Suzannah, I’m so sorry for you. I can imagine how do you feel, but the most important thing in your condition is not to give up, fight for life and for your future. I am not a doctor and I can’t tell you how your disease will develop, but I have a friend that passed through a similar situation like you. She had breast cancer and she thought that her life ended at that moment. But I supported her a lot and together we found one of the best cancer hospitals in us patientscommunity.org, we went to a good doctor, and finally, she defeated the disease. All you need now is more support and help from your beloved ones. Don’t give up.
Hello Suzannah, I really understand how you are feeling. Pain is the big fear for most of us I would say. Some treatments for me have worked a bit and alleviate the pain for a while. I tend to go for treatments when offered as personally i'm so far on I don't feel I have anything to lose. if you get bad pain you have the right to stop treatment at any time. I have found nerve block meds have helped me a lot. Interesting that your cancer changed as mine used to be ER pos, my husband asked if I could have a biopsy as no treatment was working and they found it's not ER receptive or HER receptive, so it was good he did ask. Only revisiting chemos left for me. I can't ask questions when we see a consultant because I am completely stressed out which isn't like me but as we all know this is a really difficult disease to deal with.
Whatever you decide I wish you all the best.
hugs, Ramade x
I can’t answer your question about how your disease will develop if you don’t have Kadcyla but just wanted to respond about Kadcyla itself.
It is a chemo that is carried into the cancer cell itself and therefore has less side effects than most. At one point my BC was shown to be HER2+ and I was given kadcyla so I know what the SEs can be, plus I used to chat to another patient on the chemo ward who had been on it for about 2 years and she also had little or no side effects.
Maybe it is worth starting on the treatment and seeing how it affects your quality of life, particularly as you say you have another underlying condition. If you can’t cope with the SEs at least you have given it your best shot.
Also maybe it’s worth speaking with a doctor or nurse at your local hospice? They maybe able to talk to you openly about how your SBC will progress with more insight than any of us on the forum? Even if it helps answer some of your questions and gives you an overall idea it might help with your decision making about treatment.
Good luck with what you decide, every one of us has a different experience of treatments, side effects, progression etc so it’s difficult to know how your particular SBC will react.
I have been diagnosed with secondary breast cancer in the bones. I have viewed the scans and the disease is widespread. I have been offered Kadcyla as a treatment to inhibit the spread of the cancer, however the previous treatment of Chemo followed by 18 shots of Herceptin did not inhibit the spread at all as the cancer migrated almost immediately after the start of my treatment.
What I want to know is how will the disease develop if I decide not to have the treatment?
I have underlying health issues which will still remain even if the cancer is inhibited and I do not wish to prolong my life if it means a life of constant suffering.
I do not fear dying as my experiences have shown me that we survive death, but I am more fearful about living with my condition.
I would appreciate more information from the experiences of others.