Great News. I have just been diagnosed with secondary breast cancer and told I have months without treatment and 2 - 4 years with treatment my new metastatic ER positive/ HER2 negative breast cancer not to sure what all that means as my head is all over the place and finding it hard to except as have young children I am terrified of dying and leaving my children behind. I was told my cancer is oestrogen based and feeds of oestrogen. I have some hope of living past the two years reading stories on this site. I have been told by family I have to cut out oestrogen as the oestrogen is feeding my cancer as they found a 5cm lesion in my liver which they said they maybe able to remove part of my liver with the cancer but they would have to make the cancer smaller and I asked would this give me longer to live if they could remove and they said no it would still be 2 -4 years to live that has left me very confused. my partner has been making me stews and sups but using pearl barley and has bought me loads of antioxidant mixed nuts with almonds pumpkin seeds cashew nuts walnuts brazil nuts to try and fatten me up and give me more energy as the weight has fell off me. but I have been told by family members that all these contain oestrogen that helps feed the cancer. I am so confused what to eat ? I had bone scan and MRI scan and waiting for results as had scans in February that came back clear and the cancer was only in my liver and no where else and was advised that if it has not spread then they maybe able to remove part of the liver where the cancer is and can only do this if the cancer shrinks I am on at the moment Palbociclib and Goserlin and Letrozole but been reading on Miracle cure saves woman with breast cancer given months. the woman was given months after trying 7 types of chemotherapy failed she had tumours the size of fists in her liver and after trying new treatment adoptive cell transfer she has been cancer free for 2 years. has anyone heard of this the article I found was https://www.teegraph.co.uk/news/2018/06/04/miracle-cure-saves-woman-breast-cancer-given-months-live/ as reading the article it says these trials may be a cure for terminal cancer ? I am hoping others have heard of this and could I be a candidate for it to do the trials. . I so please to read about yourself and so many others doing so well and would ask what changes you have done and any help or advise would be greatly appreciated. I apologise going on for so long its just all so overwhelming.
Not at all. I think asking questions help one another along this journey.
After my biopsys I went down the usual route. Ultrasound scan, MRI, bone and bloods. It was discovered that I had a huge mass behind my sternum, in-between my 5/6 rib and in my lymph node in my neck. I started on 6 months chemotherapy. Within a few months things had started to shrink. Buy the time I'd finished chemo the mass and the one in my next had gone. I still have one between my 5/6 th rib and that's been stable since. On the 12th of may I've been 4years stable. I'm on letrozole and tolerate side effects, although since DX have other health issues. Hope this helps. Take care. From Gaynor x
Stable and nothing new is amazing news💃🏻(my happy dance).
If you don't mind me asking - How long did it take for you to be in this 'stable' position since your diagnosis 2016? Have you had breaks from the drugs at any time (sorry if that's a stupid question!)?
I'm 3 months into my secondary journey - I wish I could upgrade and buy a flexi ticket and jump off this C train....but no such luck🤣! I shouldn't complain as I'm thankful for 'it' being picked up and I'm tolerating drugs quite well.
Hi all, just wanted to share some positive news. I was dx for the second time in may 2016 with inoperable secondary cancer. Just had a telephone consultation with the oncologist. All is stable and no new tumor. I'm very pleased with the news and want to share with you. Stay safe all. From gaynor x