H i all
Just a quicky.. feeling better today, still not brilliant but alot lot better. had a raised temp last night rang hosp and they said check in 1 hour so i did and it was down so they sais that was ok, got a phone call at 9 this morning saying can i come and have blood tests.. neuts are very low but thats ok.. just gotta keepa an eye on temp. s.o far today been ok..
thanks for all your possiteve thoughts
need sofa again LOL
take care all
hope all went well today Pauline xxx
day 6, dont feel to bad at min, but aches seem to be worst in evening,op arm is a bit uncomfortable at min, but dont feel so down today, pauline good luck hope the se are kind to you,i had my injection just once on the sunday after chemo and a district nurse came round,i will have another after next 2 tax,
Just wanted to say all the best Pauline for this afternoon, just think how good you'll feel when you're back at home and the first one's done. I had to have the injections as well, I did them myself and like anything you just get used to it, I had them for all 3 cycles of Tax and I managed fine, I didn't feel they made anything worse so fingers crossed for you.
thanks sharon, yes first Tax this afternoon. told mine would be day 5 to 10 i think and yes she warned me it would intensify the pains. never mind, has to be done. not looking forward to it though.
will hopefully be back on later
Luv Pauline xxx
hi pauline,its ur first tax today isnt it ? just wanted to say good luck to u. IF your talkin about the white cell boostin injections I have those also,theyre given from the day after chemo,once a day for five days,my hubby gives me mine.They multiply the aches and pains ten fold in my case.I take ibuprofen for that tho (only after steroids out of system).
Hope everyone is doing well,keep smiling sharon xxxxxxxxxxxx
well its 2.25am and i am the 5th sleepy person to log on at this stupid hour. just thought your not missing anything on telly while your all tucked up in bed. yea and bickies are nice though. would make you all one but your all asleep, never mind maybe next time.
Seriously, sally and julie, i hope your not feeling too bad and your hopefully coming out the other side. yake care both of you
Luv pauline xxx
just a quick one as i have just typed an essay on other thread. Got go ahead for tomorrow for Tax. will let you know how it goes as soon as i can.
Sally and julie, hang on in there, your nearly a week down the line.
Julie how many times do you have injection for, onc said something about days 5 to 10, that will take me to day we go away. do you do it or does a nurse? She told me it will make the aches and pains worse, but will be worth it as without them i would probably get delayed.
Off to bed soon, not expecting much sleep after 8 steroids today. good job i have a good book.
catch up with you all soon luv pauline xxx
day 5, feeling very down today,and achey but taking co-codomol and it helps,chest has been tender and also nail beds but it all is managerble, eating chocolate mousse because i can taste that, also drinking choc at night, not sleeping very well even though i have sleeping tabs,think its the humid nights,
sally hope you are feeling abit better
e thanks for the tips
think i am fairing better with these se than the sickness with fec,
good luck pauline and anyone having treatment this week
İ hope you will feel better soon, i was prescribed advil and
panadol extra for pain , and panadol extra helped me quite a lot.
Than i do eat 3 times read meat , 2 times chicken or liver, 2 times fresh fish weekly with lots of veggies, to help bone marrow-white cells, lots of fruits such as red grapes ,peaches, water melon and my beta glucans and red grapes seed extract and harnup molasses.. when i feel very tired i take 500 mg of vitamin c.. All above with approval of my oncologist.. and of course
2 liters daily spring water + mugs of green tea
Friendly wishes from ıstanbul
Seda - xxx
PS : i am on my way to get my blood tests and see my onco before my 4th TAC cocktail on friday :))
well its day6 now and im still aching and tired trying to find what pills will work, not sleeping very well either, nail beds are tender. and generally feeling poo.. Oh i hope it passes , can anyone shed any light on this...
hope everyone else is ok
Sally hope you are feeling better today!
julie, glad to hear you have not been too bad!
emmbee thanks for all that info, hope i go off starchy things!! thats all i wanted after fec and the waistline has increased!!
Pauline will be thinking of you big time tomorrow hope blood was ok!
chin up girls we are getting there! love to all debs xxx
Having gone through the Tax I know what you are feeling. I found that I could eat sweet things, trifles, creme caramel and rice pudding. The only savoury things I could eat without retching were scrambled eggs and mushrooms. Anything with starch tasted awful such as, cakes biscuits, crackers and bread. I could not drink coffee or tea but found that ginger ale was good, strangely enough horlicks tasted brilliant and that's what I drank most of.
Watch out for the mouth ulcers. I sucked iced lollies when having the Tax to keep my mouth cold. Then I rinsed my mouth with pure pineapple juice, spat it out and then drank some. I did that for 4 days after the Tax. There is an enzyme in pineapple which helps to prevent ulcers and I only had one through 6 Tax.
Don't take the steroids after 2 pm. I had my first lot with an early breakfast and my second with a late lunch. Did not have any trouble sleeping. The tiredness was awful at first but, after a chat with my Oncologist I had a half dose of steroids for 3 days after the normal dose. That worked well. Just watch out for the day or two you may feel depressed. With me it was on the second day after I finished the steroids. My taste came back slowly after about ten days on each cycle. By this time I was starving so ate all my favourite foods to fill up.
