I had aggressive comedo DCIS with necrosis, and went for a WLE at first, unfortunately it was found to be extensive and the margins werent clear so I had to have a mastectomy in the end - I was told the odds were 1 in 7 of WLE's need further surgery, but I guess it was worth a shot as the WLE is a lot easier option. I was lucky in that they managed to save my nipple and I had a permanent implant at the same time, which means that I won't have to have any more surgery. It's a personal choice I guess and in the end I went with my consultant's recommendations, I could have opted for another WLE but a mastectomy meant only one more operation, I had read of people going back for three or more WLE's only to have a mastectomy in the end anyway. One of the positive things with the mastectomy option is I did not need any radiotherapy, chemo or tamoxifen so can get on with my life now, and I don't need to worry about recurrence - at least in that breast anyway.
As to your question re necrosis - if the calcifications are showing on the mammogram yes that is the sign of necrosis.
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Hope this helps
Got a copy of my path report recently and have a query that I hope some of you knowledgeable ladies could clarify for me please.
I have read that comedonecrosis DCIS is more aggressive and likely to recur in the future or even progress to invasive BC. My report says I have comedo, solid, cribiform and papillary DCIS with microcalcification (accompanying a cystic tumour).
So does the calcification mean that the comedo DCIS has necrosis? The cystic tumour is grade 1 and 100% ER+ so I was hoping that the BC I had was less likely to recur - but now I am worried about the aggressiveness of the comedo DCIS and thinking maybe I should have had a mastectomy instead of a WLE?
Any feedback welcome - thanks.