This thread is now closed the news blog has received many visits and a few comments.
I can see that there are many issues becoming entangled in these posts, and not that many are about James, some are about other issues, costings, factions etc.
I want to focus on what has happened I believe with James post. I do believe that it was important, no actually critical that James should have been warned that any attempt - real or perceived to further erode our adult status is usually met with a very aggressive reaction.
You see James, how often have i gone to the hospital to hear the nurses or dr.s accuse me of 'being naughty' because they cannot find a vein or the other one of 'are you being troublesome again'. I have to smile with them about that, even if it isn't actually funny, because it is a stupid person that alienates the staff that will be dealing with them for hopefully some time to come, partiularly when you are relying on their co-operation for things like appt times that you can actually make, and life saving treatments.
I think I have a very well developed and balanced sense of humour/attitude but believe me this disease challenges it every day.
Thats the button you touched I believe. I hope this helps in the future.
I look forward to further communications from you and I do hope that managers will warn other staff of the sensitivties at work here so that they do not have to the same awful experience that you have had.
Just wanted to say I like the newsblog. I don't get papers and it will really be useful to have a quick link like that to get the latest info without having to trawl for it.
I'm very grateful for the newsblog. Like others, I don't buy newspapers and rarely listen to the news, so it's nice to have this information at our fingertips.
James says he came into work that morning in a good frame of mind, and he posted accordingly. As someone who has also posted when in a light-hearted frame of mind and been criticised for it, I have an inkling of how he must have felt after reading some of the comments.
Keep up the good work, James and the team, and thank you for all your efforts.
i have always found BCC very useful, i felt that no offense was meant in the initial post, for one, i don't waste my money on newspapers, so its nice to see it here if i want it, for two, well, there is never any need for bad manners, thirdly, i do wish people would get their facts right. this is a good site, the people who run BCC are very caring and have total respect for all of us, i'd like to think that we can at least return that respect after all, this site is for our benefit.
lots of love
Thank goodness for some of these more positive comments. Have been watching for a while. Its sometimes like walking on glass. I'm thankful for all the info/help that I can get. Thankyou BCC workers...Sometimes you can't do right for doing wrong. Sad to say, you can't please everyone all of the time.(however hard you try)
Totally agree lindiloo!
I too can predict the opportunities for those who seem to relish "jumping" on others.
I find nothing offensive in James's post. Those who are not interested in this service can ignore it just as they can choose to skip over chit chat or anything else they don't like in the latest posts list.
I too find the Newsblog very useful. I am happy to research a lot of things myself but one of the reasons why forums are so great is that others can often provide you with information via their anecdotes quicker than you can research things yoursef.
Sometimes though , as well as anecdotes, you need news and information and it is a lot easier having cancer and cancer-related news stories all in on place so I am pleased with this additional service.
There's been a lot of harsh words on this thread which I am very surprised at. Personally, I found absolutely nothing offensive in James' post. Whilst I consider myself to be a fairly well-educated, articulate and able individual, there are others who probably view this site who aren't computer-literate and just about know how to access the posts. Some people may have difficulty in navigating the web so the Newsblog could be an absolute godsend to them.
We all need to remember that we aren't all the same and some will use this website for different reasons to others. James, Bertie and the rest of the team at BCC will have to consider the bigger picture and cater for the variety of different users. They do a great job really. (I do have athing for computer 'nerds' though - my hubby is one ha ha).
Am coming to this thread late - which is proof indeed that I too will find the new newsblog a useful service. As others have already said, I do not have the time during the week to read newspapers or browse the web, though I do try and catch up a bit at the weekend as I am very interested in what is happening in the bc world and want to keep up to date. I do consider myself more than capable of reading/tracking down such information but that does not mean it shouldn't be made easier for me (and for others) by collecting it in one easily accessible place. I also think that (as Bertie (or James?)) has said, there are many users of the site who are not forum users (something I was suddenly much more aware of after a Living with Secondary BC day recently)and those (as Bahons2 points out) are expats - we should be wary of assuming that our own needs/desires/wants are those of all. So thank you very much BCC - don't know how much the newsblog has cost but it looks a useful service to have.
