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Support group for secondary BC hampshire/Winchester?

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Re: Support group for secondary BC hampshire/Winchester?

Hi Beanbob

Ahh I'm sorry you can't make the 21st, I hope all goes well for you and hopefully meet you another time.

 

best of luck for 21st.

 

julia x 

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Re: Support group for secondary BC hampshire/Winchester?

Hi girls

 

I won't be able to join you Wed 21st. Not only is it my scheduled Zometa date but I had a conversation this evening with my consultant and he is planning to tag on more treatment including the first injections for Faslodex that day.  I need to keep it free. 

I hope you all have a lovely afternoon. Sorry not to see you all and not to meet Julia.  See you in Winchester/Portsmouth another time.  Let me know if you agree on another date.  I can do the last Friday of October and then Wed/Thurs afternoons in November. 

 

Beanbob xx

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Re: Support group for secondary BC hampshire/Winchester?

Shall we agree on Weds 21st? 

I will contact you, Beanbob, anyway but have had a few busy days recently so not been very active on my email or on here. Same goes for Mara.

For Julie we meet at 2.30 at the cafe at the base of the Spinnaker Tower. Helen and I have met before so know who to look out for but we can wait in the entrance to make it easier for you to spot us.  If you want to send me a PM with your mobile number I can give you mine, that way if there are any last minute changes from any of us we should be able to make contact. Otherwise we normally check on here during the morning of the meet up to see if it's still on.

Looking forward to catching up and hope that you can make it Beanbob, by the way I meant to have said how sorry I am to hear about your mother in law but glad that she lived a full and healthy life.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone 

I can do Wednesday 21st if that's the only day everyone else can do. I'm sort of flexible at work that week so I'm happy to fit in with everyone else. Hope everyone is doing well have a great weekend

 

Julia x

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Re: Support group for secondary BC hampshire/Winchester?

Hello everyone
I can't do Thursdays and 22nd I have herceptin, Denosumab and blood tests which I can't change as I work in the morning, really sorry.
I can do Wednesday 21st though. If it's only me who can't make it please just go ahead anyway.
Helen x
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Re: Support group for secondary BC hampshire/Winchester?

A quick follow up - I have realised I should hold back on confirming my availability since either of those days might be the day of my mother in law's funeral on the IOW (please don't feel obliged to react or send condolences - she lived healthily for 91 years the lucky lady). I will know precisely what day by tomorrow afternoon.  

Beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky, Mara, Helen and special welcome to Julia

 

Looking forward to a meet up since I am going through a dip. Chemo break didn't last long and I am going through tests to sort out the next treatment. It will be better once I've started....sigh... 

 

22nd is good for me.  I am in the clinic on 21st PM but could ask if they have an AM appt if that was the only date we can all meet.

 

beanbob xxx

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Re: Support group for secondary BC hampshire/Winchester?

Hi

i have seen both of your replies so will wait to hear from Helen and Beanbob about meeting up that week before confirming.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi and thank you MaraUK

Hopefully we'll meet up soon. Hope your tiredness passes. Wishing you well

 

julia 

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Re: Support group for secondary BC hampshire/Winchester?

Hi nicky

i can certainly get to Gunwharf, thank you it would be nice to meet up. I can do the Wednesday 21st or Thursday 22nd. 

 

thank you 

 

julia x 

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Re: Support group for secondary BC hampshire/Winchester?

Hello and welcome it will be lovely to meet you  Julia sorry you are joining us though. Nicky so sorry I forgot to pm you thanks for the jog to the memory . I am still very tired at the moment I think I need a good boost of something lol.  I will pm you later if it doesn't work let me know  Karen 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Julia.

I see Helen has sent a welcome and, no, you are not gate crashing this thread, it's lovely to hear from more ladies who would like to meet up. As Helen has said we are a bit far flung at all corners of Hampshire which makes meeting up in one set place very difficult. We did start off with quite a few ladies and Winchester was the central point for most of us and we tended to meet there but unfortunately as time has gone on we have dwindled in numbers.

