I think my last scan showed it was stable, no shrinkage but had stopped increasing. I haven’t had another scan for ages since 😢 I accidentally missed one and my oncologist wasn’t worried so is making me wait a further 8 weeks..
I think your mum should speak to her onc if they’re helpful, just in case. I thought I had better mention what happened to me, so she could see it from both sides. X
Thank you so much for your reply!! Thats really helpful !
What happened when you went back on the Ribo ? Did your cancer shrink again ?
What type of breast cancer do you have?
I will feed this back to my mum. Thanks again, Xx
I had been on ribociclib for about 4 cycles and went on holiday last year taking a 2 week break. For me my tumour that had all but disappeared grew 20% larger. This is not classed as progression as it was not big enough growth, however I was advised to not have a break in the future. Everyone is different though, so don't panic too much. I would say if your bloods are coming back relatively good then don't take the break, but if there is a real risk of neutropenia then a break would be for the best, but definitely talk to your oncologist and see what they suggest?
Thank you both for taking the time to reply to me 😊
My mum is on a lower dose of Ribocilib due to low neutrafils, but otherwise tolerates it brilliantly and has seen stable scans with improvements. It is comforting and reassuring to know other people have taken breaks with no issues. I suppose it is just removing a safety blanket! Not wanting to rock the boat!
Thanks again ladies! Take care! XX
I am also on ribociclib which I started in March. I saw my oncologist today and she said it would be no problem taking a 1 or 2 week break off the drug for a family holiday abroad. She said it wouldn't affect anything.
I must admit personally I wasn't planning on taking a break as I have very little side effects and have not yet experienced low white blood cells.
But on the other hand if I do experience low white blood cells over the next few cycles I would consider a treatment break whilst I was away as I wouldn't want to get ill while on holiday.
Ribociclib is also working well for me along with letrozole and zoladex. I also have denosaumaub bone injections.
I hope ribociclib continues to work well for your mum.
Hi there secondarysister , I'm on cycle 8 of palbociclib and I'm usually off it an extra week due to low neuts. Oncologist not too concerned as I'm on the highest dose , so I've been operating mostly 3 wks on 2 wks off.. your oncologist will confirm. Take care x
Would very much appreciate other’s experience / advice!
My mum has booked a cruise around the UK in July. It has landed as such she has two options - stop the Ribociclib for two weeks instead of the usual one week break. Or she can continue treatment whilst away and possibly suffer very low neutrafils (cant spell it, but low white blood cells).
Anyone else had a short break from treatment ? ... and did it make any difference ?
Ribociclib is working well for my mum and we are feeling anxious that she stops it! Although on the other hand it is a very strong drug and it may do her good to have a short break anyway ?
Thank you in advance!!