Really helpful on the exercise as I have brain mets while rest is currently under control. I can only walk - and do my physio exercises- but it makes such a difference. Using a red band to pull on the bannister for my arm and neck works well too. I have a fit bit and try and do 8000 steps as much as possible, mostly slowly and sometimes a bit faster to get my lungs working.
Thanks for the recommendation. I will definitely look at this. I have mets in my spine. I try to walk for at least half an hour every day using walking poles to help my balance and I also do basic core strength exercises every day. Getting out in the fresh air even on very cold days lifts my mood and I feel I am helping myself Physiotherapist advised me against yoga and recommended Pilates.
I've just finished Cancer Fitness by Anna Schwartz, I don't know if you've read it but it's a very positive book. I found it a very rounded book looking at how exercise can improve cancer healing, relieve fatigue and improve emotional well being. But it goes much deeper than that, such as how to manage common side effects of treatments it even gives recipes for constipation.
I got it as my oncologist suggested i may crack my ribs doing yoga but this book shows me i can exercise i just need to select whats right for me. The books about fifteen yrs old now but i found recent research from Macmillan suggesting exercise increases bone density and as i have bone mets it seems a no brainer to me to build up the muscle to support and keep my bones strong for as long as i can.
A huge thank you, the info is great x part way through cancer whisper loving it, amazing women. Who gets out their diary, no can't make that appointment, ballzy but so understandable.
Feeling soo much more positive x looking into diet an pain next 😁
Just wanted to add first book i read was, Mum's not having chemo by Laura Bond. When I was reading it i thought it was a bit 'airy fairy', and as shes a journalist more creating a heading and finding things to support that rather than neutral evidence research. BUT after reading Sophie's, cancer whisperer, I think i may have been too harsh as many of the treatments Sophie talks about are in this book. So in retrospect this is a good starting point for anyone looking for alternative treatments.
A very interesting list dragoncarine...
If I remember correctly I bought Quiet The Mind after you posted about it on here a while back, and I did find it helpful. I appreciate what you’ve said about The Cancer Whisperer, not all of it is for everyone but, would agree, it does make you think about your personal situation and having heard Sophie speak a couple of times I’d say that’s what she intended. Anti Cancer: a new way of life is another of my favourites, which I bought shortly after my diagnosis.
I hadn’t heard of a couple of them, so I’ll definitely be buying one or two more, after your last recommendation!
Have you read Radical Remission? If so would be interested to hear your thoughts?
Thanks, Kate x
I posted a book review on my macmillan blog. Copied below.
I meant to update it but never got round to it, maybe later...
Coping Successfully with Chronic Illness by Neville Shone: Quite short but full of real encouragement. Also good advice on breathing and relaxation. Similar to anti cancer below, it's written by someone with personal experience of the issues.
anti cancer; a new way of life by Dr David Servan-Schreiber: WOW - Everyone should read this. Really helpful study of the science behind really helpful nutritional advice. Second half of book deals with your state of mind and how that helps your healing too.
The Emperor of All Maladies by Siddhartha Mukherjee: Fascinating history of cancer treatment, helps to understand the various treatments being offered, how & why they work. I really enjoyed reading it, even though some passages were a bit emotional.
The Cancer Whisperer by Sophie Sabbage: As I read this, after it being recommended by lots of people, I kept thinking "this is not me". She writes about taking control of your own treatment in ways in which I am not prepared to do. However I did get one good thing from the book. At one point she talks about the importance of being clear what your own personal goals are. For her this was to live ass long as possible, I realised that for me this is not the priority - for me my priority is to be pain free. Having realised this I have turned a corner in my coping strategies - so thank you Sophie.
Pain is really strange by Steve Haines & Sophie Standing: A short, beautifully illustrated detailed explanation of pain and how it works. I found understanding my pain really helpful in learning to deal with it.
