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2nd WLE tomorrow

32 REPLIES 32
samjs
Member

Re: 2nd WLE tomorrow

Hi all,
Chillipink will be thinking of you on Thursday beacuse a syou will be undergoing 2nd WLE I will be getting my results from my 2nd WLE!!! Onbviously us ladies having 2 just want our monies worth out of the NHS!

SAm x
chillipink
Member

Re: 2nd WLE tomorrow

Hi patty great news that you have a clear margin on your 2nd wle.I have my 2nd wle on the 25th July.fingers crossed for me as well
dawnlilligrace
Member

Re: 2nd WLE tomorrow

I have been diagnosed with ductal invasive carcenoma at first biopsy it was grade 2 sensitive to female hormone I was given a lumpectomy and 3 nodes removed 21 st June on results of that was graded 3 with one node infected of the three. I am now in hospital had full node clearancscrolls cells removed around where lump was removed some skin and a drain fitted on day 2 the drain is only 100 in total can go home tomorrow after seeing physio with drain ! It's the waiting for results that is the worst. Hope that helps
samjs
Member

Re: 2nd WLE tomorrow

I have good news too. Yesterday I was told my bone scan was clear and today I was told my liver scan was clear! Have shed a few tears of relief. x
pattyp
Member

Re: 2nd WLE tomorrow

Hi ladies and gents, reading your comments, it seems that second WLE's are quite common, although I do wonder why they don't get it all first time round, I am quite small breasted, my surgeon said this makes it slightly more difficult to get clear margins. Anyways, have now been told after my 2nd WLE, I'm clear yipee!!! So now the wait continues for the next stage of treatment, an appointment with the oncologist and discussion about radiotherapy, I work in school and would really prefer it done during school holidays, but will just have to go with the flow. Hope you all recover quickly from your surgery, and the sun shines so we can enjoy it during our enforced time off x
Alipalli
Member

Re: 2nd WLE tomorrow

My wife's surgery yesterday went extremely well according to excellent surgeon, she's home today,resting and recovering from the battering that her body underwent. Obviously we have to wait for clear margin results but at the moment she's really positive and glad the operation is over. Hopefully no second entry necessary and she cget move on to the rads, that we are anticipating though with little knowledge. Tank you ladies for your help earlier in the week, we appreciate it. Keep being strong. Alipalli
chillipink
Member

Re: 2nd WLE tomorrow

Hi nice to read you are going thru exactly same as me.I had wle on 30th may my margin isn't clear either have to have a reexcision on 24th July.it's good to know nothing showed on your scan and just need to revise margins.I havnt been offered enhanced scan so they don't know wether anything is in their or not .but it has give me confidence reading your post in that hopefully mine will be just revise margins and havnt cut edge of another lump further across.let me know how you o on and good luck
roxygirl
Member

Re: 2nd WLE tomorrow

Hi

I too am having a second wle next Friday I had initial surgery on 15 May and have had to wait for results of an enhanced MRI before having the second operation. The process does seem to be slow but at least now I know they only have to revise the margins and there aren't any more surpises lurking in either breast.
Alipalli
Member

Re: 2nd WLE tomorrow

Thanks for your responses ladies, very helpful. I'm used to the irrationality, letrozole for 8 months with the attached mood swings has got me into the swing. 🙂 my wife is actually in surgery now so we'll see what the next two hours brings.
Lols
Member

Re: 2nd WLE tomorrow

Hi alipalli, I'm having second wle, not sure when, apparently it can be quite common . Wle wasn't bad for me and was only two weeks ago today. I had lymph nodes removed as well that was the one that's giving me probs. in my hosp if your ok after wle you can go home same day, but they are happy for you to stay in if you prefer. They have a guideline to follow with clear margins and unfortunately it takes pathology 7 to 10 working days to prob check and double check good clear margins. As for cosmetic look after can be difficult to tell at first due to swelling, I've a dint and will probably be a bigger one after next wle was offered transfer something flap taken from my back i was sure before first wle would do this but it honestly doesn't look that bad, and as I'm so sick of arm probs now I've decided no.
my bc nurse said its not uncommon for 2nd wle, but good luck and hopefully won't be necessary, it's just the wait after!
nice to see OH putting concerns on here, look after yourselves x
samjs
Member

