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Support group for secondary BC hampshire/Winchester?

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Re: Support group for secondary BC hampshire/Winchester?

So is it the Spinnaker Tower Cafe on 2nd May or do people prefer somewhere else?

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Re: Support group for secondary BC hampshire/Winchester?

 hello all thanks for your messages sorry I haven't been in touch this site never notifies me when there are any replies. I may possibly be able to come on the 2nd of May but my daughter usually has Wednesday afternoons off nowso i like to pick her up if i can.  I am doing ok thanks the eribulin is not too bad im just very tired also had a quick hospital admission at the beginning of this week had a scan to rule out cord compression. Hope you had a lovely birthday dragoncarine and the others of you ok what with big operations and little babies!!    in terms of next time I will be free after the 2nd of June and Mondays and Fridays are good to meet when I have treatment two out of three weeks it is Tuesday and Thursday I'm at the hospital.  here's to feeling good and more energy xxx

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Re: Support group for secondary BC hampshire/Winchester?

Sorry I can’t join you this time ladies. I’m doing very well with my recovery and saw the surgeon for a follow up appointment yesterday when he said he was very pleased with my pregress. I go back in 2 weeks for a further follow up and hopefully will be driving soon after. It’s a big op, far bigger than I thought so the fact I feel much more like ‘me’ now is good!

Have a fabulous birthday Julia 🍾🎂🎉 and everyone else enjoy you tea and cake when you meet up in May.

Nicky xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies 

i can do 2nd May 1.30. I’ve not heard from Pippy I hope she is ok. Hope your birthday was a fabulous one Carine. Mine is this Thursday and I’m sooo happy to be another year older bring on the cake 🍰 🎂 I say 😃.  Congrats on the new baby Helen a busy time for you all.  Hoping you’re continuing to do well Nicky and we’ll catch up when you are well recuperated in a few weeks. 

 

Will check back to see if we can all do 2nd. Hopefully Pippy will be along shortly.

 

love to all

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

I can do 2 nd May ladies 1.30. Has anyone heard how pippy is. Hope she can come too xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
Hope you're all doing as well as possible on your treatments. Nicky, hope you're ok my friend.
Been pretty busy since last meeting- new grandson & a 50th birthday & an aborted liver biopsy (long story!). Sorry I couldn't make your celebration Carine but I hope you had a good time.
I could do Wednesday 2nd May 1.30pm - will check back & see if that's ok with everyone.
Take care, Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

 

wishing you a speedy recovery Nicky, hope all is going well. Hope your birthday is fab Carine and much celebrating done. 

 For our meet ups I can’t do April but  I can do 2nd May and then I’m off to Scotland for two weeks, so i could do 25th May, 30th and 31st.

 

Hope everyone is keeping well.

 

love to all 

Julia X 

 

 

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Re: Support group for secondary BC hampshire/Winchester?

I can fit in with any day as long as it’s 1.30 ladies x

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Re: Support group for secondary BC hampshire/Winchester?

Wishing you a speedy recovery Nicky. Hope to see you as soon as your healed. X

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Re: Support group for secondary BC hampshire/Winchester?

Is anyone free for an April meeting and where?

 

Place: happy to go anywhere

 

possible April date: I could do Wed 25th - other than that it would have to be May

 

possible May dates: Wed 2nd May, Fri 11th May, Wed 23rd May

 

What does everyone else think?

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Re: Support group for secondary BC hampshire/Winchester?

Hi dragoncarinne.

Enjoy your celebration, I won’t be able to make it as I had my liver resection last week and will be in recovery mode for some time. I hope you and everyone who joins you has a great time, raise a glass for me 🥂

 

To all other Hants ladies please organise another meet up between yourselves. I will not be able to get to any locations for at least another few weeks due to my operation and not being able to drive afterwards, or have the energy for that matter. Will miss not meeting up but would hope to be able to get to the one after.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

I'm having a birthday (49) + anniversary of secondary diagnosis (1) celebration of being alive. Going out for meal at a local pub on saturday 21st April. More details via PM if anyone would like to join me.

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Re: Support group for secondary BC hampshire/Winchester?

Really good to see you all last Wed for our little 'celebrations' and catch up. Shame you couldn't make it Pippy, you said you were starting another chemo-i hope it's manageable for you.
Daughter is still pregnant! Hopefully he will come soon.
Take care everyone.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hiya, can't make it today. Hope you have a good time and will hope to join next time xxx

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Re: Support group for secondary BC hampshire/Winchester?

Hope to see you all on Wednesday about 1.30 x

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone, will hope to come on Wednesday but I have got to stay in for an important delivery... And won't know the window until the night before. Bit fed up cos I have to start a different chemo on Thursday.

