Wow!! Fantastic news that most of your tumours have gone or shrunk hughly, so incredibly pleased for you, and also that the pain wasn't the cancer.
Great that you've spoken to your local hospice and have been referred, hopefully now you'll get the best pain control personalised for you, you have been busy, I'm very impressed 😀.
Lovely to talk to you too xx
Thank you for your helpful reply. I have spoken to a lady at our local hospice and she has referred me. Also spoke to my consultant yesterday who gave me some amazing news that most of my tumours have either gone or shrunk hugely with the chemo. He reassured me that the feeling in my chest is down to the pleurodesis and lung procedures I've had and not the cancer. So now, if we can get on top of that life may be a bit more doable! Thanks again, nice to talk to you.
I was fortunate that my daughter in law worked for the hospice at the time I needed proper pain relief, so had help, but I'm sure you can self refer. Do you have a dedicated nurse at your hospital that you could also discuss this with and so link up all aspects of your situation and pain?
There's also Macmillian, they are brilliant, and do ring the number at the top of this page you shouldn't have to suffer with this terrible pain, they may put you in touch with a hospice.
Shout loud, I wished I'd done that sooner, good luck and let me know how it goes.
Hi Timmycat, just wondered how do you get your local hospice involved with pain relief? Do you self refer or go through your GP?
Thank you for your reply, Jane.
Oh janeb88, I'm so sorry to hear that you have more problems, it's sounds absolutely awful what you're having to go through. Can you talk with your oncologist to sort out better pain relief, you shouldn't have to put up with the pain? I was taking Co-codamol at one stage but couldn't tolerate it, I found that my local hospice were very good and sorted out my pain relief.
I'll be thinking of you, please reach out and get more help, don't put up with it.
Wishing you a successful outcome, let me know how it goes, sending you hugs 🤗 xx
Thank you Timmycat for your reply. I omitted to mention that I had pleural effusions on both lungs so had to have pleurodesis on both sides. This involves draining the fluid then having a talc substance injected which scars your lungs and sticks them to the chest wall so that hopefully fluid can't collect anywhere. It's not pleasant and it's difficult to know if it's that that is causing this feeling or the cancer. I suspect it's both. I'm not too keen on take Oramorph in the day as it makes me sleepy so I'm on Co-codamol.
So sorry that you have this pain in your ribs, I assume that this is to due to the cancer? Before I was finally diagnosed after many months of pain in my ribs and a misdiagnosis I was told that I had tumours in my bones, the primary breast cancer had spread (mammogram missed the cancer) .
I'm on morphine coupled with paracetamol, apparently they work together, to deal with the pain and give me a degree of normality, I'm sure you shouldn't have to put up with the pain because as we know it drags us down.
So hope you can get this sorted out and have a better quality of life. I don't know if this helps, but do ask all questions as on this forum there are many wonderful ladies ready to listen and support you.
Sending virtual hugs and wishing you all the best xxx
Does anyone have really uncomfortable feelings in their ribs? It's not pain as such, more a feeling that their ribs are too tight. I feel like they are crushing me. I have taken co-codamol but because it's not pain as such it doesn't seem to make a massive difference. I feel like if I didn't have this feeling I could carry out general day to day tasks but it almost feels like you are being suffocated. Any suggestions or observations would be appreciated. Thank you.