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Support group for secondary BC hampshire/Winchester?

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Re: Support group for secondary BC hampshire/Winchester?

No problem Mara. We can go back to the original suggestion of Basingstoke. There is a brand new John Lewis/Waitrose right near the station where we can meet. I had forgotten about it until OH mentioned it as I haven't gone there to use the cafe therefore don't normally see it! There is a cafe on the first floor, above Waitrose although there is also a smaller coffee place on the ground floor in the Waitrose section. The cafe is probably better as its a bit bigger and there's another seating area as well on the same floor. It's about a 2 or 3 minute walk from the station, you turn left after you've walked down the steps at the front of the station. It may be signposted but I've not walked to it so don't know. There is also parking on level 2. The cafe can be accessed by the moving travellators which aren't the easiest or there are lifts.

If this works for all of us please say on here so we can confirm. Maybe we can aim for 2.30 when I could meet Mara and hope that Beanbob is able to get there by 3? If it's getting too complicated maybe we can leave it for a week when we all can make it?

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Sorry Ladies I have a problem with my lift to Alresford this is so frustrating Mara
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Im still free on Friday as well. If Alresford is quicker to get to for you, Beanbob, shall we say we meet there? Say 2pm if you can get there by then? Or 2.30 if that's better? Just let us know, we can meet in the same coffee shop as we always have done. Otherwise if Basingstoke is nearer, which I can't think it is, we can meet here as I now know of a place we can go which I had totally forgotten about. If not we can meet in Basingstoke another time if it's easiest for Mara.

Anyone else with mets living in the Hampshire area is welcome to join us, you can always PM me for more details or just add to this thread and I can give more details.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky & Beanbob and happy birthday Helen

 

i can do the Friday 15 I can get a lift to Alresford if that helps. Sorry I'm late replying just had a few days in the South West.

 

mara x

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky, Mara, Helen (happy birthday!) 

 

I have never been to Basingstoke but there can always be a first time!  Friday 15th April is good but I have something in the morning and with the journey up I would try for 2.30 but it could be 3pm arrival. 

 

I'd be v happy to put in a Portsmouth meet up for May (Thursday 19th, Friday 20th May?)

 

Beanbob x

 

 

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Sorry we weren't able to meet up this week and a belated Happy Birthday to Helen (I read it on another thread) 🎈🎉🎂

Im assuming Mondays may be difficult for us all? How about Fridays? We used to meet regularly on a Friday so I'm hoping this is the best day of the week still. I can do the 15th if that helps? As to meeting in Basingstoke unfortunately there aren't many/any nice coffee shops other than the chains and these are all fairly busy most of the time so I'm not sure where we could meet that would allow us to have a more private chat as I know we often are quite honest with each other and it could get some funny looks from people close by! I will have a think if it's the only place we can meet up that's easy for us all. Helen we will have to try another meet up in Portsmouth once we get back on track!

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky and Beanbob

 

i find Basingstoke easier than Winchester if I remember correctly Beanbob is over that way if that helps more trains and buses. Sorry we won't meet this timeHelen.

 

Let me know dates I can't do  the13 or 18 April.

 

mara xx

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
No worries about Mon, hope we can come up with an alternative date. Sorry that term time is tricky for me unless it's after 2.30 & somewhere easily accessible from the Isle of Wight.
Hope you're all doing ok at the moment. See you soon, love Helen xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

It looks like Monday isn't good for all of us or the following Monday.

We will have to come up with a new date and another one that Helen can make as I know it's difficult to get here during term time.

Next week is rather full for me as its treatment week so I'll suggest a couple of dates for the following week once I've checked what I'm up to. Hopefully we (me, Mara and Beanbob) can still meet up in Winchester if that's the easiest/most accessible for us? 

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi all - afraid I can't do either 4th or 11th April but I'll join you another time, hope you all had happy Easters, beanbob X 

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Re: Support group for secondary BC hampshire/Winchester?

 

Hi Nicky Beanbob Helen

unfortunately I can't do the 4th April I am actually finally doing a trip back to Devon it's amazing I haven't been back for nearly two years. I can do the following Monday 11th. Sorry to be a nuisance I was looking forwa d to seeing you all.

 

Mara 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Helen and thanks for the reply. Having been a bit busy over Easter I had read your post but had it in my head you had said the Weds, which I knew I couldn't do. However the Monday is fine with me, how does it suit you, Beanbob and Mara? We could meet at the Cathedral refectory if that is easiest (although a bit of a walk from the train station if I remember correctly) and could make it lunchtime rather than any later? Let me know if this is good for you all, and anyone else wanting to join in and I can confirm. I don't want you making such an awkward journey though Helen if it's only me that can make it.

