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Support group for secondary BC hampshire/Winchester?

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, still hoping to join you on Friday but have onc appointment in the morning, with results from CT scan, yikes. Depending on those OH and I may chose to spend the afternoon together, either if they are good or bad. I'll try and post to say if I'm coming or not so you all know how many we'll be. However if I can't make it I am keen to meet up for the next one and will fit in with place and time.
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, im off down to cornwall that fri afternoon, feeling better than expected after first cycle of taxotere/herceptinand perjeta.
Hope you all have great afternoon
Alize

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Re: Support group for secondary BC hampshire/Winchester?

Hiya, I will be there as soon after 2.30 as possible, so don't wait for mr, go on in, if you see a woman with a bewildered look on her face it will be me. Really excited, Kirstie xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies
Looking forward to our meet up on Friday at 2.30pm. Jacqui and I usually meet at the entrance of the cafe in M&S on the ground floor.
See you there.
Liz x

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Re: Support group for secondary BC hampshire/Winchester?

Hi there ladies
thank you for your enthusiasm. I look forward to meeeting you all. Getting rather excited.
if anyone would like to be picked up from Winchester I can do that. Let me know.
Take care Jacquix

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Re: Support group for secondary BC hampshire/Winchester?

Hey sarah, thats really helpful. I will be in touch nearer the time to confirm if im coming.
Thank you.
What time is everyone meeting up?
x

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Re: Support group for secondary BC hampshire/Winchester?

Hi girls,
Apologies for late reply. I have been on holiday for 2 weeks and I left computers behind me 😉
I will be there for the meet up! Looking forward to meet you all

Valia
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Re: Support group for secondary BC hampshire/Winchester?

I have the 26th in my diary too, looking forward to meeting you all.
Alize, if you can get to Southampton Airport Parkway station, I could pick you up from there...?
Sarah.x
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Re: Support group for secondary BC hampshire/Winchester?

Dear ladies, i'm in salisbury and am not sure that i wd be able to get to hedge end that afternoon as partner will have car at work but i hope you all have a great time and gain a lot from one another.
I will be posting on various threads about some upcoming news re my treatment:
I am starting perjeta alongside herceptin and taxol next week. Other than those women on trials i have been told that i am only the 2nd person in the uk to get this - funded by the cancer drugs fund. My onc told me that the other woman is from Winchester - pls, pls, pls if anyone comes across the 'lucky' no. 1 pls can they highlight my profile to that person as i wd love to get in touch.
All the best everyone , x

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Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hi thanks for the PM Jacqui.
I really don't mind travelling to any venue south of me, I'm at the top of Hampshire by the way. Am very used to going to Southampton, Winchester and Portsmouth so, as I'm probably furthest away, it is easier for me to do the travelling. It's a nice drive out anyway 🙂
Hope to be there on 26th but if I'm not I will wait to hear of the next venue/date.
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello ladies - date in diary and I will try my hardest to come too on the 26th. I would love to meet you. I am going down to 4 days working from end of the month so Friday afternoons will be a good bet going forward. take care x
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Re: Support group for secondary BC hampshire/Winchester?

Hello Nicky and Kirsti,
so pleased that you can make this date Kirsti. Nicky I hope you are able to. I will PM postcode and some directions - it is really eay to find.
Nicky it sounds like you are a bit of a distance so might I make a suggestion - to ensure that one person is not constantly having to do the mileage or miss due to hospital days ... would you like to chose the venue for our next meet-up. I am confident that there will be more. Also a date - maybe a month after this one? We can take turns. - Does this make sense - I sometimes doubt my brain function at the moment!!!
As Liz has said it is great chatting to someone in a relaxed way knowing they understand where you are coming from.
Hope to meet more of you. Remember if you cannot do this time watch this space.
Cheerio Jacquix

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies
I hope to join you as well but will have an oncology appointment at some time that day so can't guarantee it at the moment. Can someone PM me the postcode as I have no idea where to go 😉
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Jacqui and ladies, the date is in my diary and I'm very excited to meet you all. Happy Easter to all love Kirstie xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi there ladies
I think that Friday PM at the M&S in Hedgeend looks possible for most so I am suggesting the following date
Friday the 26/4/13 from 2.30pm until we want to go. i know it seems a long time ahead but this gives time to plan also more selfishly I seem to be booked up with hospital appointments an a bit of extra work (an act of madness I know). Time will fly.
If this is tricky for some perhaps we could consider meeeting at a different venue/ day next time. Thoughts welcome.
Hope to see as many as possible
Cheers for now Jacqui

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Re: Support group for secondary BC hampshire/Winchester?

