Hi there, not been on this website for quite a while but just read your thread, Don't despair........I have had Lymphoedema for 7 years now, at the beginning my arm was 49% swollen, my mastectomy scar would puff up, my shoulder would get puffy,the side of my ribs puffed up and I was gutted that I had this horrible thing to cope with on top of my cancer worries.
I just dug deep and wore my sleeve every day, didn't lift heavy shopping and basically did what I was told to do and gradually my arm has gone down to just 12% swollen. I can get away with not wearing a sleeve if I am on holiday or not driving which is great.
I think that you have to make up your mind to ignore it as much as possible otherwise it will send you crazy. Just concentrate on what you can cope with and rest if something upsets it all. You will possible always have some pain but I found that as things settle down the pain does as well.
I don't feel pain in my collarbone but do get it across my shoulder to my neck which is possibly very similar and it feels very heavy as well. I think at first we worry about every thing because that's only natural with what we've been through. Try not to worry, I know it will get better in time. xXx
could it be infection?perhaps seeing your gp could help as 23rd to long to be looked at.Sorry thats all I can think of unless you could ring and speak to lymphadema nurse to get some advice.Hope that helps thinking of you gentle hugs Sandra
I have lymphodema in breast and arm also, I have had constant ache/pain in collar bone and shoulder ( collarbone worse ) for about a year, I had an x-ray and it is old arthur-ritus ! but it is a worry as any ache or pain that does not go needs to be checked out as causes us untold stress 😞 at the moment I have concern with my breast as it has been pinker than usual with a slight rash affect and after 2 weeks of anti-biotics there is no real improvement, it did a little but then flared up again so off to Marsden on monday for it to be checked, unfortunately it seems the worry never ends, Oh and my breast is often swollen and painful I believe this is down to the build up of fluid and lots of ladies complain of this so I hope that puts your mind at rest a little x
Hope you get it sorted soon
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Very best wishes