Nicky x

ps Hope you are enjoying your trip but a bit of sad news to hear about the cyclist who died over the weekend.

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Sorry I haven't been on for a while. Got your PM Nicky - I could come across to Winchester on Monday 4 April if that was a suitable meeting place for you all? Let me know.

Off to Belgium on Easter Monday to watch my men in lycra - bike racing!

Happy Easter everyone, hope you're all feeling ok at the moment.

Love Helen x

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi beanbob

Thats great news and a huge relief I'm sure. Sorry it's taken so long to reply but it was my birthday last week and we had a busy time then went off to Venice for a few days (as we do!) so only just back. I have replied to a PM from Helen where she suggested some dates in early April she can do but haven't heard back. Helen, if my PM didn't get through can you let me know, I've been having problems with them recently.

Everyone enjoy the Easter weekend whatever you are up to and hopefully we can organise a meet up soon which we can all get to.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi all

 

It was lovely to see you Nicky back when we did meet up. Sorry to miss you then Mara. 


My news is good - scans were good, treatment is working and so I will do another 3 months on reduced dose (to save my poor toes and fingers). 

 

Looking forward to a meet up at some stage come spring.  It's so nearly here!

 

Beanbob 

xx

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

We're sorry you weren't able to make it today MMars, Beanbob and I missed you. At least we know now what the reason was and I hope you feel less achey soon. We will try and keep the momentum going and sort another date out in the next 4 weeks or so. Hopefully we can all meet at some point when Helen is able to make it to maybe Winchester? Keep us posted on Amy dates that are suitable, Helen, and we will also try to get down to Portsmouth again soon.

Great news about your results Helen, that must be a big sigh of relief once the results are known, I know it is for me.

Have a good weekend everyone and we'll sort another date out soon.

Nicky x

btw I am still struggling with getting PMs to work, sometimes they do, sometimes they don't! So if I don't reply to any PM you send me I'm sorry, the system just doesn't allow me sometimes.

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky Beanbob and Helen I had hoped to come today but I am not feeling very with it today  I had my denusumab jab yesterday and sometimes it make me feel real achy and fluly Helen I am so pleased your stable. Hopefully we will all meet next time. It's a lovely day so enjoy the trip.

 

mara x

 

 

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Re: Support group for secondary BC hampshire/Winchester?

Have a good meet up tomorrow ladies. Really sorry I can't make it over. I had my oncology appt today and results of ct scan - all good & no evidence of disease progression! Very relieved. Next appt in July.
Love to you all, Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Looking forward to it as well! 

If any other ladies in Hampshire with secondary BC  would like to meet with us this Thursday please check out this thread and/or PM me for exact details of where we are meeting. You are more than welcome to join us.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Looking forward to our meeting this Thursday!
Beanbob x
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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky Beanbob

 

i am fine for Thursday looking forward to seeing you both. Sorry I won't see you this time Helen it's been ages.

 

karen 

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Re: Support group for secondary BC hampshire/Winchester?

Hi beanbob

The Thursday is fine for me, I luckily don't have any appointments that week. Same place and time as well.

Yes, we must meet up with Helen again so if you have some dates, just let us know.

Take care and hope all is going well with everyone.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

HI Nicky, Helen, Mara

 

It was lovely to see you in January - a lovely bright day by the sea! 

 

Planned Alresford outing - I have been scheduled a scan for the Friday 4th March (grrr). I can make 3rd March afternoon as an alternative - Nicky/Mara does that work for you?  

 

And we need a date that Helen can make too - we talked about Petersfield.  What dates work for you Helen?


Beanbob

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Beanbob and Helen

It was lovely to meet up on Tuesday and have some good old chit chat - and not all about the dreaded 'C' word 😊

As we said we will try to all meet up again in a place that is easy for you, Helen, to get to, either one afternoon or if you are off work for Easter. Will try to sort this out in the next few weeks then others can join in as well if they would like to.

However Beanbob and I will meet up in Alresford, at Tiffins, 2pm on Friday 4th March if anyone would like to join us. Hopefully this is a good time and place for you, MaraUk, and you can make it? It will bring back some happy, and sad, memories of our lovely Jacqui/swanie who started this thread and our meet ups but who is sadly no longer with us.

i will PM you Mara, anyway to see how you are.

Take care all and hope all treatments are going well.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Looking forward to seeing you all on Tue 2 Feb, 2.30pm Spinnaker Tower cafe at Gunwharf.

Mara - really sorry that you're back on here again Smiley Sad  - it would be lovely to see you on 2 Feb - can't believe the last time we met up was August 2014!

Nicky - I now have hair again! I'll be wearing a purple jacket so you recognise me!

