Thankyou for your well wishes you must have helped me. Everthing stable and it looks as though the bone mets are healing Yipee. So well done Capecitabine
Good luck to others waiting results xxx
Scan result day tomorrow to see if capecitabine is working got a feeling it isn't.
Good luck to anyone having results this week X
thought I would bring back this thread so many have had scans and waiting results .or are having them it is hard to keep up with you all.
So I am bumping up for Jultz
Congratulations Jultz you must be so excited with your results xxx
I can echo what Nicky has said - my oncologist does research (Guy's, Queen Mary's and QEH), says 'cancers change'.
If you have the energy and the determination you should pester your oncologist! My oncologist nearly fell off his chair when my results came back HER2+ he was not expecting it and my BC still acts as if it is HER2- meaning that is not a high grade and not super aggressive which is what really scared me when I knew it had changed. I'm also 8/8 ER and 6/8 PR so it doesn't mean you can't be HER2+ as well, which some oncologists also think. It really is a faff to have to keep on at your medical team but when I went for a second opinion at The Marsden the head Prof there (for secondary BC) said all secondary BC should be biopsied as receptors are known to change.
Sorry to hear about your recent scan results and the effect this will now have on what you had hoped to be doing job wise.
Just a thought - have you had a liver biopsy done recently (or at all)? Receptor status can change in a higher percentage of women than a lot of oncologist's give credit for, especially from HER2- to HER2+, as mine did. Although I am still strongly hormone positive it does mean that this type of treatment ie hormone will not be as successful for me on its own and I am now also having Herceptin (and Pertuzamab) which I have not had before.
Sending you a hug as its not the news you would have wanted to hear when you got your results.
Very sorry to read your news.Response to treatments seems so random sometimes. But this means that it can be unexpectedly good too - I hope the next one works really well for you.
Tomboy, so sorry you didnt get the news you'd hoped for. Try to take comfort in that there are treatment options out there for you..one will come good, i'm sure. Love and hugs.x
Hi Tomboy, grrrrrr, I know this s not what you wanted to hear, but take a deep breath , get some sleep tonight and know that a plan is in place. Hugs Marie xxxx
Oh Marirose, thinking of you. Please take care, come over to the cafe and look at the Christmas lights and share a glass of mulled wine . Marie xxxx
FF thanks for your well wishes I am now on Cape started yesterday I had a bonescan today now I have got 3weeks to wait for the results I hope I am not tempting fate but I feel quite good. Maybe in another 2week I may feel different.
Again thanks to all of you for your good wishes and I hope everyone waiting for results will get good news.
Best wishes xxx
Thanks for that explanation. It's just come on trial here, so I might be lucky enough to get it that way. It's in combo with PI3K inhibitors. I will send you a link with the info. As I said earlier, I read that Palbociclib (Ibrance) worked so well in trials in the States, that patients in the placebo group were moved over to the real drug, so they could benefit. Of course this gave Pfizer their best advert ever, but... who cares if it works.
May your success continue!
Julia, I live in the US. Ibrance is expensive. It wasn't as costly as abraxane and avastin combo. In the US infusion chemo goes under a different part of most people's insurance. Oral chemo falls under most people's prescription plan and a lot if people don't have a prescription plan. Ibrance cost around $10,000 for 21 days. Abraxane/avastin chemo was $60,000! These prices are crazy! I hope that Ibrance is available soon for you ladies. FF
So happy for you that your combo is working. I had no luck with Letrozole but have heard amazing things about Ibrance. I read about it six months ago in articles from the US and asked my onc about it just over 3 mos ago. He said it would definately be a possibility when/if it becomes available in the UK, as it isn't approved by NICE yet and costs a fortune.
Hope you don't mind me asking but, are you on the PIPA trial? I have a feeling that my current trial drugs aren't working (I will know more in two weeks after CT). Thanks in advance for any info.
Sorry to hear your news Marirose. I'm glad you have a new plan in place. Try and enjoy your break for the next couple of weeks. Definitely times for some fun and treats in the cafe xxx
Marirose, I'm so sorry your treatment has failed. We all understand how disappointing and scarey it is! I did "cap" for 2 years. It was nice not having infusions! Was a nice break from the cancer center. I hope that your disappointment can be overturned with the new treatment! Hugs, FF
Marirose, really sorry your results weren't too good, stay strong I'm sure your new treatment will give you better results, also it's worth taking on bored what Nicky has said about receptor status changing.
You take care hugs Janette xxxx
Marirose, just wanted to say , I know the results were not what you hoped, BUT a plan has been put in place..At times like this I imagine us all holding hands, we are all with yoy. Take care Marie.xxx
PS if you fancy a little drink I will be in the cyber cafe tonight and I promise not to behave !!!!
I never thought I wanted to ask about biopsy one of my ulcerated skin mets is on the tumour and it secretes fluid but then other things took over. Never mind I could ask next time I see her in 2week.
Sorry to hear that the E/E combo is no longer working for you. Just a thought, have you had a biopsy done recently ie since your mets were diagnosed as receptor status can change. If you have a tumour in your chest wall is is possible to biopsy that? Sorry if I'm talking out of place here but I changed after 10 years of being HER2- to HER2+ which meant that hormonal treatments would no longer work (on their own). I'm now on Herceptin and Pertuzamab together wth hormonal tablets after finishing chemo at the end of last year.
Good luck with your new treatment and build up your strength over the next couple of weeks before you start the new one.
Well today was my results, not good my chest wall tumour was 16mm it's now 27mm but on the good side all other mets are stable.
I am now finnished with the e/e combo Hormone treatments will no longer work so I am taking 2weeks rest before I start my new treatmen of Epirubicin or Capecitabine.
I really do hope all that are waiting for results are better than mine xxx
So pleased to hear your news long may it continue you deserve to celebrate. I will send Cyber Cheers across the ocean. xxx