The likely place to meet next would be Portsmouth as we have done on a few occasions now. Also, afternoons are best for Helen as well so we make it about 2.30 in the cafe at the bottom of the Spinnaker Tower, an easy place to find at Gunwharf Quays.

I can't make any days next week (12th-16th). The following week I can't do the Monday (19th) or Friday (23rd) but am free T, W and Th.

If anyone who is available that week posts on here the days they can do we can try to get a date organised. I will then confirm the date, time etc.  It does get a bit difficult and I'm sure you will have seen that we often have to cancel but we try to get together when we can. I realise Mara may not be able to make it but we will sort out another date and venue that she can make, or I will meet up with her once she has PMd me.

Nicky x

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi helen

that sounds great. I think I've "spoken" with Nicky08  on here before, I'm not a newbie I've been on here since diagnosis last January but just haven't posted a lot. I have secondary bc with liver mets. No surgery, 6 sessions of docetaxol and H&P, now just maintanence H&P. 

I can do Monday afternoons from 2pm or anytime Wednesday's or Thursdays. 

 

Look forward to meeting up.

 

best wishes to you

julia x 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Julia

Welcome! It would be lovely to meet up with you sometime. We have a few of us in the South here - I'm on the Isle of Wight, and we have others in Basingstoke, Petersfield & Andover. We try & meet up occasionally - Winchester or Portsmouth seem to be the favoured locations which are easiest to get to. Nicky08 is our 'leader', having been here for the longest and is very knowledgeable! I think we are trying to get a meeting organised in Portsmouth, previously in the Spinnaker Tower cafe at Gunwharf. I can do afternoons from 2.30pm onwards but not Thursdays. Post us when you are free and we'll see what we can come up with.

Sorry you've had to join us but it will be lovely to meet up with you.

Good luck with any treatments.

Helen x

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Re: Support group for secondary BC hampshire/Winchester?

Hello ladies, I hope it's ok to gatecrash your thread but I was wondering if there are any plans to meet up near Gosport.  I'm not sure how these meet ups work or if anyone can join in, look forward to hearing.

 

thank you 

 

Julia 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies
Have just got back from Spain so missed the last few comments on the forum, sorry. I can't make it over this week and go back to school 5th Sep so I can only do afternoons from 2.30 in Portsmouth now -let me know if you are free to meet up sometime. It was lovely to see Karen on the Island.
Take care & hope your treatments are working well at the moment.
Love Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

sorry to take so long replying . I had a lovely  meeting with Helen it was great to catch up I will pm you about meeting you in Basingstoke it would be good see   you xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

I was waiting to see if beanbob replied about dates etc before suggesting anything else so we now know you are having a good time beanbob - which is great. I would have emailed you if I'd not heard but I've been busy with both sets of parents at the  moment, for different reasons, so havent had as much time as I'd have hoped.

So, we can arrange something for September but just wondering if dates in August are still OK? I can get down to Portsmouth if thats easiest, helen, or maybe Winchester if Mara wants to join in? I hope you two met recently especially as none of us have seen Mara for a while.  If it's difficult in August maybe MAra and i can meet in BAsingstoke, as was suggested once before? I'm fairly easy to travel to these places if thtey are best for everyone else?

Just update on here any dates etc that are convenient. I have treatment this Friday but after that not for another 3 weeks which leaves me relatively free as we are not going away this month. However I do have a couple of short breaks in september so will try to put some suitable dates up that most of us can make.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi all

 

sorry I missed this chatter about dates. I was away enjoying several post chemo holidays now my energy is back. I am going away again too, tomorrow to France. Back in September. Would love to see you all then. Happy holidays till then

 

Beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

 

I am meeting Helen on the 6th so can't make this one. So glad you got across the pond you seem to be getting about a lot which is great. Just to say hi to Beanbob hope all is ok.

 

mara x

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Re: Support group for secondary BC hampshire/Winchester?