Hope to see you all xx

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone 

just back from the wonderful PB. Looking forward to seeing those that can make it on 21st. 

 

Love 

julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Hi

Yes, I’ll be there at 1.30, cafe at the bottom of The Spinnaker Tower, Portsmouth if there are any other ladies who want to join us who don’t know where we have met before.  Looking forward to seeing everyone that can make it and fingers crossed the weather stays clear.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Don't think I can make it for 1:30, I may be a little later than that - hopefully be there by 2ish

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Re: Support group for secondary BC hampshire/Winchester?

Hi lovely ladies

Wed 21st March is fine for me too - 1.30pm, usual place? My daughter's due date is 27th so hope to come along next Wed but if I'm not there you know why!

Celebrating sounds good Carine & NIcky - I have a significant birthday on the 2nd April we can throw in the mix!!

Enjoy the Approach at PB Julia.

Love Helen xx

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Re: Support group for secondary BC hampshire/Winchester?

Hello all,

looks like 21st March is looking good. Hopefully  Helen and Pippy will be along shortly with their dates.

 

im off to a Penny Brohn again tomorrow. I’ll check in again to see if we have a set date when I get back.

 

love to all

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

What a great idea dragoncarrine, I'll celebrate with you as it's 10 years since my bone mets diagnosis - on April Fools' Day of all days - the worst joke I ever heard!!

I can do 21st March (plus most other dates but just saying the ones that others have said they can do) and at the moment the other dates in April except for 12th.  Obviously if you're off for the school/college holidays it makes sense to fit in with you, and anyone else who needs to take time off or re-arrange their hours.

Also happy to travel to Portsmouth, it's much easier once the days get a bit longer, or Winchester but that's quite a drag for most of you as the majority seem to be coast based now.

Will check out the thread again for more info about where and when.  Thanks for organising, it takes the pressure of me to do it and in fact there's no reason we can't take it in turn.

Nicky xx

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Re: Support group for secondary BC hampshire/Winchester?

I’m up for meeting and also a celebration. Can do most days ladies. Hope you are all keeping well x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies 

 

a great reason to celebrate always Carine 👏 I agree.  Dates I can make in March are 20th, 21st, 28th. April I can do quite a few dates so I’m sure I can fit in with whatever is agreed on.  

 

Hope all is week with you all and treatments are going well with good results.

 

love to all

 

Julia Xx 

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Re: Support group for secondary BC hampshire/Winchester?

When (& where) shall we have next meeting? Wednesay 21st March would be ideal for me.

 

March dates that I can make are: 13th to 15th; 21st, 22nd, 26th to 29th

 

April dates that I can make are: 5th to 13th; 17th to 30th.

 

Subject to change as I wait for appointments to come through.

 

It's coming up to a year since my diagnosis so I thought I might have a little celebration of still being alive in April if anyone would like to join me in that.

 

Location - anywhere works fine for me as long as I can park the bike.

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Re: Support group for secondary BC hampshire/Winchester?

Was great to meet you all again. I’d be lost if I’d not found you all. I saw my oncologist who decided to start me on kisqali with letrozole I start on 21st. I’m still planning to work part time but will see how this goes. Can’t wait to get started after this wait. Enjoy Penny Brohn Carine. Look forward to meeting you all again in a few weeks time x

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone

so lovely to see you all last week. Judy I hope you’ve got a treatment plan now and Carine I hope your scan results were good and you enjoy Penny Brohn. Good luck for your scan next week Helen, hopefully get my results next week. 

 

Love to all wishing all well with treatments

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Really good to meet up on Tuesday. Hope that your scan results were good Carine and that your oncology appointment went well & your questions answered Judy.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi all

see you later today. Hopefully i’ll be there about 1.45 

 

safe journies ladies.

 

love 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Looking forward to seeing you all this afternoon, I should make it for about 2pm.
Sorry you can't make it Moijan, another time hopefully. All the best with the Taxol. Just in middle of cycle 17 of eribulin and due a scan on 20th Feb-fingers crossed.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Ladies, was planning to come along, but not getting much sleep now due to a uti and Cipro...blast it, so maybe next time....unless you all happen to be up and around Gatwick? Lol

 

xxxMoijanx

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Re: Support group for secondary BC hampshire/Winchester?

Coming from work possibly before 2 pm x

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Re: Support group for secondary BC hampshire/Winchester?

Nicky, sounds like an excellent plan to go to Europe, I am kinda stuck at the end of a drip three weeks out of 4 and prob should have done that myselfxx

 

have a great time

 

Moijanx

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Re: Support group for secondary BC hampshire/Winchester?