The best thing I found to take for constipation was dulco ease capsules. They just add more fluid to the stools to make them softer. The Diarrhoea comes after about 4 days and I was given tablets for that.
It's just a question of juggling with your life for a few months and finding what is best for you. I got through it and so will you, so keep your chins up.
just wanted to let all u ladies on here know how i got on today with tax was very upset this morning didnt want to go up to unit but went after long talk with chemo nurse i had tax and all my anti sickness tabs so far im ok no sickness just my legs feal bit achy weird im eating my dinner which is great as on fec was really sick clouldnt eat for ages so hoping this is start of fealing ok try not to worry its not that bad i no early days for me as only day one t care everyone hope all ok with u xx
HI,Sally sorry to hear you feel so low today i know how terrible is not to be able to eat cos everything hasnt got taste or taste horrid that makes you luck of energy and you feel tired....i hope you will be better tomm....Julie m i start taking lifemel honey after my 3 FEC wich was horrible -3-4 day after....so if the chemo is still in my body i dont take anything -not to stop chemo working after taht i feel my body needs a bit of support to recover so now before treatment i start multivitamins they have selenium,zinc,vit E,B6 B12 .C,biotin and green tea extract.so after i start taking tose i feel much stronger so i will do same with TAX i just feel that body runs out reserves and need help also i will stop 3 days before next one...Pauline getting ready...?love to you all...Christina
Sally, you moan away, your allowed. too much to expect we would get off scott free i suppose. Hope your not suffering too much. tuck yourself up in bed and look after yourself, hopefully it wont be too long before your back on the up.((((hugs))))
Julie, sounds like your doing ok at the min, fingers crossed you will be ok. You had your share of rough times on the fec at the beginning, hopefully you will sail through the rest of your chemo. (hope the fish survived)
Been for my blood test this morning, fingers crossed bloods are ok for TAX on thursday, should know tomorrow morning. Got to ring for results before i start taking DOUBLE steroids in preperation for thursday. can't wait for the sleepless night tomorrow, might not bother going to bed, was bad enough on single dose.
Look after yourselves everyone, luv Pauline xxx
U go back to bed and sleep this nasty time off!! I am sure that give it a few days you will be fine again.
I have had achy pressure on my chest too, but not anything I found too worrying.
I think the worst feeling with any type of chemo if the feeling of your body being taken over as if going into decay!!
But as we all pretty much know by now, there are good days ... and enjoy those. The bad days, well will just have to try and get through them as well as we can.
Also, I thought would mention. Many of my friends are so keen to help us and I have found it hard to think of anything for them to do.
But now I have started suggesting that they cook us a meal that we can have in the freezer for the days when energy levels are down.
Any now, I have a freezer full of yummy food from all my friends (ie. lasagen, cottage pie, casserole, meatballs etc).
The fun part is also letting them know how the food was once consumed...mostly a lot better than if I'd cooked it myself!!
Hair loss clinic today, may be fun, but also emotional. Though own hair still firmly in place!!
you posted exactly the same time as me, wondered why mine took longer,the tenderness i though was probely due to my op and nerve endings thanks,it is not so bad today,
going to give my 10 year old a leeson in cleaning his gold fish out
julie m x
day 4, feel ok had aching legs last nite , so took ibupopene,not to bad at the minute, few achews and tenderness round chest not so bad, have taken my indigestion tab, abit constipated but im not taking anything ,otherwise you end up with diarea (cannot spell at all today)just not eating as much ruffidge,
Krisid i love turkish delight toooooooooo,,about supplements,i would like to no what is save to take, that isnt going to interfer with treatment,
pauline hopefully you will get your hols at the end off the week,
good luck all with treatment this week
its now day5 and feeling achey and tired and gererally p***ed off with feeling poo. today its getting me down, everything i eat and drink taste yuck, ive no energy and my legs dont seem towant to work. I always get a tigh feeling where i had my mascetomy afte chemo and BCN said its cos the chemo affects the tissue too and as its still healing there it is normal to feel tight and uncomfortable.
Im off back to bed
speak again soon.
sorry for the moan
Hi,Everyone JULIE M i had tenderness around my chest on my first FEC so i rang chemo unit they sent me to have ECG as i did havent heard anything since and didnt have more up to know ...Hi evanjamie you welcome to the thread ... ....all the best Pauline for thursady loking forward to hear your experiance...Debs getting ready for next tuesday ?i enjoy been normal again ...anyone take suppliments to help the body to recover??? Hi,Seda good luck for thursday ...i asume is v hot in Turkey now ...i love turkish delight...Christina
julie, glad your doing ok, where has the sun gone, 2 days and it's gone again!!!!
seda, i too am hoping to be able to go away after tax on thursday, keeping fingers crossed bloods are up enough to have chemo on thursday.
evenjamie, as julie says sorry you had to join us but your in good hands on here. any moans or questions, feel free to say what you want, will hopefully get the answers you need from us (especially if they are alcohol related!) seriously we are all here for each other on here.