The tone of James' post perhaps did not quite fit the situation/context but it certainly did not "offend" me. I do feel that perhaps some of the reaction comes from the fact that the "gormless" thread was moderated in the way it was (a moderation I personally did indeed feel was unnecessary). However, if that is the case, I think now is the time to move on.
I have to say that I personally did not find anything wrong with the initial post that James made. But I did find some of the replies very harsh and also unpleasantly rude.
I think that BreastCancerCare provides some wonderful services. They are never going to be able to please 100% of the website users. But I for one am extremely grateful for all the help and information they provide.
As has been pointed out so many times before, these forums are for everyone and we will all have different opinions and view. Some of you have a much 'louder voice' than others and your replies can seem quite intimidating sometimes. There should be absolutely no need to belittle someone just because you don't agree with their opinion.
My thanks to those who have recently expressed their appreciation of the Newsblog facility, and I apologise to those about whom I have made wrong assumptions.
As someone who reads but no longer posts-after having been rudely slapped down for expressing an opinion by the resident self proclaimed experts, I feel sufficiently incensed to add my support to Ali and lindiloo, and the others who are expressing their amazement. Moaning and nit picking for the sake of it seems to be the norm , and is undermining the benefits which can be derived from the site. I'm glad to see people standing up and being counted-this bullying behaviour is childish and appalling-whatever happened to common courtesy and respecting opinions contrary to one's own?
I'll certainly browse this new facility. I have no desire whatsoever to spend hours every day searching for information on cancer. I may be terminally ill, but I have better things to do with my time at the moment, than read copiously about treatments and dying. So thank you James and team-having everything summarised and easily accessible seems like an excellent idea-and I imagine that most of us, who don't want to waste our precious time focusing exclusively on researching our illnesses, will feel the same.
Well said Allicat,
I also get fed up with some of the attitudes on here.
In the 2 years ive been comeing on these forums its got to the point where i can predict exactly which posts will be jumped on, and im begining to think that it is done delibrately just to cause upset, and to get a reaction .It seems there is a group of posters on this forum who seem to "enjoy" shooting people down.
I respect and feel for anyone with BC but that is no excuse for rudeness, disrespect or sarcasam, refering to someone as "Geeks or Nerds* is rude, as is being sarcastic, even more so when its done to the very team who provide this free service for us all, im "irratated," irratated that i cannot post of anything POSITIVE , of anything PINK, or of anything to do with PINK OCTOBER without being jumped upon.
This website and these Forums are for Everyone , so please BCC stop apoligising youve done nothing wrong ,so theres realy no need, if some dont appreiciate or like what this website has to offer then why use it.
I think the Newsblog is quite a good idea.
As an expat (by choice, I admit), I don't have ready access to up-to-date and full printed editions of Britsh newspapers, which are of course expensive to buy abroad on a daily basis. So the blog may well prove a hit among the members of the forum who are not UK residents.
I have to say I found James' post surprisingly informal, but didn't (and still don't) feel sufficiently moved to comment on it on way or the other.
Just call me Mrs Middle-of-the-road....
I absolutely agree!some things justify a rant and others don't.In my opinion this doesnt.Thank you BCC for the extra service.
I have just read this thread and have to say that I think there have been some very harsh (and blatantly rude) comments all in all. It would seem that there are two separate issues that are responsible for the hostility - one is whether the charity's money has been ill-spent on the web design and the other is James's approach.
I can't comment on the money issue as I don't know any of the facts, but as for James's approach, I didn't find it in the least offensive or patronising. I too am a well read person and am capable of reading newspapers and teasing out what is important and what is not and critiquing medical research papers is a routine part of my job so if I want information, I have no problem in accessing it. However, thre is always room for more information and providing James and his team are careful in their interpretation of the newspaper articles, it will be a very valuable resource to all.
