it allowed me to drop my hours too, I also applied for ESA as I am not now entitled to sick pay as I don't work enough hours and was awarded that too.
My PIP came through this week!!!! Phoned on the 12 May & GP completed & sent the DL1500. Really pleased as I am reducing my hours at school in September & this will help a lot.
Thanks for encouraging me to claim.
Thank you all so much for your replies, it's much appreciated, it's good to know there's so much support out there, especially as I feel a bit lost sometimes. Since my post I have called DWP and started a claim, which wasn't too bad at all, and asked BCN to fill DS1500 form, although she's not done one before. So far DWP have confirmed receipt of the claim and told me to ring if I've not heard anything by 16th June, so fingers crossed. I'll post again when I've heard anything. Again thanks for the support xx
This is my first time on the forum, have had very little contact with anyone else with SBC. However, a friend of a friend recently mentioned the personal independence payment, does anyone have any information or advice on making a claim. Any tips would be much appreciated.
I echo what everybody else says - get it now - things can change very quickly with this disease. I know from personal experience that I was very well at the end of last year and now things are not very good so get it now nobody knows what the future holds but ours is certainly more uncertain than most! Jackiex
Marie, can't believe no one informed you of free rxs that was the first thing my bcn did for me!!
Make a claim for PIP......Your entitled to it!!
Hugs Janette xxxxxxx
Really not sure if I am entitled to this. Does it effect travel insurance , if it says you can die in 6months ?
Don't want to make a fool of myself, I am fairly fit, but like all of us have aches and pains and tiredness. .
Helpful live chat last night no one had told me about free prescriptions grrrrrr. I have asthma as well so often popping in repeat prescriptions.
Thank you to the ladies last night pointing me in the right direction. Form filled in at doctors tonight.