So glad that you are feeling better. I have been trying to post but it hasn’t worked! Been thinking of you
Ps a had a lot of discomfort after having the drain put in as they had a bit of struggle so keep on top of analgesia oromorph when needed etc xx
Aw that's wonderful news so glad you have finally had it done and already feeling some relief😊. So chuffed you are now able to go home and learn to adjust to things. See the chat about living with a chest drain for some more info.
Take care x
A quick update; had my permanent drain fitted today.
Feeling better and breathing easier already. Home this weekend to start my new chemo, I’ve got my positivity hat back on!
Thank you so much Sarah. Feeling a bit better today and hoping that there will be enough fluid built up tomorrow to site the drain.
All this time in hospital doesn’t help, and I had a negative day yesterday. The breathless feeling is awful and frightening when I exert myself even slightly.
I'm so sorry you are still waiting for your chest drain to be sited - I can fully understand your impatience you must be feeling frustrated.
I just wanted to say hang in there - before I had my chest drain fitted I was very unwell and thought it was the start of my decline but things did improve a lot once I had it that was nearly 2 years ago.
I hope things get sorted for you soon so that you can get home.
Hugs Sarah x
Having a difficult day today. I’ve been on the oncology ward for 4 weeks with s weekend home in the middle- despite pleurodesis the effusion came back and I had to return to be drained again. Now transferred to the general hospital respiratory ward for a permanent drain fitting on the right side. I was supposed to have it done on Monday, but not enough fluid built up yet so might be Friday now..
Impatient to get home and start Cape pills as the Paclitaxel didn’t work. I’m so breathless too.
Feeling stranded and harbouring hopeless thoughts today. Anyone got any positivity to share please?
Hi Clarence, sorry you are having such a rough time. We've all been there, but Funnyface is right...all the tears in the world won't undo this diagnosis. If they did then we'd all be clear! Ive had continuous treatment for two years following my primary diagnosis, then my secondary. The mets are in my lungs, and I've only just been categorised as stable. My Onco thinks that's great, and so so I. I've had a lot of help from professionals - sleep therapist, mindfulness, TaiChi , and a wonderful psychologist . I've got a better insight as to how my mind works, and a few techniques for staying calm( er) and sleeping better . Some days the only reason I get out of bed is for my family....but that's worth it, isn't it? On those days I kick my a**e into gear, get up and have a very busy day. I'm living with, not dying from, cancer, and so are you, my friend. 💐
Clarence, Mine was found with a CT. They never mention it now. I asked at my last appointment in Nov and she said that the nodes look fine now.I go again on the 21st of Feb and have a lot of questions. My oncologist left and I'm to have a new one. FF
I’ve just been told I have a minimal increase in a node in my mediaistrum (hadn’t even heard of it) I’ve to go for another scan in 4 months. Oncologist said she wasn’t worried. I’m worried sick. How was yours found and what treatment are you getting?
Clarence, Stable is fantastic! I was stable on vinorelbine for 5 years. I of course longer for it to say improvement, that didn't happen! I've been living with metaststic breast cancer for 12 years. I've had very few times that things have improved. Almost always stable. FF
Hi Tatyana, My cancer is in the mediastinal nodes and lungs. I'm sorry you have had this diagnosis. It's not easy to hear! We understand how you feel. We just hate knowing that another person is facing this heartbreak and worry. My best advice is to have some tears, get angry and stomp your feet. Then look around you, dig in your heels and get moving with a smile. Too many precious minutes, hours, days are lost on the worry and tears. Gosh, if we could add them up it would probably be a life time. FF...
Thanks for the encouragement, ladies! I got my secondary badge yesterday with Mets in mediastinal nodes, about to start capecitabine, currently in shock. I don't need to tell you all the things going round in my mind, just one quick example: the snowdrops are lovely now, will I see them next year? And how dol I stop bursting into tears every five minutes?!
Hello ladies, Doing some catching up here. I'm jumping in to give you lung mets ladies some hope. My original bc diagnosis was Oct 1995.My mets to the lungs was Nov 2005! That is 12 years. I can't promise you the same, but I hope it can give you something to hope for!! I'm doing pretty well. I'm 63 and work PT. I have worked hard at exercising and losing weight. In the last 17 months I have lost 110 lbs. and started kayaking on a nearby lake. I recently broke 2 vertebraes, and had surgery to glue them together. All of these drugs have caused osteoporosis. I'm more worried about that than my cancer. I've seen my children graduate college, one marriage and now my first grand baby. My best advice is get up, wipe off the tears, smile and keep living!! Believe me, I cried plenty before I got my act together! It won't change the situation. It is a waste of precious time. I wasted enough time crying for all of us! FF
Hi there, I have had one FEC T treatment so far for a grade 3 HER 2 tumour in the breast which has spread to the lymph nodes.
A CAT scan showed there was a nodule in the lungs which was 'active.' 3 weeks later, a PET scan confirmed this and now I have to have another CAT scan to compare with the first and see the potential growth of what's in the lung.
Initially, I wasn't too upset because I assumed the chemo would zap that too, then I looked it up, to discover secondary breast cancer in the lungs is incurable. Such a shock. I had been expecting a pretty grim year but eventually I would come out the other side.
This is now a whole different picture.
Do I put myself through all the treatment and poss 2 mastectomies, still to be left with something incurable...?
It is hard to stay positive.