Hi Helen, yes it really is an informative book. I didnt find it until I'd read tons of other books but can actually say that he does make real sense and what he says is backed up by lots of research etc.
Hi Mejules , I also have been diagnosed with bc in my bone marrow as well as my spine, hips, skull, femur, shoulders,ribs etc. pretty much my whole skeleton. The drs said that I must have been walking around with it all for years. I was diagnosed 8 years after primary, but had been going to my GP for over a year complaining about pains. That was 21/2 years ago now and I'm not too bad. Some of the initial treatments, Taxol and hormone therapy didn't work for me but we are all different. I'm now on capecetebaine which is chemo in tablet form as the cancer starting spreading into the lymph glands in my chest, which so far us working. I did take a break from formal treatment for a few months and reduced my cancer by about 60% but then it came back with a vengeance. I've been lucky with side effects on all treatments and can live a relatively normal life. It is scary first of all but I decided to be really active in my cancer treatment decisions and explored various things that I could alongside conventional treatment. So I would say, so far so good. I figured if I could walk around for years with this undiscovered secondary cancer I could definitely live as healthily as possible for a few more years doing something about it!!! Read Chris Woollams book, " Everything you need to know to help you beat cancer". One of the first books that I read was "Radical Remission" by Kelly Turner, that made me think well if these people can survive terminal cancer so can I!!
Hi mejules72 and sorry you have had to join us here on the secondaries part of the forum.
There are plenty of ladies who have bone mets, as can be seen on the Bone Mets thread, but I'm not sure how many have it currently in their bone marrow so you may not get many answers to your specific questions. However we are a supportive bunch and understand exactly how your world falls apart when you get a secondary dx. As Marie Louise has said we do all manage to adjust in our own time and you will be in shock right now. We all aim to LIVE with secondary BC, not let it govern our lives but it takes time. Once you start on treatment plan you may find you become more able to cope, knowing that something is being done, I certainly feel more able to accept things if I know I'm being treated. Do go onto the bone mets thepread and ask your question about bone marrow mets as there may be some ladies on there who do have it and can help share their experiences. Good luck with the chemo and keep in touch, we all know what it's like more so than any of your family and friends will.
I am so sorry you have found yourself in the secondaries part of the forum. I am afraid I have no experience of your mets, mine are liver and bones, diagnosed the same time as my primary in Jan 2016.
You are just 2 years younger than me and I was in despair when first diagnosed. The way I have come to terms with this and believe me it took a long time and I still have my moments is that I have learned to LIVE with it. No one can tell any of us which treatment will or wont work or for how long.
Hopefully someone with more experience will be along soon to give you some advice.
Hugs to you