Hi been on gem carbo for mets in nodes triple negative had scan in Jan no mets detected and April scan no change but saying stable in comparison with Jan ct scan does this mean no change ???
Ramade, I'm sorry I just saw this post. Wow, That must have baffled you. I don't have an answer, but maybe the nurses would. Can you call your Dr.and ask? I know you have had a good many chemists, but I don't remember which ones. Even though your Dr is telling you there is only one more maybe they can come up with a combo or try a drug that they don't usually use. Don't forget about asking to revisit a drug if it's been awhile. Also ask about trials. Only you know how you feel. Wishing you the best! Hugs!! FF
Hello all, i have been treated for met bc for several years, it was hormone receptive. They've done a biopsy and said i am no longer hormone receptiveHR and i am not HER either and there is only chemo left, i've had most. i just want to know if this means i am triple negative, i forgot to ask at appointment because i was trying to take it all in.
thanks so much
Millie30, This is such a cruel disease! There is no rhyme or reason to it! Your partner was very young! I'm sorry this was the journey she had! Thankfully you got to speak to her. Take care of you and come back to chat if you feel the need. Hugs! FF
Millie30, I’m very sorry to read this and send my condolences to you, your family and friends. I’m glad to read that you got some more time to talk together and hopefully this will be of comfort to you as I’m sure it was to her. Thank you for letting us know and take care, Kate x
So sorry to hear your news Millie30 & so good to hear you could talk some more & you were there, it must have been such a comfort to her.
Sending you, family & friends every best wishes to see you through this.
Sorry to read this, Millie30. I can see that you posted a couple of days ago. How are things now ? You sound very supportive and just being there helps at this difficult time.
Hi all just got a clear ct scan but been offered 2more cycles of gemcarbo is this a insurance thing and I have no big problems on this cemo
Forgot to say had to miss gem coz my plattlets low this is the second time I've had to miss it but never the gemcarbo x
Hi tatyana had to have picc line in for rest of my cemo 2 more cycles to go had ct scan two weeks ago the lady that did the scan said I had a extremely healthy liver no news yet but fingers x it's doing its job coz my oncologist as ordered rest of my cemo to go ahead how you doing wish I could stay on this cemo forever as we have nothing else xx
Silly to ask but how do you no if gemcarbo is working had a feel of my nodes and carnt feel anything feel well just worried there is nothing else or can we stay on some form of cemo
glad the bloods are good Pinkaboo,
I'vejust finished 6 cyclesof Eribulin and awaiting scan results
Secondaries started two years ago. At the start it was also in my liver but the initial chemo cleared it, and now just ('just'! hahaha) in nodes.
TN too, in para-aortic nodes.
I'm on Eribulin, next scan mid September.
We keep plodding away don't we!
almost didn't have my cemo last week ammune system a little loo but small prise to pay if it sorts these nodes out and hope it keeps them from going on the move xx how are you doing xx
Hi I just been told got secondery in nodes after triple negative no other spreas hat all scans nodes very small one under arm other side of original masectomy and 2 bottom of neck same side as masectomy bue to start gem carbo Friday
I'm in a similar position, diagnosed with primary tnbc in Sept 2015, I now have secondaries in liver, lungs, bones and lymph system. Currently on gem/carbon. No idea if it's working yet, too soon to tell.
Good luck all