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Support group for secondary BC hampshire/Winchester?

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Re: Support group for secondary BC hampshire/Winchester?

Ok, will throw some dates out - Tuesday 10th, Monday 16th, Monday 23rd, Tuesday 24th, Wednesday 25th, Gunwharf 1.30pm ish.
Be lovely to see you all.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Just back from a holiday in a very hot France which, unlike the UK, didn't seem to want to cool down overnight!  A lovely time away though with a wedding in the middle of it all which made it extra special (although not for a relation, it was a friends' daughter who my eldest went to primary school with and the parents are close friends)

I can make most days so can fit in with anyone else's plans.  I am happy to come down to Portsmouth as long as its not a Friday as the traffic home is too heavy.  It makes sense as you are all down there and at the moment the weather is so much nicer than in the winter when I do it.

Oh, and just had recent cT scan resuts and everything is stable with no soft tissue mets (as they removed the one I had in the liver during my op). Staying on Fulvestrant and denosumab for now.

Nicky xx

ps Anyone else with mets living in Hants/Winchester/Portsmouth area is welcome to join in just watch this page for details about time and place.

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
Hope you're all coping with the heat & treatments. So pleased you've had shrinkage Judy & I hope Nicky and Julia enjoyed France, we're off to Paris end of July for Le Tour de France (I am a cycling fanatic!!).
Would love to see you all this month, free Mondays,Tuesdays and Wednesdays in July apart from 17th & 18th, 30th & 31st. Portsmouth is easier for me particularly as I am now on weekly paclitaxel Thursdays due to a sudden multiplying of liver mets ☹ however I am able to get to Winchester with some notice, mindful that Nicky has to drive quite a way for Portsmouth.
Look forward to a date.
Take care, Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi all

glad all is going well for everyone. I haven’t been on here much as Ive been to Scotland for a couple of weeks and going to France tomorrow for a week so I won’t be around for a June meetup. But July will be good for me. 

Thats brilliant news Judy so pleased for you. Nicky glad you are doing well after surgery, be interested to hear all about it. 

Hope everyone is getting to enjoy this lovely weather isn’t it gorgeous (sorry if it’s raining when you read this 😉).

I’m happy to make Portsmouth if it’s easier for most, but I don’t mind Winchester either.  

 

Take care and love to all.

 

Julia X 

 

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Re: Support group for secondary BC hampshire/Winchester?

I came on here to ask how everyone is doing. So lovely to know you are recovering well Nicky. Can’t wait to hear how everything went with surgery.

Hope you are ok Carine? Would love to meet up with everyone when it’s convenient. July sounds good as have just sold my house so things a bit busy this month. Hope you are all well. Can’t remember if I said I had shrinkage after just 2 and half cycles yaaay. Love to you all and hope you are all doing well. I’ll meet wherever is easiest xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi

I was also going to update this thread as it’s gone very quiet. I’ve not been around much as I have been recovering from my operation as well as being busy with grandson plus a holiday. I’m not around for the rest of this month, a holiday planned some time ago in France which involves a wedding in the middle of it which we’re looking forward to, so I won’t be able to make any dates in June. However I should have more time in July so happy to meet up some time then. Maybe if a June meeting goes ahead another date can be set for July? I am happy to travel to Portsmouth (it’s a lot easier in the summer months although busier for parking once the school holidays start) or Winchester.

Hope to see you all soon and hope everyone is coping with treatments and SEs.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Been a bit quiet on here this month, Is anyone free for a meeting? 

I could do week beginning 25th - any day

Winchester was mentioned, which is fine for me, what is most convenient for everyone?

 

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Re: Support group for secondary BC hampshire/Winchester?

Winchester would be great for a meeting xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies I see the meeting was cancelled. I’m still laid up with runs not good! I’ve got my first post chemo scan on 19th May getting anxious already. Hope we can all arrange another meeting very soon Love to all xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
Sorry you aren't feeling well Judy, hope you pick up very soon.
Thanks for message Julia - I think it would be a good idea to postpone until end of May/beginning of June. The weather is awful today! Perhaps we can get together in Winchester next time when Nicky might be able to join us and won't have to drive so far.
Enjoy your holiday Julia.
Helen xx
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Re: Support group for secondary BC hampshire/Winchester?

Morning all,

just got back in from very soggy dog walk and seen that Carine and Judy not able to come today. Helen ive whatsapped you to see if you still want to go this afternoon as the weather is pretty awful.

 

Judy I hope you feel better soon. 

 

Love to all X 

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Re: Support group for secondary BC hampshire/Winchester?

Going to give it a miss this afternoon I'm afraid, don't fancy the ride to Portsmouth in the rain. If it seems to be stopping I may go along but I may just rest at home for a bit.

 

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Re: Support group for secondary BC hampshire/Winchester?

Sorry ladies I’m unable to make today’s meeting. I’m back on treatment after 2 weeks suspension and feeling awful. Hope you have a lovely time xx

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Re: Support group for secondary BC hampshire/Winchester?

