70512members
370878posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Adjusting & adapting after breast cancer - info session.

29 REPLIES 29
lyndu
Member

Re: Adjusting & adapting after breast cancer - info session.

Interestingly, a week on I can't remember that much that the speaker said, but I can remember what other women said. And I'm not sure a 2 hour session is sufficient, even as a starter - there are many different reasons for each of us having problems adapting, and I think we only started to get there at the end (and mainly in the informal chat session)

I emailed BCC after to suggest that it would be good if they could build in a chat session at the end, and apparently they had others people saying the same on the feedback form. However, doesn't mean that they will, and there can be room booking etc reasons why it isn't feasible - so it might be worth asking at the start of the session if there would be time for this, or if anyone fancies meeting for coffee afterwards.

Lyn

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Rosalie,

I agree with you and said a little of that on the feed back form. I find 'handouts' quite useful as they act as a prompt afterwards and as you say more practical suggestions. but it was good to meet others.
I went to a session on stress fitness at breast cancer haven and that was so practical, quite intense. We were made to think through lots of things and write them dowm, which really crystalises where one is at. Also received printed sheets of what we had covered.

Hi rachy
Hope you can get to the one in portsmouth, as Rosalie says it was good to meet others and hear their views. Let us know how you get on if you go.
m x

roash
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi everyone

I found the best thing about the session was meeting you all and hearing your views. Afterwards I could hardly remember much of what the speaker said, but I did think there could've more practical advice.

Rosalie

rachy7
Member

Re: Adjusting & adapting after breast cancer - info session.

I see they have a session in Portsmouth on 20th Feb and i will definately be going to it. Anyone else going to this session?

avonlea
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Sophia and Mole thanks a lot fot the replying.. I now have a better idea on how to plan my working hours in the next few month..

thanks and hope you are doing well
xxx

Molennium
Member

Re: Adjusting & adapting after breast cancer - info session.

I was really tired after radiotherapy and took about two weeks off. Then I went back to work on reduced hours. this lasted for six weeks until I had another week's holiday, then I found I was OK to go back to full time work.

My rads lasted from 26 March to 19 April 2004. I went back to full time work on around 10 June.

I still occasionally go to bed at 9 pm if I feel tired but I found after a while I could run for buses, I have also done 30 mile cycle rides and I think I am much fitter than most people I work with now, so you do return to normal eventually. I have definitely eased up on pushing myself so hard though and in some ways I think I achieve more.

Mole

vercors
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Gillian,
Remember you only finished radiotherapy one month ago. If you have any holidays left, shall I suggest you take a week off, just resting. Not catching up with the house work, the garden etc, just looking after yourself.
Take care
Sophie

thenicks
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi there all of you. I was dx on 3rd October, had a lumpectomy and WLE with 10lymph nodes removed and were all clear. I did not need any chemo thankfully but had 20 sessions of radiotherapy which ended on 23rd of December. I'm now back to work on reduced hours but every night I'm really tired out and ready for bed at 9 then in the morning cant get up. Has anyone else had this exhaution after rads? Gillian

vercors
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Avonlea,
I did a 6 weeks course on stress management organised by the Maggie Centre in Oxford. There were 10 of us, all affected by various cancers. The purpose of the course was to teach different relaxation techniques. It was great. I practice them regularly.

Like you, I worked full time before BC and part time during chemo. I never thought I would be able to get back to "norma". And yes I am. I finished Chemo mid July (I took me two months to recover). Then it was the turn of radiotherapy in September. I now "only" have Herceptin every three weeks.
Since December I feel that I am able to achieve almost as much as I used to. I have started the business travel again.
What I find, is that I don't get stressed as easily as I used to. There are more important things in life than a little glitch at work.

Do not rush yourself back to work. Make sure that you are up to it, fully rested and confident that you can do it.

Good luck
Sophie

avonlea
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi ladies

I could not go to this session as i was recovering from chemo. But i am very keen to learn how to adjust and adapt after BC.

I was working full time before BC but now i could only manage to work from home sometimes. Lack of energy is the problem + many side effects

The idea of going back the ' normal ' me is good but a bit daunting as i am not sure if i could be me again..

Desperately need some infor on how to adjust and adapt..

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Lyn

It really was good the meet up with others, yes there were some good ideas and probably like you I had other ideas that I could have put on the feedback sheet afterwards - its always the case isn't it.
Perhaps we ought to start a thread about ideas for adjusting and adapting after bc.
But at the moment I am finding adjusting and adapting to the new site hard enough 🙂

Mx

lyndu
Member

Re: Adjusting & adapting after breast cancer - info session.