Quiet The Mind &
The Little Book of Resilience both by Matthew Johnstone: These little illustrated books are very handy guides, really helpful starting points in helping me to feel better.
Cancer made me a shallower person: a memoir in comics by Miriam Engelberg: Very lighthearted, but touched on some familiar feelings - really lifted my spirits and allowed me to laugh.
Food Rules by Michael Pollan: A fun little guide containing such gems as "It's not food if it arrived through the window of your car" and "break the rules once in a while".
Coping with the Psychological Effects of Cancer by prof. Robert Bor et al: This one I found both too specialised and too general. Too specialised in that the language used was a bit inaccessible and too technical. Too general because it only covered some general psychological effects and failed entirely to mention some of the issues I have been having.
Thank you for the replies, all of them are relevant as Nicky said hopefully others will find it easier to find info on books from a simple search. 👍
I would definitely recommend The Cancer Whisperer too, it completely slipped my mind yesterday! Lifeshocks, her second book, is also very good.
I’ve been to a couple of Sophie Sabbage’s talks, a really inspirational lady. At one of the talks part way through the session she took a phone call which was about her scan results, they were stable, but you would never have known that she was expecting them!
i am just coming up to my 7th year with bone secondaries (touch wood as I have scans in the next fortnight). The only book I have found helpful to me is The Cancer Whisperer by Sophie Sabbage. (Who lives with stage4 lung cancer). I have mentioned this before on a different thread. I just found it changed the way I think about living with this. I have only read it once but keep meaning to read it again to see if my opinion is still the same. I think it's worth the read and would be interested to know ifyou find it helpful.
Hope this helps
Thank you Kate that's helpful I've always been sceptical about books talking about eating or lifestyle changes that'll help against cancer but I see know they probably do have a place. A search on amazon is mind boggling so it's good have real reviews/opinions.
I have tried local group but in my area the breast cancer group is not focused on secondary and my concerns do not have much in common with them.
I’ve bought many books since my diagnosis, straight to stage 4, over 4 years ago now, like most things some I found much more interesting and helpful than others. That said, not that many have been just about secondary cancer some, I would say, are beneficial whatever stage you’re at. Since the early days after getting my diagnosis I’ve been very interested in integrating conventional and complementary treatments, so a fair few of my books do relate to that approach, one of those is by the cancer charity “Yes To Life”, and I think it’s a very helpful book, but written for all cancer patients interested in integrated care.
Probably my favourite book, and one I constantly go back to, is Radical Remission by Kelly A. Turner, it really is (imo) a wonderful book, well and sensitively written and an inspiring read! I’ve seen a couple of others recommend it here on the forum. At the moment I’m reading, How Long Have I Got by Fi Munro, (I wouldn’t let the title put you off!) and again I’ve seen it recommended by someone else on here.
Nicky said about another thread where books have been mentioned, one is the “How To Starve Cancer” thread. This is another favoured book of mine, Jane McClelland had stage 4 cervical cancer with mets to her lungs twenty years ago, it’s her story but she does recommend re purposed drugs, supplements and lifestyle changes, that said I think it’s an inspiring read but maybe not for everyone.
I think I would go to the Breast cancer now nurses or one of your local meet ups and hear from those
who know. Ifeel books can be quite slanted and biased to a point of view like websites, best to hear real life experiences. Mymeetup
in Sutton made me feel so much better and more hopeful and I can ask anything
Hi sorry you haven't had any replies yet. There are a few ladies on here who have recommended books but as this has been within a thread that has nothing to do with books I have no idea where to point you to have a look! Hopefully one of them will come along and let you know what they have found helpful.
It's a really good idea to start a thread with this title as anyone else can search for it now and hopefully find out some useful books to read.
Morning does anyone know, heard off or read any books about secondary cancer?
There are loads on cancer and a huge amount on breast but most of the reviews mention they don't cover or brush over secondary issues. Being recently diagnosed makes me want as much info as possible. Thanks