Mine was discovered the same way as a red irritated area around the nipple with scaling of skin and it wouldn't go away. I am 57 and I had a lift and breast implants in 2019. I didn't go big and just wanted them to be firm and balanced. So now I am trying to decide if I should have the other breast nipple removed now. The right side had surgery and radiation. Now am I crazy for wanting breasts to be the same? My husband doesn't care about the nipples. Has anyone else made this choice?
I found out about Padgets disease of the breast when I was diagnosed in Oct 2021. No family history of breast cancer so I was completely shocked. Based on being in-situ and stage 0, I followed the doctors advice and had the surgery on the right to remove the nipple, margins and 2 lymph nodes in November. In December I had 20 sessions of radiation. Now I am recovering as my breast is very red and my incision is irritated. I thought it would heal faster but after the radiation was completed it got worse and I wish they would have told me this. Anyone else have this experience? Apparently it takes another 2 weeks so I still have to be careful with my bras and apply aloe gel alot.
I have my sister facing the same issue, and it's great to see how most of you managed to deal with the condition. I'm actually feeling grateful that she was able to consult with the doctor online thanks to a cloud based medical service that we found available through a Google search. She was always feeling very nervous to visit any doctor for that kind of condition. So for me, as her only sister and only sibling on this planet meant a lot to see her progress as well. I think you could also benefit from an online consultation, if you have a person that is not willing to take that step off visiting a practitioner in the office.
I've only recently rejoined this support group - and discovered that your description of Paget's symptoms is exactly how I would have described mine. I'm currently 66 so your story has struck a nerve. I do hope that you're now totally recovered from your surgery and would love to hear updates on your condition. Xxxx I'm considering a double mastectomy (only one breast affected..same one as had DCIS 11 years ago) and my husband and I are extremely relaxed about the decision..Looking forward to my new wardrobe post surgery. 😋