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Scared.

7 REPLIES 7
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Re: Scared.

I agree with everything Paulus has said. You have nothing to apologise for and after just reading your last post was going to say I would be asking for a second opinion, if my Oncologist had said that to me, especially so soon after diagnosing spinal mets. You haven’t mentioned what treatments you’ve had, or what type of breast cancer you have, but it sounds from your first post that your metastasis are only in your spine? Maybe speaking to someone at Breast Cancer Care or Macmillan would help to answer your queries, or does your hospital, or one nearby, have a Maggies? I’ve been several times to a Charity in Bristol (appreciate you haven’t said if you’re UK based) called Penny Brohn which I can’t recommend enough, they have free residential courses, but they’re almost like retreats, which could be helpful, or they have outreach days and also a free helpline.

Please let us know how you get on and at least talk to someone who may be able to help. Take care, Kate x

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Re: Scared.

Technically, Deansmom, this is none of my business, because to date, I don't find myself with secondaries, but I am fully aware that they are always a possibility . . . . 

 

I just wanted to say that you really don't need to apologise  -  we all get outrageously scared sometimes, by lots of things in life, not just BC  -  and shock makes us spiral out of our normal self-control.  And maybe you need a second opinion - and a bit of moral support at appointments  -  if you feel that your medical team are not being as helpful as they could be.

I refused chemo for my BC, and the oncologist lady doctor in the team really was a cold fish, and probably she's a very nice woman, but her and me, we just weren't going to rub along  -  and sometimes we just need the right person.  And maybe that's what you need  -  medicals who are going to lift your spirits.  I really wish you much better days x

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Re: Scared.

If I've done what I if I've done what I think I've done, this should reply to everyone - I hope! First, I want to thank you all for your kind words. I let my fear over-rule me. That was unacceptable and I apologize. My oncologist has been saying for two years that this is hopeless, it would continue to spread, and once I failed chemo, there was nothing more he could do except pain management. Apparently, the drugs you spoke of are not available in my area, or he is unaware of them. Thank you again for your kindness. I hope the best for all of you.

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Re: Scared.

hi like the others have said quite scary and devastating for us. I was 14 years b4 secondary diagnosis initially told lump was scar tissue then 5 months later told I had recurrance and secondaries in chest not bones then yes it was in bones spine and pelvis. After initial shock now have been on letrozole ibrance and denosumab for bones changed to zometa now which is cheaper and apparently as effective. 4 out of 6 tumours smaller and things stable been on treatment for a year, get 3 monthly ct scans due next one at end of month. There is hope and successful outcomes.Its a lot to take in keep asking questions and its good we can pass on info here.hope your appt goes ok x liz

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Re: Scared.

So sorry you are going through this. It can be terrifying i know but once your onc discusses treatment you might start to feel.a little more in control. This is so hard isnt it . You are not alone x

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Re: Scared.

Hi Deansmom,

 

Appreciate how you’re feeling, I’ve got mets in my upper spine, diagnosed straight to stage 4 over three and a half years ago now and things, luckily, have gone well so far. 

Once you get over the huge shock and get your treatment plan in place, I think things will settle down for you.

I cut the hedge, which is taller than me, (with a battery operated trimmer, wouldn’t trust myself with a cable!) earlier this week, something I didn’t think would be possible prior to my diagnosis because then I was getting pain in my neck, but since starting on treatment it doesn’t bother me at all.

Good luck on Monday and let us know how you get on.

 

Kate x

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Re: Scared.

Hello Deansmom, so sorry to hear that you are suffering. I had several radiation treatments done urgently as my bone mets were right down my vertebrae amd the rest of the bones. The treatment has kept the bones stable ever since, you will probably be put on Denosumab to strengthen your bones. I hope you get a good report on the rest of your organs. Most of us long timers on here including me have a lot more spread but are kept going by all the different treatments.

Hope this helps.

Ramade x

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Scared.

I found out today that my breast cancer is now attached to my spine. I know there are multiple Mets, but I don't know how many or How Deeply they are entrenched. I don't know if this is one patch on my lower spine or if it's spread throughout my body. I'll find out more Monday. Monday seems like forever from now and I'm frightened. I'm four and a half years out from my diagnosis, and I've not been this frightened ever.

Is anybody out there? is there anybody looking at this it has been through this and can give me an idea of what to expect?

And can anybody tell me when it gets a little less frightening?