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35 tablets (was: A rant and a moan)

25 REPLIES 25
belinda
Member

Re: 35 tablets

Glad we can now all read this. Thank you for telling your story Naomi. X
mrsblue
Member

Re: 35 tablets

Me too... thanks, Anna and the BCC team... go for it girls (and gents?)

Interesting... at the end of the article there's a link - which I've not clicked on - "Secondary (metastatic) breast cancer"...thanks, BCC, for listening to us, maybe we aren't second-class citizens after all!

su-bee
Member

Re: 35 tablets (was: A rant and a moan)

Got it now 

 

Anna_BCC
Member

Re: 35 tablets (was: A rant and a moan)

I am so very sorry for the difficulties you have had accessing this story.  Our tech team have tweaked something behind the scenes this morning and everyone should be able to read and access this story now. 

 

Although Monday 13 October is the day dedicated to raising awareness of secondary breast cancer, we will be highlighting secondary breast cancer throughout the month of October.  Naomi's story is just one of these instances.

 

best wishes

Anna

Forum Coordinator

mrsblue
Member

Re: 35 tablets (was: A rant and a moan)

Maybe it's still under wraps until Monday, the one day in the year when we mets ladies are in focus?

JulieD
Community Champion

Re: 35 tablets (was: A rant and a moan)

Access denied here too I'm afraid
June_BCC
Member

Re: 35 tablets (was: A rant and a moan)

Hello

 

I'm sorry to hear that, I will inform Anna and the technical team and we will get back to you as soon as possible.

 

June

Moneck
Member

Re: 35 tablets (was: A rant and a moan)

Still access denied!!

 

June_BCC
Member

Re: 35 tablets (was: A rant and a moan)

Hi

 

Sorry to hear you are having problems with the link.  I have just opened the page with the link and it was ok so I'll post another link from the page I have open to see if that helps.  Please let me know if there are still problems.

 

http://www.breastcancercare.org.uk/hiddeneffects/other/i-was-27-years-old-naomi-thomas

 

Best wishes

June, moderator

belinda
Member

Re: 35 tablets (was: A rant and a moan)

Me too, on iPad, if that's useful info. 😕
su-bee
Member

Re: 35 tablets (was: A rant and a moan)

same here
Homer
Member

Re: 35 tablets (was: A rant and a moan)

denied me too Smiley Frustrated

Lynnq
Member

Re: 35 tablets (was: A rant and a moan)

I also have 'access denied'
geordiex
Member

Re: 35 tablets (was: A rant and a moan)

same here

mrsblue
Member

Re: 35 tablets (was: A rant and a moan)

I got an "access denied" message when I clicked on the link.  I tried it while I was not logged in, so I logged in (to make this post!) and I still cannot read the article - same "Access denied" message.

 

 

Anna_BCC
Member

Re: 35 tablets (was: A rant and a moan)

Dear mrsblue and everyone on this thread

 

The full  story of Naomi who was diagnosed with secondary breast cancer at age 27 years and now takes 35 tablets a day can be viewed via this link http://www.breastcancercare.org.uk/hiddeneffects/other/i-was-27-years-old-naomi-thomas

 

Best wishes

Anna

Forum Coordinator

mrsblue
Member

35 tablets (was: Re: A rant and a moan)

Bump

HelenL_BCC
Member

Re: A rant and a moan, BCC please read

Hi mrsblue,

 

Apologies for the confusion. We've jumped the gun slightly by featuring this image and story on the forum, so I've removed it. It's an image we're planning to use as part of our Secondary Breast Cancer Awareness campaign, starting on Monday. It's not featured on social media yet.

 

We are hoping to feature the story on our website and social media, subject to us having approval to do so. I'll be sure to share the link once we do.

 

Thanks all,

Helen 

 

mrsblue
Member

Re: A rant and a moan, BCC please read

Thank you for your explanation, Anna. 

Please could you ask the person who posted the "35 tablets" article on Twitter why she is not making it available to those of us with metastatic ("secondary") breast cancer?  I believe that this is discrimination against those of us who choose not to do social networking. 

A very poor showing from BCC in Pink October.  😞 😞

And please post the dedicated email address for "secondaries" in a prominent place, such as a sticky thread in the "I have secondary breast cancer" subforum.

Anna_BCC
Member

Re: A rant and a moan, BCC please read

Dear All

 

My apologies for messing this up.  This is a photo which should not have been used on the forum as it was made and designed specifically for our social engagment platforms.  I wrongly placed it here and have very clearly caused some upset among you and for that I am very sorry.  This picture will be removed and changed asap.  The link to the Breast Cancer Awareness Month micro site were incorrect as well, again my apologies for this.

 

Best wishes

Anna

Forum Coordinator

belinda
Member

Re: A rant and a moan, BCC please read

Another who tried in vain to read the article.
I also stay away from Facebook and Twitter. 🙂
mrsblue
Member

Re: A rant and a moan, BCC please read

Thanks, Jo! 🙂

Jo_BCC
Member

Re: A rant and a moan, BCC please read

Hi Mrs Blue

 

I've passed your comments on to our managers and brought them to the attention of this thread.

 

Kind regards,

Jo, Moderator

mrsblue
Member

Re: A rant and a moan, BCC please read

Thanks, Lynn 🙂

The box/link actually appears on this page, and now I notice that it says "... to manage my cancer" which is not quite the same... Those of us on capecitabine take several tablets according to individual prescribed dose.  Then there's ibandronic acid for the bones... and maybe a calcichew or adcal supplement... and some of us have pyridoxine (vitamin B6) tablets to minimise side-effects of capecitabine... so it soon adds up.

 

Hopefully someone from BCC will enlighten us tomorrow morning.  If not, someone at the BCC HQ will be getting a phone call from me...

Lynnq
Member

Re: A rant and a moan, BCC please read

I also saw the link as well. Like you I don't do social networking and tried to read it but I couldn't ...... I assumed that it was because I was using my ipad..... On my laptop yesterday I couldn't find it. I also use painkillers for my bone mets and would hsve liked to read the article.

Oh well!,
mrsblue
Member

35 tablets (was: A rant and a moan)

Looking at the BCC home page recently, I noticed something about "35 tablets a day to manage my pain".  That looks interesting, I thought - there was something about Twitter and "hidden effects" - I don't do social networking so I'm not registered for Twitter.  Today I can't find the "35 tablets" link!

 

BCC doesn't have a dedicated email address for "secondary" bc (grrr... why not, BCC?) so I emailed the "info" email address on the Contacts page.  I have not had a reply.

 

I want to read that article - why am I unable to?

 

I have liver and bone mets, and now I need regular painkillers (fairly mild ones so far).