Hi ladies, i found my 3 FEC , i had same side effects which wernt too bad at all, just got more tired as it went on but went to bed when i felt like that. My 4th chemo T , was a different story but i had an infection which i ended up in hospital, so that is not the same as everyone else. All i will say if you do have the painful joints phone the BCN and get some stong pain killers, dont put up with pain that they can help you with... Hope you all have a good week x
hi tania . we must be at same stages. i have same diag at around the same time as you. Due to start second FEC on monday 12th. at the moment i feel so good compared to how i was. Looking forward to getting out this week . I had bad symptoms on first one so really hoping its not even worse second time as really dont know how i will cope.
How are you feeling atm? would love to keep in touch .
Just wondering how you are doing and whether you are home from hospital.
Thankyou for my birthday wishes.
I hope you are home soon Talsgee and feeling much better . I will join the August forum , I am a bit new to this lol xx
I had my second Fec last Thursday . So far the symptoms exactly the same as the first just feeling very nauseous. After the first Fec I felt nauseous for the first 6 days and then I was fortunate to not have any other side effects at all. I never bothered with the cold cap and my hair had started to fall out in clumps by day 13. I shave it on day 14 and have started to wear my beautiful wigs and scarves.
I have my final Fec on the 8th October and then 3 of docetaxel which I must admit I am a bit apprehensive about as this is a totally different drug with different side effects. It's my birthday today and I am feeling a bit sorry for myself but after today I will be back to the mindset of fighting this awful disease with everything I have got x
Hi Some people carry on with the cold cap despite the hair drop - it really depeneds how much you started with and how much you have left - I lost quite a lot and it was really thick so decided it might be a bit painful on the second one so stopped - shh..... still have a bit of hair left.
With regard to the T well it wasn't very nice - had it last wednesday and today is the first day I have felt human - pain and muscle aches were fairly well controllable with the painkillers -just feel crap for longer- at the end of the day it must be doing it's job and as far as I'm concerned that's great. It's only a short slot of time to feel like rubbish in the big paln of things. Have to take a step at a time - get the 3 FEC out of the way then move onto the next.
The other thing I meant to say is there is a monthly group on the forum and the July one is usually quite busy you ight want to dip in to that as well.
I had my first T last wednesday - bit of a different ballgame! All of it is doable -I saw the oncologist for followup this week and she is going to reduce my next dose by 10% - I took some persuading that this was a good idea but she really felt in the big plan of things it wouldn't make a difference and it is about tailoring the treatment.
Since the second FEC I have had no more hair fall out - mind you I could probabbly still pass for Yul Bryner but no longer feel the need to hoover my head.
SEs seem to vary so much from one to the next - chin up keep going.
Hi Joyce, thank you so much for the quick reply. It's good know that hopefully side effects might be the same.
Are you also going to have 3 x T chemo? I think it's just a waiting game with hair loss. Hope to keep some...
I have just had x3 FEC and the side effects stayed pretty much the same all the way through for me - perhaps a bit more tired after the 3rd and my eyes have been running a bit but not tto bad. It does seem to vary from one person to another. I used the cold cap for the first FEC and had a big hair drop on the 17th day for a couple of days. Again I think this varies. I stopped the cap as I thought that with so little hair it would be painful - enough to put up with without that I felt but again it varies.