See you Wednesday at Spinnaker Tower cafe, 1.30pm xx
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Re: Support group for secondary BC hampshire/Winchester?

no not got emails. may have written it down wrong? 

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Re: Support group for secondary BC hampshire/Winchester?

I’m ok for spinnaker ladies 1.30 xx Carine did you get the group emails from everyone on our PB friends list. Yours were bouncing back? If not I’ll print it all off for you xx

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Re: Support group for secondary BC hampshire/Winchester?

So is it the Spinnaker Tower Cafe on 2nd May or do people prefer somewhere else?

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Re: Support group for secondary BC hampshire/Winchester?

 hello all thanks for your messages sorry I haven't been in touch this site never notifies me when there are any replies. I may possibly be able to come on the 2nd of May but my daughter usually has Wednesday afternoons off nowso i like to pick her up if i can.  I am doing ok thanks the eribulin is not too bad im just very tired also had a quick hospital admission at the beginning of this week had a scan to rule out cord compression. Hope you had a lovely birthday dragoncarine and the others of you ok what with big operations and little babies!!    in terms of next time I will be free after the 2nd of June and Mondays and Fridays are good to meet when I have treatment two out of three weeks it is Tuesday and Thursday I'm at the hospital.  here's to feeling good and more energy xxx

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Re: Support group for secondary BC hampshire/Winchester?

Sorry I can’t join you this time ladies. I’m doing very well with my recovery and saw the surgeon for a follow up appointment yesterday when he said he was very pleased with my pregress. I go back in 2 weeks for a further follow up and hopefully will be driving soon after. It’s a big op, far bigger than I thought so the fact I feel much more like ‘me’ now is good!

Have a fabulous birthday Julia 🍾🎂🎉 and everyone else enjoy you tea and cake when you meet up in May.

Nicky xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies 

i can do 2nd May 1.30. I’ve not heard from Pippy I hope she is ok. Hope your birthday was a fabulous one Carine. Mine is this Thursday and I’m sooo happy to be another year older bring on the cake 🍰 🎂 I say 😃.  Congrats on the new baby Helen a busy time for you all.  Hoping you’re continuing to do well Nicky and we’ll catch up when you are well recuperated in a few weeks. 

 

Will check back to see if we can all do 2nd. Hopefully Pippy will be along shortly.

 

love to all

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

I can do 2 nd May ladies 1.30. Has anyone heard how pippy is. Hope she can come too xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
Hope you're all doing as well as possible on your treatments. Nicky, hope you're ok my friend.
Been pretty busy since last meeting- new grandson & a 50th birthday & an aborted liver biopsy (long story!). Sorry I couldn't make your celebration Carine but I hope you had a good time.
I could do Wednesday 2nd May 1.30pm - will check back & see if that's ok with everyone.
Take care, Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

 

wishing you a speedy recovery Nicky, hope all is going well. Hope your birthday is fab Carine and much celebrating done. 

 For our meet ups I can’t do April but  I can do 2nd May and then I’m off to Scotland for two weeks, so i could do 25th May, 30th and 31st.

 

Hope everyone is keeping well.

 

love to all 

Julia X 

 

 

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Re: Support group for secondary BC hampshire/Winchester?

I can fit in with any day as long as it’s 1.30 ladies x

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Re: Support group for secondary BC hampshire/Winchester?

Wishing you a speedy recovery Nicky. Hope to see you as soon as your healed. X

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Re: Support group for secondary BC hampshire/Winchester?

Is anyone free for an April meeting and where?

 

Place: happy to go anywhere

 

possible April date: I could do Wed 25th - other than that it would have to be May

 

possible May dates: Wed 2nd May, Fri 11th May, Wed 23rd May

 

What does everyone else think?

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Re: Support group for secondary BC hampshire/Winchester?

Hi dragoncarinne.

Enjoy your celebration, I won’t be able to make it as I had my liver resection last week and will be in recovery mode for some time. I hope you and everyone who joins you has a great time, raise a glass for me 🥂

 

To all other Hants ladies please organise another meet up between yourselves. I will not be able to get to any locations for at least another few weeks due to my operation and not being able to drive afterwards, or have the energy for that matter. Will miss not meeting up but would hope to be able to get to the one after.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

I'm having a birthday (49) + anniversary of secondary diagnosis (1) celebration of being alive. Going out for meal at a local pub on saturday 21st April. More details via PM if anyone would like to join me.

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Re: Support group for secondary BC hampshire/Winchester?

Really good to see you all last Wed for our little 'celebrations' and catch up. Shame you couldn't make it Pippy, you said you were starting another chemo-i hope it's manageable for you.
Daughter is still pregnant! Hopefully he will come soon.
Take care everyone.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hiya, can't make it today. Hope you have a good time and will hope to join next time xxx

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Re: Support group for secondary BC hampshire/Winchester?

Hope to see you all on Wednesday about 1.30 x

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone, will hope to come on Wednesday but I have got to stay in for an important delivery... And won't know the window until the night before. Bit fed up cos I have to start a different chemo on Thursday.

