I'm glad to hear that you have a plan. We all know that waiting is dreadfully hard and I'm glad you've managed to get those fears under control. Its still sounds like certain bits of information are needed to determine what happens next. I just wanted to reassure you that chemo is do-able - if you do need it and it passes quickly. Hoping you can plan things to take your mind off the surgery and will be thinking of you on the 5th June.
Take care, Rattles xxx
Welcome to the forum. I hope fellow members will soon notice your post and come along with some support.
You might find it helpful to give our helpline a call. They will be able to offer you practical information and emotional support. They will be oen at 9.00am (9-5 on weekdays and 10-2 on Saturdays). The number is 0808 800 6000
Very best wishes
I too -after 9 years, (with invasive second stage cancer -mastectomy/radiation / chemo and tamoxifen) -have been diagnosed with invasive second stage cancer in other breast. I understand your shock although this time I feel angry.
What was your new diagnosis? ductal lobular inasive/non invasive & stage?
Do be thankful gmc that you don't have secondaries and take up free counselling on offer.
This second diagnosis is hard isn't it Elmers. I don't think I've coped with it as well as I did the first time round but I am seeing a councellor and I think it helps a lot. I didn't need chemo on the first occasion but had it this time. I sympathise with you so much knowing now what you'll have to go through. But you did it once and can do it again because as you say we have no choice.I really hope you have masses of support at home with friends and family.
Hope evereyone is doing as well as possible and enjoying this bout of spring like weather - even if it is very cold,
Best wishes, Gill
Hello to you all - Hope that you are all having a good day today. Like you I am on my second time round First was 7 years ago when I was 61 - had chemo then surgery (lumpectomy) followed by radio. Didn't require any meds after that as it was triple negative. Then Dec 2014 same breast I got a new primary The waiting over Christmas and N/Year was dire . I had a masectomy and lymph node removal on 6 Feb - the blue dye injection hadn't work so my surgeon took everything he could find - bless him.Have all the horrible side effects that you have all been through but luckily although its ER Positive it hadn't spread to the lymphs. The news was such a relief but I still feel numb - this can't be happening to me again. Heart scan on Friday before starting chemo and herceptin asap afterthat. Having been through the chemo before I really do not feel at all happy about doing it and the herceptin quite worries me, but what choice do we have (I have a fear of needles - how silly is that) People keeping asking if I am going to have reconstruction - they really don't get it do they I have said I will probably have another masectomy once the treatment is over - they look at me as if I'm mad.... There that's todays moan!! Actually the sun is shining , hubby has gone to do the shopping and I have a good book waiting!. Good luck everyone. Keep strong.
Good to hear from you and hope your eating regime is going well. Not sure how well I could stick to the no sugar part as have a very sweet tooth! This is a tough old time isn't it - coping twice with the same problem, treatment etc and I'm finding it very hard to stay positive for the future. Outwardly, to family and friends, I am able to make them believe I am coping really well, but inwardly it's a different story.
Will get through this black cloud though - it's a case of having to!
Onwards and upwards,
Take care and best of luck, Gill
Good to hear from you and thanks for your good wishes. I have completed my chemo and am due to have surgery next Tuesday. Having a few problems with the side effects of chemo as do most people it seems. How are you getting on and what stage of treatment are you at ?
Best wishes, Gill
Sorry about your seroma - I had such a bad one after my anc last year, it went on and on ....but then it went! 500mls was my top score!! You are quite right about left in limbo/life changing land. I have been trying to find a part-time job recently - that was me finally facing up to the idea that I could get back to work - now I don't know whether its worth it again. Oh well. Hope the heart scan goes OK.
all the best
What a nightmare for you and I fully understand how hard it is to put on an act / front for the family. I think at times we all deserve an oscar for our performances! My poor husband bears the brunt of my true feelings, rants and rages, and I can only hope he's strong enough to cope with all this trauma again !!
I don't think anyone who hasn't gone through the process of waiting for potentially life changing results can possibly know what we go through . Sick with worry one minute, head in the sand the next, trying to act positive with friends and work colleagues - counting down the "normal" days till the results day!
I wish you all the very best for those results. Do let me know how you get on. I'm to have a heart scan next Tuesday to check it can cope with Chemo. Also need to get a Seroma under my arm drained again (3rd time) before starting treatment !
Best wishes, Gill
I think I agree with Orange Cat that this group of threads is a funny one for those of us with local/regional recurrence or new primary. It took me some time to find it! It should be something like 'I am diagnosed again for the second, third or more time'! I had a regional recurrence diagnosed in Nov 2012, 3 years after a primary diagnosis in 2009, and I am now being investigated for another (maybe local) recurrence 15 months on from the last one. There is no better way of describing it all as a roller coaster of shock, convalescence, adjustment and acceptance, followed by a gradual return of hope and optimism, only to be whacked by another shock etc. - with steadily accummulating side effects from various treatments. To keep steadfast and functioning for my young-ish family often seems too much.....Maybe I'm just feeling jaundiced - I'm coming to the end of two weeks of 'waiting for results' hell - we all know how much that sucks. When you don't know what's going on your mind plays havoc! Anyway, the sun's shining and the sky is blue - have a nice day everybody!
Thanks so much for your response.It's good to hear from someone who understands how I am feeling.
Yes, I have had my results - 2 days ago. Unfortunately it seems I will need further surgery but first I am to have a course of Chemo ,FEC T, as it had spread into 5 lymph nodes and then he will remove more breast to take out all the remaining tumour. At the same time he suggested a reduction in the other breast that was affected 11 years ago so that I have a matching pair! I should end up with the breasts of a 15 year old instead of my 60 year old ones - shame about the rest of the body !This to be followed by radiotherapy. Not sure when the chemo will start as having "drainage " problems but they hope it will be shortly after Easter. Having escaped that first time round I am very scared at the prospect. Still feeling desparately emotional but managed to hold back the tears today whilst being drained again -until I got home and then I howled !
How are you feeling now? It must have been such a shock to have it back on the same side as well as a different type of tumour. What rotten luck. Glad to hear you've finished the treatment and thanks again.
Best Wishes Gill X
Us recurrence ladies do seem to get lost on the forum. Not sure "I am recently diagnosed" is the best place for us?? I do occasionally have a look, which is how I found you.
You must have your results by now. How are they?? Do you have a plan??
I had my second diagnosis last year on the same side as my mastectomy but a different type of tumor. i have finished chemo and rads and am now on herceptin. I was coming up to 5 years anniversary. I felt terribly let down by my body, and it is hard to voice this when all around you (even on here) are full of fight and positive thoughts. But my monthly thread ladies have been marvellous and it is comforting that there are a few of us going again. Kat x
Welcome to the BCC discussion forums. I'm sorry to hear of your second diagnosis and how you are feeling right now. Please do give our helpline team a ring, they're here to support you both emotionally and practically. Calls are free 0808 800 6000 lines open weekdays 9-5 and Saturdays 10-2.
Can anyone relate to my situation? 11 years ago I had a lumpectomy in my left breast, full auxiliary clearance, 5 weeks of radiotherapy and 5 years on Tamoxifen. After 11 years I have since found a lump in my right breast which has now been removed ( 19th March 14 ) - again with full axillary clearance also as sentinal lode couldn't be located successfully. I have really struggled with this second diagnosis and am finding it desperately hard to feel positive - I go back for results and treatment plan in just over a week. I had forgotten the excruciating pain following the axillary clearance and spend a lot of time either in tears or feeling angry. I don't recall feeling this negative first time around !