Re: 2nd WLE tomorrow

Hi Alipalli,
How thoughtful of you to come on here and ask us experts- we all have degrees in BC now. I even told consultant that I would be after a job once this is all over. Think he was shocked I was so jovial as he had just told me I needed another wle as he didn't get clear margins. My consultant told me prior to the first op there was a 10% chance they wouldn't get clear margins. Obviously being a tricky customer and wanting to feel a bit special I am in that 10%!
As for what to expect (what it may look like afterwards) my consultant did a great job and I only have a slight dent, and despite needing another wle what it looks like is the least of my worries.
Hope that helps a bit and send my good luck wishes to you wife. Also take care of yourself US BC ladies do become rather irrational at times. (My OH is awaiting his knighthood following this)

Sam x
Alipalli
Member

Re: 2nd WLE tomorrow

My wife is going for 1st WLE in the morning, we don't really know what to expect nor how long she is likely to be in hospital. We're hoping for day case and hopefully home in the evening but she reacted badly to anaesthetic after SNB 6 months ago and ended up staying overnight anyhow. She's been on Letrozol for almost 8 months which from latest MRI has apparently been successful in making tumour less dense but hasn't really reduced its overall size so were not sure what the overall impact of WLE will be. Surgeon predicting most impact will be on underside of her breast so she's quite hopeful that damage will not be too imposing. She's struggled a bit with the rheumatic pain type side effects of Letrozol but shes coping really well generally, especially now there's the focus of WLE. One thing were really unclear on is the odds of not getting clear margin, and thus need for second WLE. Is second Op a common occurrence or less so? Anyone of you wonderful ladies got any experiences to share?
Lols
Member

Re: 2nd WLE tomorrow

Good thanks x
pattyp
Member

Re: 2nd WLE tomorrow

I didn't have a drain for my wle, I think the ladies above had a full node clearance, so I think that's a no Lois
pattyp
Member

Re: 2nd WLE tomorrow

Hi Morwenna, it's a 2 week wait for results of 2nd WLE and 6 weeks for surgery review, hate the waiting, don't you, hope you both soon feel better and enjoy the sunshine today x
pattyp
Member

Re: 2nd WLE tomorrow

Hi Morwenna, it's a 2 week wait for results of 2nd WLE and 6 weeks for surgery review, hate the waiting, don't you, hope you both soon feel better and enjoy the sunshine today x
Lols
Member

Re: 2nd WLE tomorrow

hi just qiuck question do you have a drain with 2nd WLE. Hope answers no x
pattyp
Member

Re: 2nd WLE tomorrow

Hi Morwenna, it's a 2 week wait for results of 2nd WLE and 6 weeks for surgery review, hate the waiting, don't you, hope you both soon feel better and enjoy the sunshine today x
Lols
Member

Re: 2nd WLE tomorrow

Hi ladies thanks for replies. Had unconfortable night, drain causing problems, rubbing soo much! Arm feels like the worst sunburn ever was in queue in shop yesterday and sort of rubbed against OH whilst unpackin shopping made me jump in pain may have shouted a bit to! It feels so sensitive but looks normal and no different in size that good arm, i assume will just go numb in the end definetly feels like nerve damage. Going to phone bc nurse later but they arnt available much on wednesdays.
Take it easy today Pattyp get spoiled, . I might be back there to still waiting to find out, at times like this i wish i was part of royal family bet they wouldnt have to wait like this!!!!!!!!
All have good day, sun shining at mo, gonna get up and have bath, developing allergy to all dressings , red , sore and blisters! Never mind x lol
Morwenna
Member

Re: 2nd WLE tomorrow

Patty, am I understanding you'll have to wait 6 weeks to see if they got clear margins????? That's nuts if so 😞

Lols, I was really worried about my drains coming out, but truthfully I hardly felt either of them! The mastectomy One was longer, but only a slight pulling sensation.

As for the numbness and burning sensation: yes, that's normal. I remember feeling like it was severe sunburn, but if I actually touched it, it wasn't that tender, although anything brushing lightly on it was excruciating. I guess it is hypersensitivity. The OTs advise desensitization techniques, brushing/stroking with different materials.

