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Introduction: Round 2

7 REPLIES 7
Member

Re: Introduction: Round 2

Aww fab news, so lovely to hear and gives us all hope 🙂 x

Member

Re: Introduction: Round 2

I was very, very fortunate on Monday, the more detailed scan showed no abnormalities. I still also had a physical examination and ultrasound which likewise showed no cause for concern, I was also told that although late recurrences do happen after 20 years it was extremely unlikely. I wish the best for everyone on this website and thanks for your support.

Member

Re: Introduction: Round 2

Hope it went ok for you yesterday x

Member

Re: Introduction: Round 2

Hi,

So sorry to hear you have been again diagnosed with Invasive Lobular Cancer, this time in your left breast.

Can I ask what treatment you had in your right breast?

I was diagnosed with Invasive Lobular Breast Cancer in September 2019. I was told it was Grade 2. I decided to have a mastectomy with immediate reconstruction. When the histology results came back, it was a Grade 1. I then had an oncotype dx test which came back with a higher chance of recurrence, so I had a course of 6 chemotherapy.

I'm guessing you might know what treatment you are to have now as your post was over a month ago, but happy to share any details with you.

Please stay positive x

Member

Re: Introduction: Round 2

I had my cancer nearly 20 years ago, stage 2, grade 2. Apart from lymphedema, And that quite slight, I’ve been okay, so luckier than many on this site. I had my mammogram (delayed of course), just before Xmas and have to go back next Monday for more tests and to see a consultant. I know it could be nothing but I don’t think so, I’m preparing for the worst.

Member

Re: Introduction: Round 2

I can empathise. I had DCIS in left breast in 2006. Had WLI and radiotherapy.

In 2012 I had invasive ductal cancer in right breast. Had lumpectomy, chemo, radiotherapy, herceptin and tamoxifen.

2020 had new primary in left breast. Had mastectomy this time. Chemo, Zometa and will start letrozole soon.

I have enquired re right mastectomy but have been told I’m not eligible.

I found chemo much harder this time round. I hope it goes well for you though. 

Community Manager

Re: Introduction: Round 2

Hi Brit Mama,

Thank you for your post.

I am hoping that our members will see your post and provide their experience.

In the meantime, please remember that if you have any clinical question, our breast care nurses are always here and happy to talk things through.

Sending you our warmest wishes,

Zoe

Member

Introduction: Round 2

Hi All.

Here I go again! I was diagnosed in 2015 with Ductal Hyperplasia in the left breast.

2017 - Invasive Lobular cancer, Grade 1, Estrogen + in the right breast.

Last week - Invasive Lobular Cancer, Grade 1 in the left breast.

I feel numb. How can this be happening again? What does it mean? I had the BRACA test before and was negative. Why do I have this, again! I only had the biopsy and am scheduled to go for all the additional testing in 2 weeks. Will they recommend a mastectomy? Everything I read seems they will not and it will be treated the same as the first cancer. I know many of you are in the same boat here and look forward to your stories!

Still numb 😞