Hi Anita, my line was the only thing suggested to me so thats what i went with. It was inserted under local anaesthetic...uncomfortable but not painful. Apparently they use ultrasound/video to guide the line under the skin and into the vena cava (main vein to/from heart). the line then hangs outside of the body. They usually have a dressing on them to ward off infection bt all the dressings caused a reaction in my skin so usually just have it taped up with micropore or just secured in my bra/top. I have not had any problems but they do have to be flushed every week which is a bit of a pain but the district nrse comes out to save me going to hospital. You can ask to be shown how to do it yourself which is even better (i havent been brave enough). Ask your onc team about it...may be a better option for you. Good luck with the mri. xx
Anita, so pleased you finally got good news. I understand yor concerns about a chemo break..i am in the same position. I was er+ but changed to triple neg so femara didnt work for me but hopefully you'll be ok. I have a groshan line which has been no trouble at all (hope nthats not tempting fate!!) biggest nisance is the fact that it has to be flushed weekly but i would hate to be without it. Maybe its an option for you to consider. xx
And re the port..you are justifiably concerned about infection. Is there a possibility you could see a bcn or a chemo staff nurse and ask their advice...hopefully the hole will heal up quickly...like those in the ear lobe do!
you obviously dont want to stick a plaster over it, in case the tissue round it is damaged by the plaster, but try and keep it dry if you can, meanwhile.
its also a little worrying that the onc 'thought' hed seen you with the results! I would have expected that to have been noted in your records if he had done. Do you ask for copies of your gp letters? I have mine sent to me routinely...i find its good to just be able to revisit what was said at the appointment...as I forget bits.
i also understand about your concern re bc possibly returning; what seems to be usual, is that a follow up scan would be done again at least within three months after the change of treatment, just to check that it is working. Maybe you could chat to your bcn about that....in case the onc needs a memory jogger!
do keep us posted about how you get on.
love and hugs,
Anita, disgusting that you have been waiting so long bt hopefully you will be told everything is fine today...everything is crossed for you.
I usually get my results at my next Onc appointment so that is sually about 2/3 weeks wait, which is bad enough. I have been before, all worked up about the results and they havent been sent throgh so my Onc told me to ring the CT/MRI unit the day before my appointment to check they are ready and have been sent.
Please let usknow how you get on. xx
As Nicky has said no one should have to wait that long for results but as you see them today Good Luck with the results let us know how you have got on
Love and (((hugs))) xxx
Hi Anita and welcome to the secondaries part of the forum. I'm assuming you do have secondaries as ladies with primary BC do not get offered CT scans on a regular basis. If you have got SBC it is awful that someone hasn't contacted you with your results and arranged an earlier appointment. There is not much point in them organising a CT and not then either looking at it or discussing the results with you. Normally you can contact your oncology department or your oncologists secretary to arrange an earlier appointment than the one you have scheduled. From what you have written you probably have your pre arranged appointment coming up soon, if so good luck with the results (I would have thought they would contact you if any progression etc was seen on the scan). If it's not very soon I would get in touch and ask for one. We all understand how anxious the time is between scan and results (we call it scanxiety!) so to wait that long is really not acceptable. Even in more busy hospitals the actual scan results are seen very quickly, it takes the written report a bit longer normally, but not 3 months! As to whether your oncologist has looked at the results I would have hoped he/she would have done, again to gauge how your current treatment has been going.