I'm not sure how long it lasted, but mine is totally gone now, although I still have areas of diminished sensation, and some cording issues (mild)
pattyp
Member

Re: 2nd WLE tomorrow

Thanks for your comments ladies, now recovering at home after staying in overnight due to terrible sickness, I don't think my body likes being chopped about and being put to sleep. Wish I could sleep now, having many sleepless nights now and even my herbal sleepy pills don't seem to work anymore. Spoke to one of the lovely BC nurses today and she told me I will have to wait for 6 weeks for the after surgery review, so annoying, as was due to go next week for my 1st WLE, grrrr!!! Then after that will see onc to discuss radiotherapy. Another week of waiting for results of 2nd WLE, keeping my fingers crossed that they cleared all the little b#######s this time. Waiting is obviously the name of the game but I don't want to play anymore , gonna throw my toys out of the pram!!!! Best wishes to you all , sorry for having a little rant , needs must every now and then.
Morwenna
Member

Re: 2nd WLE tomorrow

That's strange, not allowing patients home with drains in situ? I only stayed in overnight for both my WLE with ANC, and my subsequent mastectomy less than three weeks later. I had drains both times.

The second op, the nurse was giving me the discharge instructions, and when he came to talk about the drain, I told him I was familiar with drain-care as I'd just had one, and I was OK about how to strip it to clear it and so on. "Oh you don't need to do that!" he told me.

Anyway, my first night home, the drain was almost empty in the morning, which I thought was odd, and when I checked I found there was a large clot in the upper end, under my arm. So I successfully stripped out the clot and cleared the tube so that it was draining freely once more. But I was so cross at the stupid nurse, and concerned about the advice that he might have given other ladies with drains.

So glad I knew what to do, despite what he said!
Lols
Member

Re: 2nd WLE tomorrow

Hi Norms did type reply but lost it. I normally take drains out too but usually only in upto 7 days, this one feels like its welded in and is rubbing , hurts so much, only drained 55mls today so hopefully out friday, just have to deal with it then, might ask for entenox Haha! Gonna phone bc n tomorrow as exit site sore. Thanks for reply x
Guest user
Not applicable

Re: 2nd WLE tomorrow

Hi lols! I didn't have a drain in but have removed them from some pts! Some ladies say it is a little uncomfortable but other say its like a little tug!
13 days does seem long, we are advised no longer than a week! But each county has slightly different protacols.
Norms xx
Lols
Member

Re: 2nd WLE tomorrow

Thank gonna have wine and spaghetti bol, yeah soup good. Hope friday goes ok if i dont speak to you before then, i didnt find pain to bad in first few days more uncomfortable now but could be that alot of swelling and fliud drained of and getting full effect now. Anyway dont mind if it sorts it all, . Poor you if you have to stay in with drains no one does around here and you can get more rest at home. Take care x
Annie62
Member

Re: 2nd WLE tomorrow

Lois, I haven't got much of an appetite either - wine goes down OK though!
My consultant doesn't like patients going home with drains in, but I hope I'm not going to be in hospital for 13 days!!!
Yes, when I had mx they said below 50 before drains out - I know there'll be a lot more drainage with the ANC but you've got the breast one as well - poor you, I do sympathise because they are so uncomfortable. You'll feel so much better when they're out but it may be that the amount will be down enough by Thursday anyway. Fingers crossed!
In the meantime try to get some nutrition inside you - I find soup is easily digestible, you don't have to eat proper meals every day. Little and often is good!
Hope you feel better soon,
Annie x
poemsgalore
Member

Re: 2nd WLE tomorrow

Hi Patty

I can only tell you about my own experiences. I was dx with ductal invasive, 100% ER positive, 70% PR positive, HER2 negative. Had mx with snb on 12th December 2012. 3cm tumour, grade 3, three nodes removed but only one had cancer cells in it. I also had vascular invasion. I think you must mean grade 2, not stage 2. The staging is something completely different. As I was grade 3, I had to have chemo (which wasn't as bad as I was expecting it to be). It was suggested that I had rads - which I wasn't happy about as I have a lung disease. Talked it over with radiographer who told me I only had a less than 20% risk of recurrence in my chest and a 50% chance in lymph nodes. So I'm not having rads. If I do have a recurrence in my lymph nodes, I will have ANC. So now I'm waiting to start taking an aromatase inhibitor called Anastrazole, which I will take for 5 years.
As your tumour was quite small, and grade 2, which is less aggressive than grade 3, it is unlikely you will need chemo. But if you want to find out what your risks are if you don't have rads, the radiographer/oncologist will be able to tell you so you can make a more informed decision. However, as you had WLE and not MX your risks will probably higher in your chest than mine was.
The only thing I can think of that might change, is that if they still don't get clear margins after second WLE (it happens occasionally) I think you can have that once more and if it fails MX would be suggested. Another thing that might change - I was told that if I went for rads, I would have 15 rads over 3 weeks, only to have it changed to 25 rads over 5 weeks!!
Wishing you well for your WLE, and hope they do get clear margins this time.
Poemsgalore xx
Lols
Member

