the lymphoedema nurse is no longer working locally, unfortunately. I mentioned it to the current one who didn’t know anything about, but then I’m not surprised. The lymphoedema Service here is somewhat limited, and not good, which is why I’m seeking treatment elsewhere. I think it’s something to do with the autonomic nervous system. My ‘coldness’ doesn’t bother me much, I’m just aware of it.
Kander will be really interested to know how you get on today, I feel it is not normal whatsoever as arm and hand are so cold, not a little but freezing cold, I keep dropping things and find kettle lifting difficult at times too, my lymphodema is also under control. I did ask about it but they thought there was no connection regarding lymphodema at all and did think it was a circulation issue. I feel there must be some connection surely??
So am surprised at your answer atat, the next time you go can you ask a little more about it please?
Good luck regarding your reconstruction, lets hope it's soon and all goes well for you, a lot to go through, hugs to you xx
Just seen this post. My fingers on lymphoedema arm are colder than other side. My lymphoedema nurse asked at first consultation and I got the impression that this was quite common
Thank you needles for responding, I thought it maybe that too, but because there only 3 of us am not so sure now and cannot find anything relating to those issues.
Will def ask next time I visit clinic, many thanks xx
Hi riversidedawn, thank you for responding, think we are the only two with freezing cold hands?? haha!
Hope you are doing well now, sounds as though you had a tough time.
Don't think it's normal to have such a difference in hands but must be due to something else............xx
I am really sorry to hear you have been feeling the cold.
Late opening Wednesday 9am-7pm
Am interested to know if anyone else has the same issue, now the cold weather has started again my arm and especially my hand are noticeably colder than my "ok" arm/hand. In fact my hand is freezing all the time and is cold to the touch!!
Have had a look at Dr Google but can't find anything, so am wondering if it's just me!
Would be grateful for any response, thank you xx