Hi, Trish here my sister also refused to be tested and died at young age as did my mother. I have since been diagnosed and one of the first things I did was get genetically tested to see if I had the gene so that other family members could be tested. Unfortunately, it came back inconclusive,however, because of this my daughter still gets to seea breast specialist every six months and a yearly MRI, as do my nieces. I wish I had tried to convince my sister more as it is simply a matter of a blood test. I think she didn't want her daughter living in fear, however, I did anyway. I think there is so much help out there if you know u have the gene and they are going to offer my daughter advice and screening all through her life now. However, having said that the large majority of those diagnosed with breast cancer do not have a family member with it.