Hi there,
I'm away again in Spain in a fortnight. Could do Tuesday 9th afternoon, 15th, 17th, 30th, 31st - sorry! Next week was really my free week. Amazing how quickly the diary fills up around treatment!
Love Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi Helen

As this is next week it's a bit tight for me as a couple of things have come up in the last few days - typical! I hope you get to meet up with Mara, maybe we should all come over to the IoW instead! How are you fixed for later in August? After next week I'm hoping things calm down and my weeks keep as free as they were when I posted.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky, Beanbob, Mara et al

I can come up on the train from Southampton to Winchester, not a problem. I'm free Mon 1st, Wed 3rd, Thu 4th, Fri 5th Aug - any of those days fit with you all? I think Mara is coming to Isle of Wight 5 - 8 Aug so we were going to meet up here as well.

Let me know asap - hope to see you!

Love Helen xx

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

Ive had a few frantic weeks what with being away on holiday and generally fitting in things between the few appointments I've had. 

As we're now into summer holiday territory are we able to arrange a meet up that we can all get to?

I'm thinking of Winchester as a central point but not sure how doable this is for you, Helen? I expect it would mean a full days travel more or less? We could meet in Portsmouth again but this I think is a problem for Mara? I would suggest Basingstoke again but having researched it over the weekend the train times up from Portsmouth (for Helen) make it far too long a trip for her - and there's not much here to see whereas Winchester might be a nice day out!

I am pretty free for August and early September except for every 3rd week for treatment on a Friday. If anyone is interested please add a message on here and we will see if we can get this organised in the next few weeks.

Helen - good to see you got to Paris and enjoyed theTdF again! Hope the headache that you mentioned before has gone and it's nice not to be going to work every day for a few weeks.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Helen 

 

sorry your feeling off. Just thought I would let you know in case your worrying there is a real  headachy bug going around just like. Flu  it's ages since  I saw you all I hope to make August but I can't do  the 5th to the 9th  of to the Isle of Wight again . Thanks for worrying about me Nicky but I am not to bad at the moment except for stress overload lol take care Mara x

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone
I am so sorry but I won't be coming over tomorrow afternoon. I am very tired this week plus suffering with a permanent headache. I really wanted to see you all and have left it to the last minute to make a decision but I think I should get some rest.
Will be able to make a Winchester meet up in the first 2 weeks of August if that's any good.
Really sorry ladies, take care of yourselves.
Love Helen x
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Re: Support group for secondary BC hampshire/Winchester?

Hi

Just checking that there will be at least 3 of us meeting this Thursday, 23rd, in Portsmouth?

If none of us can still make it can we post on here as we could re arrange and save the journey. I'm still fine to be there and if anyone else with secondaries based in Hampshire would like to join in please let me know on here or by sending a PM (Private Message)

Nicky x

ps will try next time to make a date and place that you are able to make Mara, hope you are coping OK with current treatments.

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

brilliant news about your scans. I hope to see you all in the summer unfortunately I can't make it this time

 

take care Mara x

 

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Re: Support group for secondary BC hampshire/Winchester?

Brilliant news Nicky - I bet you are relieved at that. Will be lovely to see you on 23rd and I should be able to make it up to Winchester one day in the summer holidays.

Helen x

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

23rd is good for me as well. 2.30 at the cafe at the bottom of the Spinnaker Tower? Mara, if you can make it we'd love to see you, along with any other ladies in Hampshire who have secondaries.

After that maybe Winchester if Helen can make it in the holidays?

Nicky x

ps great scan results yesterday for me, phew, the drugs are still doing a good job xx

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Re: Support group for secondary BC hampshire/Winchester?

Hi everyone,

Hope you're all getting on ok with your treatments at the moment.

I am free 23rd June that week for a Portsmouth meet up - can be at Gunwharf for 2.30.

 

Hope we can sort a date out between us.

Take care, love Helen

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Re: Support group for secondary BC hampshire/Winchester?

Hi

Either 22nd or 23rd June in Portsmouth would be good for me. 

Thank you Nicky, and best wishes to all Hampshire girlies 

Beanbob X

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Re: Support group for secondary BC hampshire/Winchester?

Hi

Apologies for not adding anything sooner. Beanbob and I did manage to meet up which was great to catch up.