Friday is good for me as I am a lady of leisure, not through choice though! Even though I can't drive any more due to brain mets I do have my bus pass! Yippee! Can probably get to Winchester if that is suitable for everyone but if M&S at H/E is a goer then that would be great as I can walk there.
Have enjoyed meeting Jacqui and it is great being able to talk to someone who understands your feelings. Hope we can arrange a meeting soon.
Liz x

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Re: Support group for secondary BC hampshire/Winchester?

Hi, I could do a Friday afternoon, I finish work at 2pm I and would love to be accommodated x.
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Re: Support group for secondary BC hampshire/Winchester?

Hi, yes, count me in as well! I don't mind which venue as I'll have to drive a distance anyway but would prefer daytime as my evenings are precious 🙂 Maybe a Friday afternoon if that suits anyone working? It may also be best to confirm initially by PM to everyone as this is an open forum and there are some wierd people out there who read these posts (as I've seen in the past).
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello all,
Happy to go to any of Jacqui's suggested locations. M&S Hedge End is easy for me, and has the benefit for all of being just off the motorway.
Friday coffee, tea or lunch seems easy. I can do evenings too, but mindful for anyone working or with children it might put a bit much on the day.
Over to Jacqui to suggest next meet...
thanks, Sarah.
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Re: Support group for secondary BC hampshire/Winchester?

Hello, please can I also join you ladies? Got secondaries in bones. I am only 10 miles east of Winchester. would be lovely to meet some peeps locally. X
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Re: Support group for secondary BC hampshire/Winchester?

I would love to meet, I would be happy to meet at M&S in Hedge End or the Winchester venues mentioned. I work Monday to Friday Between 9am and 2pm but can also make myself available evenings or weekends xxx
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Re: Support group for secondary BC hampshire/Winchester?

Hi Ladies
Sorry to be so slow getting back. I have met with NannieSpiky a couple of times at Hedgeend M&S - this is easy to find. I am not sure if she is up for driving to Winch at the moment but would be happy to meet others for an initial session in Winch. So now we need to sort out a date? I asm free on Fridays - but I must confess my free days are rapidly getting booked up. Or there is always the weekend. Or possibly the evening
So shall we list a few dates and see what fits in the majority. The Cathedral Refectory msy work as a venue daytime or the Blackboy evening..
Look forward to meeting some or all of you
Cheers Jacqui

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Re: Support group for secondary BC hampshire/Winchester?

Hi Sarah and welcome to the BCC forums

Along with the support you will soon have here, you will find lots of information and further support ideas from BCC via this link so please have a browse and feel free to join in the 'Live chat' or attend the 'Living with secondary breast cancer days':

http://www.breastcancercare.org.uk/secondaries?utm_source=Homepage&%3Butm_medium=help_you&%3Butm_campaign=secondaries

Our helpliners are on hand with support, information and a listening ear on 0808 800 6000, lines are open 9-5 weekdays and 10-2 Saturdays, our team can also talk to you about our 'One to one' support whereby you can chat to someone in a similar situation via email or telephone

Take care

Lucy

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Re: Support group for secondary BC hampshire/Winchester?

Hello all, I'd love to join you. I live in Locks Heath, about halfway between Southampton & Portsmouth. My bc was diagnosed in Nov with secondaries to liver & lung at same time... Sarah.
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Re: Support group for secondary BC hampshire/Winchester?

HI Nicky! And welcome Kirsti.
I am already looking forward to our meeting 🙂
Valia
x
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Re: Support group for secondary BC hampshire/Winchester?