Since someone asked for feedback on the session - yes, it was worth going to, though for a 2 hour session I'm not sure it would have been worth travelling a very long distance.
Some of the suggestions on coping were helpful (eg, Stop saying sorry - I'm about to start practising that) but an exercise in visualising yourself I didn't find useful. In fact on reflection afterwards I realised that the only time I've been asked to do that sort of thing is in the "cancer community", and that was probably why I dislike it so much.
The funniest bit (apologies that I can't remember your name) involved sex with a bicycle...

The most interesting bit is always meeting others in the same boat, and there really wasn't time to talk. I've emailed to suggest an improvement to the sessions might be to leave people to sit around in the room for an hour after the end of the formal session to chat and meet each other properly if they wanted to.

And Hi to everyone there from the forum that I didn't get a chance to identify, and thanks to Magsi for bumping it up so that I saw that it was happening at all!

Lyn

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Eliza

Thats great - see you on Tuesday.

M x

Eliza
Member

Re: Adjusting & adapting after breast cancer - info session.

Hello everyone,

I'm going too! Looking forward to seeing you all.

Eliza xx

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi A.

Looking forward to meeting up with you, (hope it goes ahead)
Do you realise that there are 4 of us from this thread going, should be fun trying to work out who is who!

M x

ForumMember
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi all

I have contacted the team and anyone who requires financial help with travel costs to these sessions is advised to contact the team directly on 0845 077 1895.

I have also been asked to pass on to you that the Adapting and Adjusting and Coping with menopausal
sessions in Portsmouth have been postponed to 20 February (originally 7th Jan).

Kind regards
Lucy

AnnaG
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Magsi,

looking forward to meeting you there. Hope there are enough numbers going for it to run. Should be useful.

A. x

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Rach.
Just been looking through the info sessions and there were two in Portsmouth at the beginning of the month - January 7th - so don't give up hope they do happen sometimes in your area.
Its not very easy to find the info about sessions on this site hopefully it will be easier with the new site and then people can get together and go along together which is much nicer than turning up alone.
M x

rachy7
Member

Re: Adjusting & adapting after breast cancer - info session.

Having a bit later in the day might help. i calculated my fare in off peak time so earlier would have been dearer still. However I think this thread is very useful for exchanging info. It would be interesting to have feedback about the session so we can know if it is useful for us to go. If it proves to be really helpful it would be worth spending the money. I think the low turn out is probably a result of lack of money and time of year. I can imagine many of us are awaiting our enormous winter fuel bills.
Rach

crispy
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Magsi

And I thought you kept on bumping it up just to nudge me into going. Will pm you.

Crispy

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Rach - thats really expensive isn't it? Perhaps if the events were held a bit later in the day it would enable those travelling by train to get a cheap day eturn - just a thought.

Hi Margaret
That's what I was told hence starting this thread to publicise the event and to encourage others to register and go along. Hopefully it will still happen - look forward to meeting up with you and Lyn there.

M x

MargaretC
Member

Re: Adjusting & adapting after breast cancer - info session.

I`ve registered for the session but haven`t received any details yet. I was told it might not go ahead because of poor numbers.

Margaret XXXX

rachy7
Member

Re: Adjusting & adapting after breast cancer - info session.

I would love to go but have to go by train and would be through nearly £50 getting there which I don't have !

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Hi Rach

Would it be possible to get up to London for the day - the venue is on the South Bank near to Waterloo - just a thought.

M x

rachy7
Member

Re: Adjusting & adapting after breast cancer - info session.

It would be great if these sessions were nearer to me like Portsmouth, Bournemouth etc. I could really do with some support and ifo about after bc tresatment is over. Everyone thinks i am ok now and do not realise the physical and psychological after effects of treatment.

Rach

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

bump

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

bump

magsi
Member

Re: Adjusting & adapting after breast cancer - info session.

Brilliant Lyn, look forward to seeing you there.

Just posted the link bellow for more information and how to book.

http://www.breastcancercare.org.uk/content.php?page_id=13408

lyndu
Member

Re: Adjusting & adapting after breast cancer - info session.

I've just registered for the session, so hope I'll see you there!
Lyn

magsi
Member

Adjusting & adapting after breast cancer - info session.

Hi everyone
I have just booked with a friend to go to an information session at BCC offices in London on Tuesday 27th January about adjusting and adapting after breast cancer.
I have been to a session on another topic there and found it really well organised and helpful..
Its a 2 hour morning session starting at 10.30. so free in the afternoon for sightseeing or retail therapy.
Anyone want to join me for the day?
M x