Due to a couple of short holidays and some other things, i think we both said late June would be the next best time that we both might be around. The idea is to next go to Portsmouth so Helen44 can join us. So the week of 20th June was mentioned. Are any days that week OK with anyone? I know it's in term time but we thought the afternoon would work? Just reply on here anyone who can make it and we can hopefully sort it out.

Mara, hope you are doing OK and maybe you can join us as well if it's not too difficult? Otherwise we will have to sort out a more central location for the next one.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

 hi Nicky

 

i hope you had a good meet up we had a really great few days such wonderful weather it felt like the med. hope to eventually meet soon.

 

Mara x

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Mara

Have seen your message - have a great time on the IoW!

Will try to contact Beanbob regarding today's meet up (which I'm still happy to go to btw Beanbob) and will post another date soon.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

We are going to Isle of Wight this weekend and OH wants to add an extra day. I do hope you see this Nicky so sorry to be a nuisance but I don't have any other contact for you Mara x
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Re: Support group for secondary BC hampshire/Winchester?

Great! See you at the entrance of the 1st floor cafe in John Lewis Basingstoke (it's near the station) Thursday at 2pm

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky and beanbob

 

i should be ok for Basingstoke I f that's ok with you both  2pm is fun me with me. 

 

Mara x

 

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Re: Support group for secondary BC hampshire/Winchester?

yes, I can make it. Looking forward to seeing you, beanbob 

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Re: Support group for secondary BC hampshire/Winchester?

Hi ladies

I hope everyone is enjoying the Bank Holiday.

Just checking to see if Thursday is still OK? I can still make it but probably not get to Winchester for 2pm as I'm busy in the morning. We can try the John Lewis cafe in Basingstoke if that suits? 2pm or 2.30? Just say whether you can make it or not and we will confirm on here.

Nicky x

ps new and old SBC ladies all welcome.

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky &Beanbob I can do Thursday 5 th May its in my diary Mara X
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Re: Support group for secondary BC hampshire/Winchester?

Hi beanbob

The Thursday is fine with me. I can do any of the places mentioned (and assume you can?) so we can see what Mara thinks, either now or nearer the time. If we put it in our diaries now we can make sure we all meet up whoever is available?

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Small correction - i meant Thursday 5th may as a possible....

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Re: Support group for secondary BC hampshire/Winchester?

Got the message about this week. 

Mara, sorry you're not feeling too good.

and May - a good date for me would be Thursday 4th May. How does that work?  Is Winchester easier than either Alresford or Basingstoke for us all? 

Beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Oh dear, sorry to hear you are not feeling so good Mara. Take it easy and we will get something sorted for early May!

We will leave it this week as Beanbob has to come quite a way to get to Basingstoke and I've realised it may be a bit tight on timing for me to go to Alresford if we went back to our original plan.

Hopefully catch you both, and Helen, soon.

Will be in touch.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky

 

didnt want to let you down last minute not feeling too good at the moment so If I say no now  you and Beanbob can go back to our original coffee shop. I hopefully May will be ok for everyone Marax

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Re: Support group for secondary BC hampshire/Winchester?

Hi

Thanks Beanbob for getting back to us.

Mara are you still OK for this Friday? (15th)

If yes then I suggest we meet at 2.30 at the Cafe entrance at the new JL in Basingstoke. Beanbob can get there as near to that time as possible.

If not then it looks like next week is out (for Beanbob) and I know I have a week of appointments the following week so it would then be the first week in May.

Lets see how we do!

Nicky x

 

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Re: Support group for secondary BC hampshire/Winchester?

Hi Nicky Mara

i can make Friday 15th but not Friday 22nd (or any other day next week). 

Beanbob x

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Re: Support group for secondary BC hampshire/Winchester?

Hi Mara

We'll wait to hear back from Beanbob as I realise I can't make next Friday (sorry, should have checked 1st) although I'm free the other days next week. I can still make this Friday if everyone else can.

Nicky x

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Re: Support group for secondary BC hampshire/Winchester?

Nicky sorry next week would be fine with me I can get a train or a bus not been in the new John Lewis yet Mara x