I have looked up the trains etc, hopefully I will be well enough, I’ve been feeling a little odd since the Taxol, and have another tomorrow......could you just check the website the night before in case I’m not feeling well?

 

dont want you all worrying about where I am...will post which train I’m planning to go on, after the weekend.

 

love,

 

Moijanx

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Re: Support group for secondary BC hampshire/Winchester?

Hi I would hope to get there about 1:30 and I will be wearing my head scarf ! X

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Re: Support group for secondary BC hampshire/Winchester?

We mentioned last time that it might have been helpful to have some sort of sign so people can recognise us. I have a very small pin badge on my leather waistcoat but it's not very visible - maybe others have an idea? I've booked my time off, so will be leaving Romsey at 12:30ish - should get to Portsmouth by 1:30 if not earlier. I'm easy to recognise as I'm the one in the biker gear :-)

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

It looks like Tuesday 6th is the best date for everyone. Unfortunately I now won’t be able to make it as OH and I have decided to take a short break before I get involved with treatment changes. We had already booked a one night stay in the UK on the Monday but have decided to cancel that and go away for a few more days in Europe. All of this has only come about over the weekend so I’ve not been holding back, I was just waiting for more confirmations about who could or could not make it before posting. I don’t see there’s any reason to change the meet up date so although I will miss seeing everyone I can catch up next time.

Moijan, sorry if you’re making a big effort to get there, I know it will be quite a long travel time, so I’m extra sorry I won’t be there. Hopefully one of the ladies who will be able to get there for 1.30 will be able to look out for you.

Enjoy the afternoon and hope the weather is kind to you all.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Moijan

Would love to meet you in person!! Looks like everyone seems able to make Tue 6th Feb 1.30 in the cafe at the bottom of the Spinnaker Tower at Gunwharf Quays shopping centre on the waterfront in Portsmouth. Not sure where you are coming from but train to Portsmouth Harbour is a 5 minute walk from station to Gunwharf - well signposted. There is also a large multi storey car park at Gunwharf.
I can't get there until 2.30 as looking after grandson but am sure Nicky will let you know who to look out for. Last time there were 7 of us.

Good luck for your scan Julia - on a Sunday!
Love Helen xx
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Re: Support group for secondary BC hampshire/Winchester?

I can come Tuesday 6 at 2.30 x

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Re: Support group for secondary BC hampshire/Winchester?

Good luck for your scan Dragoncarine on 29th. I have my scan  this Sunday 28th!

 

best wishes

 

julia x 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky, and Helen, I’d love to come if I can, have always wanted to meet you all

 

let me know

 

Moijanx

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Re: Support group for secondary BC hampshire/Winchester?

Carine not Caring!! Predictive text at work again!
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Re: Support group for secondary BC hampshire/Winchester?

Good luck for your scan on 29th Caring, hope you don't have to wait long for the results x
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Re: Support group for secondary BC hampshire/Winchester?

Thank you - I'll make sure I've got everything well in advance and take tuesday afternoon off then. :-)

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Re: Support group for secondary BC hampshire/Winchester?

Hi I can do the Tuesday xx

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Re: Support group for secondary BC hampshire/Winchester?

At the moment it looks like we’re leaning towards Tuesday. If anyone else who is interested in joining us would like to say which day is best I will confirm it early next week. Just thinking of Dragoncarrine who may have to take time off work to get there on Tuesday and giving her enough time to organise it.

Have a good weekend all if I’m not on here before then.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
Glad you've all enjoyed Iceland! Just returned from Paris myself!
Could make Tue 6th Feb but will be a bit later than 1.30 as I will be looking after my grandson in the morning. Can't do the Wednesday, sorry.
Hope you're all ok & treatment is going well.
Love Helen xx
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Re: Support group for secondary BC hampshire/Winchester?

Hi all

The Tuesday is the day I can do. Hope you loved Iceland Nicky. And hopefully will see you all soon.

 

Love to all

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

I can do either Tuesday or Wednesday (but prefer the Wednesday if choice is equal between the two).

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Another one back from Iceland - and getting my head around these dates!

It seems that none of us can make one particular day in that week (w/b 5th Feb)

I now can't do the Monday or Thursday (and, as said, would rather not do the Friday).

It therefore looks like it is down to the Tuesday or the Wednesday.

If we can all say which day out of those two we can do (even if you have already said, just so it is a quick count rather than a checking back) and we will go with the majority as thats the only fair way to choose I think - and I'm not going to make the decision!! If there is no majority we'll go back to the drawing board or I'll take a blind guess between the two.

I can do both btw.

Nicky xx