Hooray Linda 😊 A huge sigh of relief for you and a few more weeks of not having to worry about scan results and not many cycles left for Taxol. A great result and thanks for sharing.
funnyface, I have an appointment for a PET on Sept 5, so I think that will tell me and my doctors more. My doctor and I discussed getting a biopsy after the PET. Because of the lesion's location, the only way to get a biopsy would be a lung resection, meaning that it is a major operation and they would remove a segment of my lung.
Thank you for your insight. I really appreciate it. Now I just have to try to keep positive and not fall apart.
Citrinetiff, I would want to start with the lung. I would want the lesion biopsies. This would tell you if it's breast cancer mets, lung cancer or nothing at all. From this it could be decided if the liver needs biopsied. FF
I'm sorry you find yourself in this position not knowing what's coming next. It's devastating. I don't have answers to your questions and there may not be anyone here who does but you could contact the nurses at BCC. You can email them at
https://www.breastcancercare.org.uk/information-support/support-you/email-our-nurses or phone them at
0808 800 6000 I hope they can point you towards some information. It will be good to talk anyway.
Sending you lots of hugs
I am hoping someone can help me. I was dx'd with IDC stage 1 Grade 3 in October 2015. I finished my treatments (ACT + radiation) in September of 2016. I had one lesion on my right lung that could not be ruled out for mets, but it has remained stable since my first scan (January 2016). Mets have not been confirmed so I go for scans every 6 months to check its progress. I recently did my routine scans and this is what was revealed: new lesion on liver + radioligist thinking that lesion in lung is not likely to be mets but perhaps an adenosarcoma (lung cancer). I will be doing a PET scan in the coming weeks to rule out lung cancer + do a follow up scan on liver to see if lesion has changed (I did an ultrasound but the lesion is too small and too far back to see).
My questions are: is it possible to have both lung cancer and breast cancer mets in liver at the same time? I am a wreck. Has anyone experienced something like this? Help please!
My GP won't allow medical records on the app (patient access) just appointments and prescriptions, bah. Had scan on 20th and not seeing ONC till 17th Jan. Cue sleepless nights.
I have just looked at my post and see that there is an "emotional warning" at the bottom! I don't know why. Perhaps I pressed the wrong button or something.
I don't know if this is the right thread for this topic, but others have mentioned that they have registered to get their medical records on line, on this thread. (perhaps it should be a different topic?) I too registered just before Christmas and I have tried to access my records a few times since (the last time this morning). All I got was a list of my most recent prescriptions and nothing else. This is very frustrating as I want to know about myself, not what I already know. I am waiting for the holiday period to end and then I will contact the surgery. I know they can veto information, but I would think they would have to see you first and assess whether you are capable of accepting what is written. The only time I go to the surgery is every 12 weeks for a pre-treatment blood test, when I see a health-care assistant. I haven't seen a doctor there for a year. I think it is probably a problem with the site, but it is a pain to have to bother them with this.
Sorry for the rant. Compared to some of you I am in a relatively good state at the moment.
I wish all of you hope for the new year.
I had an MRI scan of my head back at the beginning of November, never heard anything, began to think that either the shortage of radiologists had reached rock bottom or that there was no change so they were waiting to tell me next month when i have an appointment. Dizzieness went away so, always reluctant to ring them up about anything, I left it. Yesterday was on the GP online site and discovered a copy of a letter to me saying nothing new had been found. I wonder where my letter went. I have been scrutinising the snailmail every morning when it plops through the letterbox and Andy our postman is a treasure.
Scanxiety over for another six months! The relief when you hear NED!!! Bloods all good too, so very happy! Hoping for the same outcome for others, Kxx
Weird isn't it? Every hospital seems to have different policies.Mine only ask if I'm pregnant. i take all sorts of meds including blood thinners. Plus I have only had 1 bone scan and 1 MRI in 5 years yet have a ct with contrast every 3 months like clockwork. Mets in lungs, liver, nodes, as well as several bones inc spine.
Hey Ho, MRI on my head tomorrow. Still, having lunch beforehand with a friend who has been really supportive and she's coming with me, (luckily she lives near the hospital which I don't.) I haven't known her that long. Sometimes this disease throws up some pearls. I wouldn't have met Carolyn and Barton otherwise.
Love to all Bon xx
Hi ff, thinking of you this week and hope you get good results. In case this helps the one thing that lowers pain in my cancer filled spine is half a steroid each day, take early in the morning while eating and at this low dose I am even able to get some sleep, one a day kept me awake all night.love and hugs