Re: 2nd WLE tomorrow

hi annie, how are you? Surgeon said to monitor drain output when under 50 or 40 phone his bcn and go bk to hosp and he will prob take out, on 85 already today so cant see it ok by thur and the next time hes free will be monday! Feel like its glued in and got a good luck today in from under arm , right through breast and out under breast so dont think removing it will be too comfortable. Saw district nurse once who changed dressing but made drain hurt more so have changed some myself, got all gear as im a nurse.
Cant believe he said all results might not be back puts so much stress on you. Plus not even sure if clear margins yet might have to have it all done again, well wle bit. Think in longer for anc as its lymph drainage, whwn you have anc keep up with exercises arm soo bad today but does ease after i move it. You eating? Im trying but just not that hungry hope OH brings some wine home ive no probs drinking haha! Got to laugh or il cry. Got appt in another hosp tomorrow nothing to do with bc but will now have to go with this damn drain, then going to pluck up courage and have a look in a maggies centre bit scared as i imagine everyone looking ill but been told not like that at all and they can really help so il do it whilst ive still got hair and look reasonably ok. Have good evening, try and chill x
Annie62
Member

Re: 2nd WLE tomorrow

Hi Lois, sorry you're in such pain.
13 days does seem a long time to have the drain in - when I had my mx it was taken out four days after the op., and although when I have my ANC this Friday it may have to be in a bit longer, the consultant said no more than a week.
Are you seeing anyone to have the drain changed? Who told you next Monday?
Sorry can't be more helpful, I hope someone else has more idea.
Annie x
Lols
Member

Re: 2nd WLE tomorrow

Hi anyone know if having a drain removed 13 days post op hurts? Do i need to oake painkillers before hand? Being a baby now but it feels glued in and prob wont be out till monday? ps doing all exercises for lumpectomy and full anc which had tue 18th june but arm agony today dont seem to be able to get as good a ramge of movement in it and feels like its burning and sore to touch, breast numb is this normal? im supposing so x Be glad of anyones experience and advice, not too happy to keep taking painkillers as have probs with constipation and thats before chemo!!! ABSOLUTELY HATE THIS DISEASE, thanks for all your input though keeps me going x
pattyp
Member

Re: 2nd WLE tomorrow

Thanks samjs, good luck with your surgery, I was fine until afterwards when the anaesthetic made me so sick I couldn't get out of bed yuck!! On the plus side, I feel so much better than the last op, not as sore, I suppose they only cut me once this time but it's in the same place. Just doing the waiting game now for results, hoping they've managed clear margins this time, fingers crossed. All the best with your surgery, and we shall be waving those bras soon x
samjs
Member

Re: 2nd WLE tomorrow

Hi Patty

I hope your op went well. I don't know the answer to your question as you know from posting on one of my posts I am having a second WLE in July.
Keep you arm moving as you will need full movement to wave that bra around once treatment has finished.

xxxx
pattyp
Member

2nd WLE tomorrow

Hi, as I was diagnosed in May, don't know a great deal about BC, can anyone tell me if after my 2nd WLE will my results change from my original results. The surgery is tomorrow as my margins weren't clear on my stage 2 15mm lump. Haven't thought of this before, with so much going round in my head. Will it alter my treatment if they get some more cancer out?? Even though they found micro Mets in one of the two sentinal nodes ok have decided not to go with node clearance as my onc has told me that research has shown no benefit, in cases like mine. Have been told I will have 3 weeks of rads then hormone treatment as I was 8/8ER+. Thanks pattyp