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Fear of Radiotherapy after effects

11 REPLIES 11
Community Champion

Re: Fear of Radiotherapy after effects

Great news ,good luck to both with the rest of the sessions .So glad the forum helped you .x

Member

Re: Fear of Radiotherapy after effects

Thanks for info all very useful. Session 1 over a double session as both sides required radiotherapy. 30 mins on table, only 14 to go🤔 . I do think the forum helped us get started so thanks to all. I will be happy to share my experience as a partner should it be required in future. Best if this thread is closed now. Alby

Member

Re: Fear of Radiotherapy after effects

It's great to hear your partner has found that extra ounce of strength to go ahead with rads, when she was feeling she had had enough. If of help: I was fascinated with how clever the rads and rads-team are, it really is precision engineering! My team were also very tuned-in to my emotions, and put as much effort into that side of the treatment as they did the science. It is a bit daunting first time ( new machines and faces) but as chances are the same team will treat her throughout, and as that is everyday, a rapport soon builds up and towards the end it was actually quite fun as we had a few laughs. 

It can be quite hard to 'go floppy' so they can line you up, but they won't turn the machines on until they are certain you are in position, so rads hitting your heart or lungs is safeguarded against. They also watch through video link and come in half way through to check you are OK. Aveeno can be bought in Tesco ( in the baby-product aisle) but best go with what the team recommend. Best wishes. Wonky 

Member

Re: Fear of Radiotherapy after effects

Thanks Jan , I read your reply to “herself” and as she said it helped quite a bit after she chastised me for going public! But I explained I am only a “man” everyone knows we are “hopeless” anyhow we are going for the first radiotherapy session ( already been tattooed ) to see how it goes, one step at a time👍 Thanks again for sharing your experience.

alby😘

Member

Re: Fear of Radiotherapy after effects

Thanks very much for reply, I read this out to “her who must be obeyed” and she said it did help and thanks👍

Member

Re: Fear of Radiotherapy after effects

Hi Alby

 

Like your wife, I was wiped out by paclitaxel and was given a brief respite before moving onto radiotherapy in late May rather than April. I can honestly say it went against all expectations. The hardest thing was getting into the right position when my scar and muscles were a bit tight. I had a tiny itchy patch on my chest after 9 treatments and that was it. I did get sore muscles about two months after radiotherapy finished but medication resolved that neuropathic pain.

 

My oncologist told me radiotherapy has the greatest impact, if you go by the evidence. Having got this far, why waste that opportunity? However, maybe your wife needs some time to lick her wounds, as I did. It may be that her oncology team would be willing to defer it for a week or two - which DOES make a difference even if it doesn’t sound long. Also, if you think about it, there must be million of us surviving with supposedly scarred lungs and damaged hearts - they have refined radiotherapy to minimise these effects and we barely notice them unless we are already vulnerable. Unfortunately, they are obliged to inform us of all potential side effects and we end up scared stiff.

 

Some of us are worn down physically and psychologically by treatment and it’s hard to picture ourselves taking even one more thing. However, just one little gift like a fortnight’s respite can make all the difference. I certainly would respect her decision if her mind is set but encourage her to explore the alternatives first - and ask for some anti-nausea meds for the letrozole till it wears off.

 

I wish you both well,

Jan x

Member

Re: Fear of Radiotherapy after effects

Continued....

within 5 minutes and my staff were really nice.

hoping this may help and if u want to ask any questions pls just ask.

good luck . Mini mad xx 💖💖

Member

Re: Fear of Radiotherapy after effects

Hey Alby,

reading ur post it sounds like ur other half has really been through it.

all i can say is i had 15 radiotherapy sessions and compared to my 12 paclitaxel it really is so doable.  Apart from a little tiredness and a slight pink warm boob at the end it wasnt at all bad.

drink LOADS and moisturise daily,  i did twice a day and again when i came out after my session.  I used AVEENO right through and my skin was good.

it really is nothing to be scared about,  apart from when they do their measurments and you get your dots on ur skin, this will be ur longest appt.  After that u are in and out usually within 5 m

 

Member

Re: Fear of Radiotherapy after effects

Thanks Jill

 

Community Champion

Re: Fear of Radiotherapy after effects

Community Champion

Re: Fear of Radiotherapy after effects

Hi Alby ,I can totally understand how your partner feels ,cancer treatment can be exhausting and grind you down emotionally and physically and she sounds like she has had a really rough ride .Most people find radiotherapy a walk in the park compared to chemotherapy but as it's coming at the end of a very long journey I can understand her struggling with it .Most people actually have very few side effects - fatigue and a sore boob being most common .They are very precise in the area they treat to avoid causing damage and measure you up and position you exactly each time .The benefits of radiotherapy in terms of helping stop a re-occurrence are pretty high .Would your partner benefit from some support from others going through  the same thing at the same time - I know I found that really helpful .There are radiotherapy monthly threads in the going through treatment section .You cant pressure her to go through with the treatment but you could help encourage her by being super supportive( you sound like you are )  and say what can I do to help you get through those 3 weeks - cook ,drive ,treats etc - anything she needs to get through .I found having a friend come with me to some sessions helped and have a nice lunch /coffee after the session so I had something to look forward to .Hope all goes well .Jill x

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Member

Fear of Radiotherapy after effects

My better half had a double lumpectomy, (one tumour was HER2?)then a really bad experience with chemotherapy as the 8x doses of paclitaxol were to strong and caused problems, she was due to have 12 but because of the problems they stopped. She is on a 18 dose course of Herseptin of which she has had 5, also on 1 a day letrazol ( which make her feel constantly sick). She is just about to start radiotherapy and is fearful of the possible after effects ( scared lungs etc) to the point of taking a chance and not undergoing radiotherapy. Please excuse any misspelling and this is not a moan as the treatment/ people have done their best. What should I do ? Encourage the radiotherapy , just support her decision? Anyone had same issues if so what outcome? Thanks in advance. Alby