Thanks so much, I really appreciate you taking the time to write your lovely comments! You have really helped to put my mind at some ease. I'm hoping the panic has begun to subside a little. My sleeps been hit & miss and I have anxiety disorder, both of which exacebate all my emotions. Recently I also lost my dad to Gastro-Intestinal Stromal Tumour (GIST) which is a rare sarcoma so i've very much been on high alert emotionally.
Today I dragged myself to a diet & nutrition talk today that I booked through Maggies cancer centre. It was actually really good to think about positive ways that I can make a difference and chat to the other ladies there. I will give the bone mets thread a look, but will probably just wait for the biopsy results to be confirmed before being involved in any active discussion. Whatever happens I won't go down without a fight, thats for sure.
Its good that you have decided to post, but obviously not good that you here in the first place. All of us secondary ladies have had to deal with absolute shock of being told your BC has returned and is incurable (although treatable), some ladies like Anne have had the secondary diagnosis at the same time, or nearly the same time, as the primary dx which is an awful double whammy. It takes all of us time to adjust to this news and some of us might have forgotten just how horrible this time is for you although Anne is a great example of getting on with things once the shock had subsided and was only diagnosed a few months ago. I was diagnosed with bone mets over 10 years ago so my memory is not so recent but I still know how awful that time was, especially as you wait to a full diagnosis and treatment plan. I think most of us feel more able to cope once we know what we are dealing with and what treatment we will be on and this can sometimes take quite a while for the oncologists to get full and accurate information. A bone biopsy should give a definitive answer so I hope you find out one way or the other what happens next. It could of course be that it is not bone mets and let’s hope that is the case but if it is please come back nd ask any questions, we are an informative and supportive bunch. Most of us tend to post on the Bone mets please join in thread which you can normally see at the top of that page of the forum. You can add a comment by replying to the last post on there, once you have logged in, it doesn’t mean you are only replying to the person who wrote that post.
Good luck with your appointments
Despite having been registered for a while now, this is the first time I have felt able to come and explore the forums. So please forgive me while I work out whats what.
I was diagnosed with Lobular breast cancer (ER+ve/HER2-ve) in April. After a multitude of scans it transpires that there is shadowing on multiple bones.The Oncologist said they are 90% sure this is metastasis. I had a bone biopsy taken about 12 days ago and am due to return for results on 27th Sept with a view to starting Palbociclib.
When I knew it was stage 2 breast cancer I remained positive and strong that I would get through this and be well again. Since I found out it's stage 4 I feel like i'm on a slippery slope and literally have no control anymore. I am terrified and constantly anxious. i'm 40 years old and feel like I no longer have a future.
Can anyone identify with feeling this way? I am conscious that I am yet to receive the biopsy results and keep being told not to jump the gun but I also work in the nhs and understand that 90% certainty cannot be ignored.