James was clearly trying to come across as friendly and informal, rather than authoritative and detatched and for some of you, this approach irritated you, but it did not justify the comments that followed. James may not have breast cancer but I am sure he has feelings which no doubt are a bit bruised at the moment.
For goodness sake why don't some of you lighten up!!
I(and I know of a few other people)am fed up with the attitude of certain posters on here.Sometimes I feel too scared to post for the fear of getting shouted down for my opinions.We come on here because we are all in the same position with our health-not to be bullied by a certain few who think they are above everyone else!
Thank you James for setting this up for us.I am very grateful for all the hard work you and your team have put in for us.I'm glad for these bits of news,as I don't go out and buy 15 newspapers a day either!
I also know that you were trying to be light hearted and fun with your comments and there is nothing wrong with that!
I've had a quick look at the newsblog and I welcome the idea. For two reasons:-
1) I don't actually get time to read a newspaper let alone newspapers.
2) If I have read a story I usually have more questions and hopefully the newsblog could point me to further sources of information.
As a general point I find the information from BCC good but leaves a lot of questions unanswered, but then some the scientific/medical information is in too much depth using terms and jargon I don't understand. I like to think I'm of reasonable intelligence but still need educating on science topics. So there is a 'market' for information somewhere in between the scientific papers and the BCC current leaflets.
There is an american website for BC which gives the scientists press release and alongside side it their own narrative suming up the conclusions e.g. very interesting study but conducted on mice so more research needs to be done. This is very helpful but often covers american research findings.
I have accessed the video clips and wish they were a little longer.I was especially touched by kate when she spoke of her realisation that the doctors could never return you to what you were.I didnt mind the jokiness in the original post it was I think an Attempt to relate on a different level from the usual admin detachment.
I'm responding regarding the video as I was the one who put them up on the site. I'm sorry that so many of you have had trouble accessing them.
There is no one video everything was cut up into small clips and placed throughout the website. So sorry, but it is all little snippets of their story.
I've posted a few links to the three Breast Cancer Voices clips to help you find them. However they're are more that you're likely to come across as you're touring the site.
Wendy is featured heavily on pages for younger women, lavender trust and volunteering. While Carolyn is almost completely in secondary breast cancer pages. And Kate's clips have been spread across breast cancer and employment, treatment, diagnosis and living with breast cancer.
I hope that helps.
Well i think he was being light-hearted too and did'nt find his post offensive at all.
I too think of myself as an intellegent woman, I have to agree with Sandra and the last few contributers. I could see that James was trying to be light hearted.
Still James has apologised for any offence he has caused and I feel it was genuine.
I quite like the look of the blog ( I don't buy newspapers). It looks to have the potential of dip in and dip out of what news you want to follow.
I too didn't seem to be able to access the video clips ( Perhaps I am not a techy.
I guess the beauty of this site is each to his own.
Is it possible to view the 3 voices video? I clicked on the pic in this thread but nothing happened..is it elsewhere on the site? Thanks.
Hi Bertie and James
I really like the idea of a Newsblog. I always seem to manage to miss information in the press and end up hearing about it second hand. I like the idea of going to one place to find information.
I also really like the idea of the videos. I do not know anyone else who has had breast cancer so it is great seeing and hearing others experiences.
One question, is it possible to view the complete video clip? I was interested in the video by 'Kate' but I could only find two short extracts.
Could I please just add my views as a 'lurker' who doesn't submit many comments but likes to keep up to date with the forums/website.
I was first diagnosed in December 2000 and there wasn't the wonderful range of websites available that there are now. During the past years this is the one I've gravitated to for information more than any others and it is the only breast cancer one I regularly still access. 3 years ago I finished my 5 years of Tamoxifen so only have annual check ups.
The idea of someone else collating press snippets and putting them in one place for me to read appeals to me as I don't buy daily newspapers so the blog has been bookmarked on my computer and will be used. So I'd like to say 'Thank you' for the blog.
