been trying to knock this infection on the head- the last lot of antibiotics make me feel pretty ill but think we are slowly getting there. have a whole body CT scan in just over a week then hope to start chemo....
Hi Bazza was doing well until today- have had a lot of fluid build up on both mastectomy sites and had about 3 pints taken off last week. unfortunately on the right side where i had the lymph nodes out i now have an infection. I saw the Oncologist today- a lovely Doctor and now have an idea of whats coming! am starting FEC-T regime in 3-4 weeks time followed by radiotherapy and then Tamoxifen after that- at some point i'll be having my ovaries out too once the chemo is done. I think now the worst bit is waiting the next 3-4 weeks! Hey Ho xx
Thank-you for that- it all sounds very sensible 🙂 as soon as i have an idea of the plan forward i will feel better- its getting used to all the waiting that is frustrating - too much time then to think. I thank you for your words x
Hi- frustrating as waited for 1 1/2 hours for the consultant to find out resuts would be another week. I did get some fluid drained off which gave a bit of relief. I already know i will be having chemo as its grade 3 and in the lymph nodes so it isn`t delaying treatment only delaying me knowing what the plan is- that's what i struggle with most. I will take your advice and get onto the chemo threads though once i have a little more of an idea x
Well I'm so happy it's happening fast for you. My treatment is slow in my opinion. I got my MRI results on 6 August and need another ultrascan and biopsy on my other breast as its shown up something suspicious. Well my ultrascan will be on 19 August and I'll get results on 3 September. It's funny because when you find a lump or change in your breasts you're advised to go to gp asap. My left breast has invasive lobula cancer and feels like it's getting bigger each day the mass is already 5 cm. maybe they are waiting for it to spread to my lymph nodes. Sorry I'm so depressed and don't feel like they give a toss. Unfortunately I've got plenty of time to think, especially when I'm waiting over two hours to see a consultant. I'm considering leaving it to chance. I just don't want to be in any pain. But I am sincerely happy that you are having a better experience than me.
I totally understand you're feeling overwhelmed at present - it is a lot to take in. I can't tell you how to feel or cope with what's happening but please ask as many questions as you can think of before you see your specialist (make a list - they won't mind) and DON'T latch onto all the scare stories you may hear or read - so much can be done now to help you. I'm 18months down the line from diagnosis and while it's been a roller coaster at times I've managed to find reserves of strength I didn't know I had. I'm sure you will too. Good luck to you!
Welcome to the forum. I'm sure you'll find lots of support on here from other members.
If you do need chemotherapy you may find it helpful to join one of the chemo monthly threads. I've attached a link for the August group for you to have a look at:
Very best wishes
Hi everyone I'm new on here- hoping to find and give support on this windy road. I found a breast lump only 5 weeks ago (i'm 44) because i carry the BRCA2 gene defect i had a mammogram last year and check my breasts very regularly. i found the lump and made sure to see my GP the next day who referred me and i was seen by the consultant 2 weeks later- 1 week later my results confirmed a grade 3 invasive ductal carcinoma and i had a larger area of DCIS in that same breast. 5 days later i had a double mastectomy ( the genetic stuff meant that was really the best way forward) they did Sentinel lymh node biopsy at the time and found cancer cells so i've had the full axillay clearance on that side. that was only last week and i'm back for final results today. Its all happened so fast i don`t think i've really had chance for everything to sink in. I have been told that i will need chemotherapy and i guess i'll knowmore later today- getting through the surgery was my worry but now i'm slowly mending i guess i'm pretty freaked out about what happens next.
It seems there are so many different stories and experiences and it would be good to see what others are dealing with and how they are coping.