Hi Kirsti and welcome to the BCC forums

In addition to the support here you may find the following link useful, here you will find lots more information and support ideas from BCC such as secondary 'live chat' which is held on Thursday evenings at 8.30-9.30 and 'Living with secondary breast cancer' events:

http://www.breastcancercare.org.uk/secondaries?utm_source=Homepage&%3Butm_medium=help_you&%3Butm_campaign=secondaries

Our helpliners are also on hand on 0808 800 6000 and lines are open 9-5 weekdays and 10-2 Saturdays so please feel free to call for further support and information

Take care

Lucy

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky and thank you for your welcome, this is amazing, I mean to know that there are ladies so local who I may be able to share concerns and laughs with. I so look forward to more on our meet up, must dash cause I've got to 'get Danny' lol xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi Kirsti and welcome to the boards - I think I read somewhere else that you are new to the forum? I must say, has anyone told you that you look like Doris Day 😉 And hi to Valia, I've seen your posts before but didn't know you are a local girl.
It sounds like there's quite a few of us interested in meeting up locally, hopefully we can get this arranged. Shall we see if there's any more takers and then try to come up with a place and a date?
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

It will be great the secondary ladies to meet up.I live in Winchester but I could travel around if somewhere else it's easier.Any more around the area?
Valia
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Re: Support group for secondary BC hampshire/Winchester?

It will be great the secondary ladies to meet up.I live in Winchester but I could travel around if somewhere else it's easier.Any more around the area?
Valia
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, I have secondaries and live in Bishopstoke, not far from Winchester, I would love to meet up for a chat and Biscuits, (mainly biscuits) 🙂 xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi Nipinuk/Linda
Thanks for that info. It may be that one or two of us already go to that organised session but I think we (secondary) ladies are looking to meet up locally with others from this forum who are in the same boat so to speak. There are several such informal groups already meeting at different places around the country but so far I don't think there's been one set up in this area for secondary ladies, we will see. If the Winchester meeting you went to has quite a few secondary ladies already attending maybe it's something we could look at as it's fairly central - going on the replies that Jacqui has had so far.
Nicky

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Re: Support group for secondary BC hampshire/Winchester?

Oooh, I just went to a breast cancer support group in Winchester last week! It was my first time there and the ladies are lovely. They meet on the first Tuesday of the month from 7.30pm-9.30pm at The Simeon Room, Christchurch, Christchurch Road, Winchester. They are in the middle of re-launching the group so I found it a great opportunity to suggest ideas and offer whatever little skills I have. There is a 50p contribution for tea/coffee and biscuits.

The breast care nurse from Winchester was there. The group is linked with the breast care unit in Winchester.

Do send me a message if you're interested (this is only my second post so apologies in advance. I'm still finding my way around)

I'm between Southampton and Winchester.

Linda
FEC 75 chemo starting on 21 March
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Community Champion

Re: Support group for secondary BC hampshire/Winchester?

Hi ladies, I'd be interested in a meet up. I live a bit further north in Hampshire than you all do but can easily make a trip down the M3 to wherever 🙂 I don't think there are any secondary groups that meet up in this area (from the forum), I've certainly not heard of any in the 5 years I've been coming on here.
Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello girls.
I live in Winchester. I would love to meet for a cuppa and a chat.

BW
Valia
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Re: Support group for secondary BC hampshire/Winchester?

Hi Jacqui
I live in Hedge End and would like to meet up. Maybe we could meet halfway somewhere for a cuppa and chat? PM me if you are interested.
Liz x

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Re: Support group for secondary BC hampshire/Winchester?

Thanks Lucy - I will do that

Jacqui

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Re: Support group for secondary BC hampshire/Winchester?

Hi Jacqui

Our helpliners may have information about a support group or meet up in your area, feel free to call on 0808 800 6000 lines open 9-5 during the week and 10-2 Sat

Take care

Lucy

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Support group for secondary BC hampshire/Winchester?

Hi I was wondering if there is anything going on in my area. It would be nice to meet others occassionally, maybe monthly for coffee and a chat.
Cheers Jacqui