Catlady, That must be hard on both of you. I'm sure you worry so much about each other. Gosh How I wish they could stop this.
Just thought I'd pop in here and advertise out Secondary Live Chat service for any of you with mets that haven't tried live chat. The session runs each Tuesday evening for an hour 8.30 pm - 9.30pm, it is hosted by a nurse who can answer your questions and a moderator who just oversees the technical side of things. The regular users of secondary live chat are a wonderful support to one another and welcome new users openly. These are the people who understand exactly what it is like to be dealing with a secondary diagnosis and have a wealth of experience and knowleged between them.
I must point out though, at the moment it isn't possible to use live chat from a tablet/ipad as the system we are currently using is getting outdated, unfortunately you have to use a laptop/desktop, but we are working on a more modern system. If you are interested in trying secondary live chat or indeed our general live chat (Thursdays 8.30 - 9.30pm) just follow the link below.
Take care all,
Thanks Helen! My ex sister in law has now hopped in the boat with me. She has liver mets. We also have a male friend who climbed in. He has lung mets. His wife had breast cancer too, but doesn't have mets. Just a little tidbit, the husband and wife were born on the same day in the same hospital. I just can't get over the fact that I have known all these people for such along time and we all got breast cancer and mets. It's not like we met in a support group. My ex sister in law I've known 42 years and the male friend 30. Crazy!
Beb how long have you had lung mets? I have been lucky so far. I started with Lupron injections in Nov 05. I am ER +, PR - and HER 2 -. The lupron injections were to shut down my ovaries. This didn't work so I went on abraxane/ avastin combo. This treatment was harsh on me so my onc stopped it and gave me a break.I can go back to this combo if I want because it was still working. He then gave me a break but After 9 months I became symptomatic so he out me on voinorelbine (navelbine). This worked for 5 years and I became shirt of breath and my upper and middle lobe of right lung collapsed because a tumor was closing off my brohncus. They chose to zap this tumor.The radiation gave me pneumonitis and my heart started racing. This landed me in the hospital. I was sent home on O2 and steroids. Told my lung wouldn't reinflate. I started xeloda. I used my incentive spirometer religously and my lung reinflated. I have been in xeloda 2 1/2 years and find out in Oct if it has failed . I hope you too can do as well. Wishing you the best! FF
Just going through a rough patch of losing my best friend. She had been my friend for about 15 years and was my best supporter. I had my original bc 19 years ago I've had lung mets for 9 years. Barb had her original Breast cancer 4 years ago and is gone. I just never would have thought one of my friends would join me in this journey and be gone so fast.
Thanks very much for this Belinda! You hear of so many women living longer fulfilling lives now and we all just want to be one of them. One lady in the booklet is 19 years on....amazing!!
Heres to continued good health to all of us lovely ladies too and many long and happy years ahead ♥♥♥
Love bev xxxxx