It's a shame that James's post has been picked on without much mention of the reason for the post, okay he could've worded it differently but please lets stop all the complaining and have a look at what's on offer.
I will stand up and be counted, I'm classed as an intelligent woman and I certainly wasn't affronted by your original post James,I don't mind your tone at all !I don't feel patronised and I didn't feel it was inappropriate,or maybe I'm not as intelligent as |I think I am ...... ! You are in a no win situation ,some don't feel lighthearted but I don't want a doom and gloom attitude either.
All aspects of this website have been a godsend for me,and I for one am glad you are here providing a service to me with information and support from others in similar circumstances which has proved priceless.
I once applied for a job at BCC and do remember the individuals as being pretty genuine -doing their best and working for not a lot. I'm sure James didn't mean to cause offence.
James's original post was an affront to any intelligent woman and I doubt very much if that tone would have been employed on a forum used predominantly by men. It was patronising and inappropriate and therefore quite provocative. Remember a lot of us here don't feel particularly "light-hearted" and perhaps your "team" would benefit from a little more training to truly understand what this disease is all about.
Is it really necessary to point out the difference between a forum user posting a link for discussion - and people being employed by BCC to do the same thing?! As Jane has pointed out there is deep unease amongst many of us regarding the cost of this website change. The fact that BCC resources are being used for something which is happening quite organically anyway is worthy of discussion.
I would like to think I am always polite, nerd and geek are badges worn with pride these days and it was not meant a personal slight.
Comments were welcomed and I responded it seems strong tone may only be used by staff. In a grown up world life is not like that.
We didn't know this would cause such a heated debate! As forum users you are very important to us, that's why we want to let you know first about changes to the website. Please keep in mind the majority of our visitors are not using the forums and want information and support about breast cancer.
A bit of background to the newsblog... Every day our Press Team circulates all breast cancer related news to all staff and we felt it would be useful to republish it for our web users. Of course we know you can read newspapers and websites but some users may not have the time to read 15 newspapers and websites. James’ tone was meant to be light-hearted not patronising and he has apologised if he was misunderstood.
Recently a few links to articles were posted and I've never seen a user attacking another user for posting news. I am a bit surprised by the tone being used by some of you. We decided not to moderate this topic but if the discussion had not been started by a member of my team we would probably moderate this as I feel this is out of order. Can I remind you that you agreed "that you will be polite to other forum members" that includes my team. Thank you.
Finally, there was a serious assumption made that Breast Cancer Care spends 40% on admin. Our income and expenditure are available online: http://www.breastcancercare.org.uk/server/show/nav.667
Last financial year, we spent £52,000 on governance out of a total expenditure of £14million.
I hope this ends this debate. And, if not, please remain polite.
Cancer Research already offer their science update blog whereby all recent studies and reports are gathered, correlated and commented upon.
And they don't employ a peculiarly cheeky chappy tabloid tone in order to do it.
I think I read that 40% of the money donated to BCC goes on administration.
We seem to be paying a lot of wages to an ever growing team of computer nerds(don't think that is swearing) to replace, renew a service that was reasonable in the first place.
How many are in this team? Do we need them?
No doubt when James comes back from lunch he will report this to the moderator. Maybe when he does they could check out the figures for us.
I will be in the 'gormless' thread.
The more I think about this the more I feel so cross about the way BCC's resources are being spent. All these web based innovations but for what purpose...are they really supporting and helping anyone with breast cancer?
By contrast I remember writing to three key people in BCC a year ago about the lack of accurate of information on regional breast cancer recurrences. (I had taken the trouble to write a short paper 1-2 A4 pages so not a quick e-mail) I got one response (from someone who I had copied in because I've written an article with her for BC news in the past.) The chair of the secondaries task force never replied.
OK I should have pursued it...and damn I will now...but your information base at BCC remains superficial in many areas...yet money is found for innovation such as this 'newsblog' which no one with breast cancer has aksed for and must be costing a fair bit in staff time.
