What an amazing, uplifting post.....thank you.
A secondary breast cancer diagnosis is a real shock, but for me that is almost 3 years ago. My secondaries are in my pelvis.
Living with uncertainty is indeed hard but now I live my life, literally a day at a time.
My grown up daughters are now oblivious that I'm still a cancer patient & this is ever so hard.
Sending many good wishes across the ether to u.....
Thanks for reading my post, I'm so pleased it has helped you. In answer to your question, yes I have had treatments that didn't work - I started with tamoxifen which did help for almost 18 months, then switched to letrazole for about 4 months, then exemestane which seems to be doing the trick at the moment. Prior to the discovery of liver mets, my bone mets were stable on tamoxifen, zoladex & denosumab and then I had a tumour appear on my sternum which was removed & biopsied and I was found to be HER2+ and therefore put on herceptin. The docetaxol shrunk the liver mets and also my primary tumour which was never removed as I was diagnosed Secondary BC from the start.
Most of the time I feel pretty well , I work as a school administrator (part time now) and one day a week from home. Yes the whole SBC thing does get me down some days but I think you just have to trust the medical staff to give you what you need, there is more research being done all the time and new drugs coming out. I see a specialist oncology psychologist every few months and she is brilliant and really helps me.
Good luck with your treatments, be kind to yourself, love Helen x
Helen what a lovely post you made and its very inspiring and like a lot of you ..packed away the Xmas decs and wonder whether I will be here next Xmas to put them out again.
I was dx with bone mets at the end of October - hips, pelvis, spine and knees ........I live a day at a time and now I dont keep special things for special occasions like I used to. I spray the expensive perfume every day even if Im not going out, wear new clothes even if I am only sat in the chair at home etc etc.
When I first got the primary BC in 2004 there were four of us ...Im the last one standing and appreciate that I had 11 years of good health and being in remission that long. But somehow after all that time its more of a shock as you begin to believe that you have beaten this cruel disease .
I hope that my post has helped you in some way as I see that you have posted in another section of the forum and you seem very anxious and upset - I am so sorry. This forum is really good for lots of advice and support. I don't post a great deal myself but I read a lot of the posts and meet up with my cyber friends in person - I go along to the Hampshire meet-up group.
Do you have access to support groups in your area? I hope that you have supportive friends and family but if not then try & make full use of the forum - we are a mad bunch but are here to help!
Take care, be kind to yourself, love Helen x
Hi I know this is an older post but just wanted to thank helen44 for this post. I'm coming up for one year after my initial diagnosis which was sbc right from the start. Had Docetaxel and H&P , I feel very grateful I'm still here yet kinda wobbly it's been a year, is my luck gonna run out this year? I have secondaries in my liver will stay on H&P. Your post helen44 when you said about putting away Christmas decs rang so true with me this year. I am lucky also to have great family and friends and still working albeit part time. I cannot wait till cancer is no longer one of the first things I think of when I wake up helen44. My is finding some sort of new normality. I just wanted to say "thank you" for your post.
Thank you for writing this Helen I'm newly diagnosed liver and lung and I'm in the middile of docetaxol and I feel the way you felt I'm glad to see it can get better. All the best to you and your family x x x x