Hope to see you all xx

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone 

just back from the wonderful PB. Looking forward to seeing those that can make it on 21st. 

 

Love 

julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Hi

Yes, I’ll be there at 1.30, cafe at the bottom of The Spinnaker Tower, Portsmouth if there are any other ladies who want to join us who don’t know where we have met before.  Looking forward to seeing everyone that can make it and fingers crossed the weather stays clear.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Don't think I can make it for 1:30, I may be a little later than that - hopefully be there by 2ish

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Re: Support group for secondary BC hampshire/Winchester?

Hi lovely ladies

Wed 21st March is fine for me too - 1.30pm, usual place? My daughter's due date is 27th so hope to come along next Wed but if I'm not there you know why!

Celebrating sounds good Carine & NIcky - I have a significant birthday on the 2nd April we can throw in the mix!!

Enjoy the Approach at PB Julia.

Love Helen xx

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Re: Support group for secondary BC hampshire/Winchester?

Hello all,

looks like 21st March is looking good. Hopefully  Helen and Pippy will be along shortly with their dates.

 

im off to a Penny Brohn again tomorrow. I’ll check in again to see if we have a set date when I get back.

 

love to all

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

What a great idea dragoncarrine, I'll celebrate with you as it's 10 years since my bone mets diagnosis - on April Fools' Day of all days - the worst joke I ever heard!!

I can do 21st March (plus most other dates but just saying the ones that others have said they can do) and at the moment the other dates in April except for 12th.  Obviously if you're off for the school/college holidays it makes sense to fit in with you, and anyone else who needs to take time off or re-arrange their hours.

Also happy to travel to Portsmouth, it's much easier once the days get a bit longer, or Winchester but that's quite a drag for most of you as the majority seem to be coast based now.

Will check out the thread again for more info about where and when.  Thanks for organising, it takes the pressure of me to do it and in fact there's no reason we can't take it in turn.

Nicky xx

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Re: Support group for secondary BC hampshire/Winchester?

I’m up for meeting and also a celebration. Can do most days ladies. Hope you are all keeping well x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies 

 

a great reason to celebrate always Carine 👏 I agree.  Dates I can make in March are 20th, 21st, 28th. April I can do quite a few dates so I’m sure I can fit in with whatever is agreed on.  

 

Hope all is week with you all and treatments are going well with good results.

 

love to all

 

Julia Xx 

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Re: Support group for secondary BC hampshire/Winchester?

When (& where) shall we have next meeting? Wednesay 21st March would be ideal for me.

 

March dates that I can make are: 13th to 15th; 21st, 22nd, 26th to 29th

 

April dates that I can make are: 5th to 13th; 17th to 30th.

 

Subject to change as I wait for appointments to come through.

 

It's coming up to a year since my diagnosis so I thought I might have a little celebration of still being alive in April if anyone would like to join me in that.

 

Location - anywhere works fine for me as long as I can park the bike.

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Re: Support group for secondary BC hampshire/Winchester?

Was great to meet you all again. I’d be lost if I’d not found you all. I saw my oncologist who decided to start me on kisqali with letrozole I start on 21st. I’m still planning to work part time but will see how this goes. Can’t wait to get started after this wait. Enjoy Penny Brohn Carine. Look forward to meeting you all again in a few weeks time x

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone

so lovely to see you all last week. Judy I hope you’ve got a treatment plan now and Carine I hope your scan results were good and you enjoy Penny Brohn. Good luck for your scan next week Helen, hopefully get my results next week. 

 

Love to all wishing all well with treatments

 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Really good to meet up on Tuesday. Hope that your scan results were good Carine and that your oncology appointment went well & your questions answered Judy.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi all

see you later today. Hopefully i’ll be there about 1.45 

 

safe journies ladies.

 

love 

Julia X 

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Re: Support group for secondary BC hampshire/Winchester?

Looking forward to seeing you all this afternoon, I should make it for about 2pm.
Sorry you can't make it Moijan, another time hopefully. All the best with the Taxol. Just in middle of cycle 17 of eribulin and due a scan on 20th Feb-fingers crossed.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Ladies, was planning to come along, but not getting much sleep now due to a uti and Cipro...blast it, so maybe next time....unless you all happen to be up and around Gatwick? Lol

 

xxxMoijanx

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Re: Support group for secondary BC hampshire/Winchester?

Coming from work possibly before 2 pm x

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Re: Support group for secondary BC hampshire/Winchester?

Nicky, sounds like an excellent plan to go to Europe, I am kinda stuck at the end of a drip three weeks out of 4 and prob should have done that myselfxx

 

have a great time

 

Moijanx

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Re: Support group for secondary BC hampshire/Winchester?

I have looked up the trains etc, hopefully I will be well enough, I’ve been feeling a little odd since the Taxol, and have another tomorrow......could you just check the website the night before in case I’m not feeling well?

 

dont want you all worrying about where I am...will post which train I’m planning to go on, after the weekend.

 

love,

 

Moijanx