Oh if I weren't such a sillywilly gurlywurly in all my pinky winky breast cancer paraphenalia maybe I could get my silly likkle head around all this really really difficult information stuff.
Thank goodness big strong James and co are there to help us out.....
I could - and probably should - go on but I would have the back of my legs slapped for swearing.
mrsblue - audio will be returning to the site. Keep an eye out and it will be added soon.
Must run but just to say I am reading the comments and will look back later, have a nice day all.
I wonder how many USERS requested this new feature?
Sorry, James & co., but for me personally, the newsblog idea is rhubarb and not a plum (well you asked for messages about fruit 🙂 )
Bring back the monthly podcasts instead please!
I bet you think I am a grumpy old woman, I promise I am not. I love cheerfulness.
The tone came across as if you were talking to a senile old gran!
Plus I am still smarting at the investment/waste of £100,000 but I will get over it.
Thanks for the apology.
I agree with Debs...many of us who use this site regularly post about and debate the latest breast cancer stories...with rather higher quality debate than a quick read of your newsblog comments suggests.
And I feel irritated to read about your video clips that 'Wendy prides herself on being a living example that breast cancer is not a death sentence'.
Personally I'm rather keener on breast cancer charities grasping the fact that women like myself who are going to die of breast cancer also have working thinking brains, a sense of humour and like shopping.
Apologies if you're offended by the tone of the post. I was just attempting to be playful and light hearted, as reflected my mood this morning coming into work, rather than repeat the usual standard sentences from terms and conditions pages.
With you on this one! Methinks tone of original post not quite right, James!
We are actully GROWN UP women on this site, as Debs says, comments about naughty swearing etc comes over really quite patronising, well,does to me anyway,
On a positive note, will be interesting to follow news as and when...
Yes, there are more of us, there will be other contributors to the newsblog too.
No, of course you won't be reported for expressing an opinion. But then you know that, as you use the forums regularly and also have access to our website terms and conditions too.
And no-one's saying you can't read the newspapers. If anything, please support them and buy them because circulation figures are really falling. It's a serious problem.
Hope you have a nice day.
James( one of the newsblog editors) Elissa (one of your colleagues)
Does that mean there are more of you?
We have to register so that you can report us if we swear, sorry we are grown up women and when upset we express our feelings using .... instead of vowels.
You will nick the papers before lunch!
You may be amazed to learn, we can actually read our own papers before lunch. In fact we quite often do and we have been known to make comments on current affairs.
Maybe I am still a bit prickly regarding the £100.000 invested in the new design.
Oh dear does this mean I will be the first to be reported for expressing an opinion?
Just thought I'd drop you in and leave a quick note about a new section of the website we added as of yesterday.
The Breast Cancer Newsblog (http://www.breastcancercare.org.uk/newsblog) is a new part of the media centre, which will feature a general round up of what's in the news - whether online, on TV or print - and highlight new things we're adding to the website.
Bascially, the intention is to aggregate stories about breast cancer that we spot in this crazy digital webby world and pick them out for your attention. Blogging is something we don't really do at the moment, and we wanted a place to tell you about things going on and the new bits and bobs we've made - for example, has anyone noticed the video clips sneaking onto the clinical pages lately? (Hope so!)
My colleague, Elissa, and myself will be posting every weekday as soon as we can nick the papers off our press team (i.e. before lunchtime-ish) and read our daily Google Alerts emails!
For those of you who are technically 'in the know', we'll be adding RSS feeds and some widgets to the blog soon, but this is kind of a 'trial run' to see how it goes for a few weeks. You can leave comments on our posts and support us, tell us off or even leave completely random messages about fruit to confuse and generally baffle us.
(You have to be registered to comment so that if you swear at us, I can report the naughty ones of you to the moderators.)
I think so far it's very interesting and that everyone in the world should read it. But then I'm biased...
Let me just put the address in again...
If you got here, thanks for reading!
James (One of the newsblog editors)