Love Helen x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Mara

Lovely to see you posting but for all the wrong reasons 😔 If you are able to make it it will be good to catch up however I know Beanbob and I will probably meet up again in/near Alresford soon so you can always join in then if that's easier, or we could arrange something in Winchester as that might help? Do let us know how things go with your CT scan, PM me if you want a chat. I had my scan yesterday but have decided I can wait for the results until my next scheduled onc appointment, don't need the stress right now of worrying about it and chasing the results up!

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi All

Tuesday 2nd Feb at 2.30 works for me. I will put in the diary and see you there, unless there are any last minute changes via this website. 

Great - a plan! 

Beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hello Helen & Nicky and everyone

 

I would love to meet up with you all again. I can do both dates but not sure how I can get there. I will check and see if it's  possible.  As you can guess I am sorry to be back. I will know more  about treatment by then my onc appointment after ct scan is this Thursday.

 

take care 

 

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Helen. I can do both dates but would prefer the Tuesday and this would give us a chance to check the weather or any extra messages on here etc in case we have to change the plans at the last minute. Hopefully Beanbob can make it as well, if not I will meet up with you in anycase. It will be nice to have a catch up with you, Beanbob and any other secondary ladies who would like to join us.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello,

We're getting there! Beanbob can't do Weds, me Thur & Nicky Fridays so looks like a Mon or Tue is good! Mon 1st or Tue 2nd Feb - I can do either date - shall I suggest the Spinnaker Tower cafe in Gunwharf Portsmouth at 2.30pm on whichever day is best for you ladies? Let me know. Looking forward to catching up with you again Nicky & meeting Beanbob & anyone else who can make it.

Love Helen xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

My treatment day is a Friday and every 3 weeks so it's probably best to say that generally I can't do Fridays that way I don't need to work out which week it actually is on!

I can get down to Portsmouth as that is the easiest place for Helen to get to and we did meet down there last year, very easy to park and enough places to go to have a chat and a cuppa.

I can't do next week as its a bit too soon and I have a CT early in the week but the following week (25-29) I can do any day and then I can do Mon 1st and Tues 2nd Feb and then all the following week in Feb. Obviously I can make the afternoons if that's best for Helen and fingers crossed the weather doesn't change to being wintry as that may make a difference to all of us.

Hope we can sort something out and I'll check back in here to see your replies and if anyone else in Hampshire with secondary BC would like to join us.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Helen

Happy new year.  We've not met but let's change that!   Wednesday's are out for me because of trips to hospital but other days are fine. Do you want to suggest some dates and hopefully others will be along soon too. I am not sure what days Nicky can do but let's see .....

Beanbob

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Re: Support group for secondary BC hampshire/Winchester?

Hi there my friends in the South. I hope that you have had a lovely Christmas day. So sorry for not replying to your earlier posts -been having a bit of trouble using the forum. I would really like to see you all, I can be over in Portsmouth Gunwharf area most afternoons by 2.30ish from the Island, can't do Thursdays due to herceptin. Let me know when is best for you all. Take care of yourselves, love Helen xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi - a quick reply to Beanbob. This forum is yet again not letting me reply to a PM,as it has done before, so apologies and will get back to you once it allows me to, or send me your email address (by PM) and I will reply. Just wishing you all the best.

 

Hi to everyone else on here as well. Wishing you all a Happy Christmas and a hope the New Year treats you kindly.

 

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky -  

 

Good to hear from you.  I hope you had a good holiday. I have also been away much the same time and not checking in.  

 

I would definitely like to meet up. 


beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Sorry for not organising something before I went away on holiday but I ended up with a few more hospital appointments than expected as well as a few extra days having to be spent at home waiting for furniture deliveries.

Other than a few appointments that are always a part of my life now, I am relatively free over the next few weeks.

Do you think we can organise a date and location to meet up before Christmas?

Let me know your thoughts, it's been a long time since any of us met and any new comers will be more than welcome to join in.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Beanbob, hope you are doing O K. I will look out for any other replies and see if anyone is able to make any of the dates that we have suggested, or I've said I can make. If there's no other takers at this point you and I could always meet up a bit nearer to both of us rather than travel down to. Portsmouth ?

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Well done for the initiative Nicky. Would love to meet up. 

I can do 29th oct and 9th Nov.  I have some other days when I could get to Portsmouth for 2.30/3pm (2nd, 5th,  10th)

beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hello again. Sorry it has taken so long but I can blame my internet provider for that, grrrr, too many promises and too little action from them. Anyway I am back in cyber land and have had a look at the next few weeks in terms of dates.

