Hi ladies. I wonder if you could help me. I've been on just H and P for the past 17 months and although I haven't had a scan for the past 12 months(my onc doesn't believe in relying just on scans) I am still classed as NED. I feel well with very few side effects from treatment.However one side effect that can sometimes drive me mad is the itching/stinging on the tops of my arms and lower back. The onc believes its the Pertuzumab that causes the itching but presently has no solution. I've tried creams, antihistamines,drinking even more water to no effect.Although I know I am very lucky to have responded so well to this combo it would be so nice to be able to carm the itching down in the evening and at night. Is there anyone else that has this side effect or has any ideas that would help carm it down. Thanks ladies xx
Hi chocolates, I have just seen your post from last week. I am the same as you. Scared of the scans but pleased when results are good. My onc did say to me though that they can find out lots through the blood so try not to worry too much.My onc is great and he got me through a bad patch a few months ago.
That's good news about the elderly lady too! Hope your treatment works for a very long time.
Lots of love Sheila. Xx
That's brilliant news LD! Stable is good but even slight shrinkage is great! Well done. Go celebrate.
Lots of love Sheila. Xx 😀
I recently had the double whammy of lung mets with my primary ICD and am 32. I was managing ok until my last appointment where I got my treatment plan and it finally hit home that the treatment wont "cure" me and have had a really shaky couple of days. My onc wants to give me tax, H and P and reading everyones comments here has actually made me feel like this treatment will hopefully do wonders for me.
I start treatment in just over a week and to be honest I am terrified, I was putting a brave face on but now im just thinking all the worst care scenarios. Once I start treatment hopefully I will feel like im doing something about this and manage to pull myself together. Then hopefully when I get a CT after a few treatments I'll see that my tumours are shrinking or at least stable.
Sorry for the rant lol but after reading about perjeta im actually thinking that the oncologists have a lot of faith in it so I should too 🙂 xx