68534members
360485posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Secondary Private Group

Highlighted
Member

Re: Secondary Private Group

Hi ive not long been diagnosed with secondary Tnbc lungs , spine , liver and brain . I'm devasted to say the least. Started gem/ carb last week not tolerated very well . Had second one today .. I've not posted in secondaries but I've been reading through
Would like to join group please xxxxxx
Highlighted
Member

Re: Secondary Private Group

Hi ladies

I would very much like to join the 'private' thread - can I join please??

I'm going to email moderator in the hope of being accepted!!

Fingers crossed.

Louise

Highlighted
Member

Re: Secondary Private Group

Hi, have been wondering when I would hear if I have been accepted, for this group?

do we usually get a reply saying yay or nay? To be honest, I cant recall when I emailled to request....the days seem to run into oneanother just now. Moijanx

Highlighted
Member

Re: Secondary Private Group

Hi. Is it possible you could let me know how to join the private secondary group. Thanks
Highlighted
Member

Re: Secondary Private Group

Hi Lizzy and Anna

its been suggested to me that I try and repost some of my posts from the bone mets forum on here so they are more accessible and don't get lost in the ether. 

Kind regards

Barbara (Babsy) 

Highlighted
Member

Re: Secondary Private Group

Hi Patricia11, 

 

You should now be able to access the group. I hope this helps!

 

If you have any other questions, big of small, please email moderator@breastcancercare.org.uk.

 

Best wishes, 

 

Lizzy 

 

 

Highlighted
Member

Re: Secondary Private Group

Hello 

 

Please tell me what is happening about my request to join this closed group

 

Thank you

Highlighted
Member

Re: Secondary Private Group

Hi everyone, 

 

Thank you for asking to request to join the Secondary Private group. I have put some steps below on how to request to join. I hope this helps 🙂 

 

1. First, click on the Secondary Private Group. I have included a screenshot below.

 

Secondary Priavet Group.png

 

2. Then click the 'Ask to Join' button in the top right hand corner of the screen. The moderators will then receive your request and confirm your diagnosis.

 

Ask To Join.png

 

I hope this helps, if you have any other questions please do email us at moderator@breastcancercare.org.uk.

 

Best wishes, 

 

Lizzy 

Highlighted
Member

Re: Secondary Private Group

I'd like to join too, please. I've sent an email to moderator@bcc

Jacksy

Highlighted
Member

Re: Secondary Private Group

Hi could I join the group please x
Highlighted
Member

Re: Secondary Private Group

Just returning read my first post on the secondary thread back in December. I feel in a much better place mentally than I was then. I was helped by your kind comments and also support l have received from (removed due to Ts and Cs) the physiologist at Maggie's centre Inverness. is something my Macmillian nurse suggested to me when l confessed to how low l felt. The phycological impact of this diagnosis was an item brought up at the info day l attended yesterday at BCC Glasgow. I would be interested to know other folks experiences of support that have recieved for this and if they had to seek it out themselves or if it was offered at the time of diagnosis?

Highlighted
Member

Re: Secondary Private Group

Hi l was diagnosed with secondary bc in December. I was first diagnosed with bc in 2007 and have had lumpectomy macectomy 2 rounds of radiotherapy and FEC and Doxetaxil. Apologies for spelling. I am now on Capecitoben. Just returning from Breast Cancer Cares Secondary info day in Glasgow. It was great lots of useful info and wonderful to meet other ladies going through this in person. I'm hopeful that I can get back down for another meet up soon.

Highlighted
Member

Re: Secondary Private Group

Bump for Pippie
Highlighted
Member

Re: Secondary Private Group

Hi Scoobiesue, 

 

Thank you for asking about the private group. In order to ask to join you need to first need to make sure you are logged in. Yon can then find the Secondary Private group on the Living with Secondary Breast cancer board here. 

 

You can then request to join and one of the moderators will check your diagnosis with you.

 

I hope this helps, just let me know if you have any questions.

 

Best wishes, 

 

Lizzy 

Highlighted
Member

Re: Secondary Private Group

Hello ladies. Please advise me how to become a member of the seecret group  Sue

Highlighted
Member

Secondary Private Group

Hi all,

 

Thank you for your interest in the secondary private group.  It has been brought to our attention that there are some concerns over the safety and accessibility of the group.

 

All questions are listened to and it is understandable that the safety of the group is of such concern for everyone.  Please read all the information below, as we hope to alleviate all and any concerns, though please do continue to ask as the purpose of this space is for you all to feel safe and secure in order to provide a much needed space to be as honest and open with each other as you wish without the fear of others being able to intrude or read what you are all sharing.

 

Before accepting members to the secondary private group we read and check the content of their previous posts and see if they have previously posted on secondary boards.  If they talk about their diagnoses then we accept their request to join the group, If we are unsure about a user’s diagnosis we then email them asking if they can give us some more information about their diagnoses and explain that this is a closed and private group just for those who are living with secondary breast cancer.

 

We are very careful with whom we accept into the group and do perform checks but what we are unable to prevent is someone giving us or you false information. However, we feel confident that the group will provide a supportive, private community area for people with secondary breast cancer where they can feel safe and supported by others who have shared or similar experiences, which is in an area which cannot be viewed by anyone on the open forum. 

 

Also, we have happily now fixed the glitch which prevented users from viewing the members list of the group. You can now see the members of the group if you click the view all button at the bottom of the members bar on the right hand side.

 

Best wishes,

 

Lizzy & Anna

 

Community Moderators