The only dates I CAN'T do, due to hospital appointments or treatments, are Weds 4th, Friday 6th and then 12th and 13th - all November dates. Possibly Friday 30th Oct as well although I need to check with my daughter on that one. After 13th we are away for a bit so it would have to be later in the month. I hope we can all come up with a date that suits us all and hopefully meet in Portsmouth if that is Ok with everyone? Please reply, either those who have met beforehand or anyone else who would like to join us.

I will keep checking for replies and post again once I can see what suits people best, please feel free to PM me if you'd prefer.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies and thanks for the replies. I'm still off line most of the time but hope to get wifi this week so I will look up dates and give a couple of suggestions. I'm ok with Portsmouth if everyone else is? Will be back in touch in a few days, I hope!

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone

Would love to meet up again Nicky. I now finish work at 12.30 every day so could pop across to the 'big' island one afternoon as long as its not too far from Portsmouth or Southampton city centre.

I'm away last week of October and Thursdays are not a good day (herceptin every 3 weeks).

Look forward to seeing you all.

Love Helen xx

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

 

Would love to meet up,  I live near Romsey, Hants and I drive so could meet wherever you decide.

x

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Re: Support group for secondary BC hampshire/Winchester?

Hi a very quick update as I don't have regular wifi at the moment having moved house a week or so ago. This will explain my absence in general from the forum but I'm hoping we can still get another meeting organised in the Hants area.

we have sadly lost many of our lovely friends this past year or so, not forgetting Kirsti who passed away in May (apologies for not posting this information sooner but unfortunately I haven't had much access full stop to the internet). 

We would love to hear from any ladies recently diagnosed with secondary BC and who would like to meet up in a relaxed atmosphere to chat about anything at all either related to this horrible disease or not. I know there are a few of us who had manged to meet up who are still interested, Helen and Beanbob especially but it would be nice to meet some new faces as well.

 Please post on here if you are interested in meeting up and we can sort a place and time, that's for newbies as well as old hands 😊

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

oh no. Very sorry but totally understand, Nicky. I am not tied to Fridays any longer so we can find a new date.

Was anyone else planning on going tomorrow ? If I don't hear I will probably not start the journey but would meet you all at our next date. If you shout, I will come!

Beanbob x
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Re: Support group for secondary BC hampshire/Winchester?

Hi
So sorry but I'm going to have to cancel for Friday. We have our house on the market and we now have a viewing on Saturday which is going to need me doing a bit (extra) tidying and cleaning on Friday. Although an afternoon away from all of that would be lovely unfortunately it means I will be too distracted to enjoy it.
I can't make any other Friday for a few weeks however, treatments and appointments not getting in the way, I am usually available most other days of the week. Please let me know if there's another suitable date soon for everyone either in Winchester or elsewhere in Hants area. Hope someone else replies to meet up with Beanbob.
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Beanbob. I'm free and would live to meet up in the cafe in Winchester next Friday. Hopefully some other ladies, new or 'old' will be able to join us.
I'll check on here before leaving home next Friday to make sure there are no changes.
Have a good weekend.
Nicky x
Ps Yes, it would be good to get a date set in July when we can meet up with Helen and any other ladies in the Hants area nearer the coast

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Re: Support group for secondary BC hampshire/Winchester?

Helen, do you want to suggest a date time and place in July during school holidays - that would ensure you can be there.

Meanwhile, interim, does anyone want to meet me at the cafe at Winchester cathedral for 2pm Friday 12th June?

Beanbob x
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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone,

I won't be able to make 12 June - it is the Isle of Wight Festival & transport is a nightmare that weekend!

It is more difficult for me to get further than Southampton or Portsmouth for a meet up as I need to tie up trains/ferries - the last trip to Alresford took me all day which is fine if it is in school holidays but I work until 1pm normally.

I would love to see you though so hopefully sometime soon.

Take care, love Helen x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies and thank you Beanbob for posting a date, I was going to get around to it but I'm glad you have put one on here.
I am free that Friday as it's not one of my treatment days so it would be lovely to meet up with new and old faces. I wonder if Winchester is a good place to meet as I know Kirsti hasn't been able to make any of the ones we last had over towards where Jacqui lived, but I think she can make Winchester - please correct me if I am wrong. I am happy to get there if it suits the majority but, again, it may be difficult for Helen. If we can get as many replies as possible we can decide who is able to come and where is the best place.
Hope all you ladies are doing well and it would be so nice to meet up again.
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello Maggot - welcome to our local group x

 

Hello Nicky, Kirsty and all

 

I could meet at 2pm on Friday 12 June.  I think Nicky has treatment though on Fridays?   


After that i have holiday so I am putting out a thought about Thursday 9th July instead? 

 

Beanbob 

x