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I think I might have lymphoedema!!

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Member

Re: I think I might have lymphoedema!!

Thank you for getting back to me.  I see the Dr. Friday.  After further investigation, I'm not so sure it's Lymphoedema.  I have this cord under my armpit and it goes down my arm to my elbow.  I thought this was Lymphoedema, but I believe it's Axillary Web Syndrome, also known as Lymphatic Cording.  Thank you again and have a great day.

 

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Community Manager

Re: I think I might have lymphoedema!!

Hi @TLC2019, thank you for your post. 

We're sorry to hear what you have been going through, I'm sure one of our Forum members will be in touch soon to continue the conversation. 

 

In the meantime you might be interested in our someone like me services - the Someone Like Me phone service can put you in touch with a volunteer who can support you by telephone. You’ll speak to someone who’s had a similar experience to you, who has finished their treatment and has been trained to help. We also have a Someone Like Me email service where a volunteer will support you by email correspondence.

 

Alternatively, if you like you can ask one of our Breast Care Nurses in the Ask Our Nurses area of the Forum and they can respond to you online.

Best wishes
Shareena
Social Media Officer

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Member

I think I might have lymphoedema!!

Hi there,

I had lumpectomy and sentinel node biopsy 1/13.  After surgery my muscle from my armpit to my elbow was very sore.  I asked them if they strapped my arm up during surgery and they said they don't do that.  I ended up developing two seromas, one near each incision.  The incicison under my armpit was the size of a small egg and ended up breaking open.  Now it's a wound that is healing.  It's not infected and is healing well.  I went yesterday to get my tattoos for radiation and they did a ct scan.  Today, I notice a line on the inside of my arm and it feels like there is fluid in there.  It's a little bigger than my other arm.  I've never had lymphoedema before but think this might be it.  Does this sound familiar to anyone?  Any information/advice would be appreciated.  I go back next Friday and start radiation the following Monday, 3/2.  They are sending me to see a physical therapist to measure my arms in case I develop it as they said radiation could cause it.  But, I think I already have it.