Lov to everyone, pauline xxx
Getting ready for my 4th round this Friday.
Blood tests tomorrow, onco visit Thursday.
And if she think evertyhing is fine i will go for a
small holydays of a week or so after the session, i hope.
I feel fine except some hedaches i think due to my neck
because i stayed to much on the pc lately 🙂
I wish a lovely week to all of YOU.
Friendly regards from Istanbul
Seda - xxx
well day 3 not to bad, mouth is getting dryer, and woke up with indigestion but have took something and it seems ok,,ache joints, and thanks to crispy for mentioning the jaw, because after each treatment my jaw has been more painful for the first week after treatment,also my knees ache abit but i suffere with dodge knee anyway
does anyone else get tenderness round the chest area after treatment,again it seems to go after about 5 days,
evanjamie, so sorry you have had to join us, but the ladies on hear give fantastic advice and positive vibes,
sally think you have taken my sun away, washings all wet
Hi all you brave,strong,fabulous girls! Just wanted to say hi,this is my 1st time in a chat room and reading all your posts has been amazing and is really helping me. I was diagnosed with BC 20th May, had masectomy and expander fitted and full axillary clearance and they found a 6cm tumor and 3 out of 10 nodes had cancer. Got what is quite a rare BC by all accounts 'micro papillary' usually found in older women (I'm 39). Does anyone else have this? Having 2nd FEC this week (3xFEC and 3xTAXOTERE) and hair started coming out in clumps last wed so cut it all off Friday night and it was the best thing I could have done! Bit drastic but feel like I'm in control again! Thank you all for staying so positive. Us girls are sooo strong! Xxxx
Aches got less during the cycle and improved if I kept mobile.Took my B6 as a vitamin B complex (readily available in most supermarkets)
Julie I only had one injection per cycle for increasing white cell count but I know there's 2 different types. My main problem was bone pain in the areas that produce more white cells (jaw, hips, sternum and the long bones of the leg) Lasted for two or three days max and was advised to use ibuprofen after I'd checked my temperature, which solved the problem. Definitely worth the side effects cos I felt so much better 2nd cycle when I had it than 1st when I didn't.
To everyone else thinking of you.
Hi Sally and everyone else, hope you're all coping OK on the old tax.
I had aches for the first cycle for about maybe 10 days and then nothing for the remaining 2 cycles.
Hope you all have minimal SE's
thanks for your message regarding frostie mits.. I guess time will tell. did it hurt when the nails came off....keep looking at mine and its only day 3 lol think im getting parionide somewhat....its just cos it all new again.
do the aches go after the 1st week or so or is it one that lasts the whole 3 cycles of Tax or is it another one that no-one knows.
Anyway.. hope your ok and thanks again for your message
I had the ice mittens and ice slippers whilst having Taxotere.
I think they are supposed to help to reduce nail loss, nail bed soreness and peripheral neuopathy.
If so, I have to report that my fingernails fell out anyway (but this isn't nearly as distressing as it might sound,as there was always a new one that had grown halfway up underneath) and the beds also became very sore. My toe and thumbnails were unscathed.
I had very little peripheral neuropathy, so I think the ice mitts and slippers may have helped here....
Good luck to you all!
well on day 3 now and its so far not too bad , got the yucky mouth and taste buds but thats normal, legs feel a little achey but nothing that needs painlillers, have been out shopping today and done washing etc. been looking for B6 but as yet cant find any well not in suermarkets but might see if i can get some from Drs as we have free perscriptions here in wales, it'l save a few quid.
I had cold gloves on while having treatment and wondered if anyone else had them as well if they worked/helped with hands.
I feel abit tired but think thats from the sleeping pills i take while on steriods as they keep me awake but down to 2 today and then 1 tomorrow , being weaned of them to see it will help with combat the crash effect from them.
Glad your doing ok julie m, can i have some of your sun though please.
Oh and just in cse you really want to know ive been to loo today so may not be getting the constipation either. defo better on sicky front though.
Take care all
Love Sally xx
Before is started my initial treatment my BS prscribed me benexol
a complex of B1 B6 abd B12 vitamins two tablets daily and untill now no tingling or nerves problems
Nice sunday to all
Seda * xxxx
I wonder if the B6 would help my long term peripheral neuropathy-its not really disabling but is a constant reminder.I wish my eyebrows would grow.I finished tax in May 2007 and expected to be back to normalish by now.[Was told it could be 3 years though].
good morning all
so far so good, forgot to say ,when my tax was beeung administer through drip, id remembered someone saying, have ice -looly to suck,for substutuite i took a bottle of frozen water and a frozen jelly by the time my treatment started it had melted enough,and ate and drank through treatment, dont no if it will stop me getting mouth probs, but it was very refreshing and im sure took my mind off treatment,!!!!
sally ,i no what you mean about laughing bottom, on fec mine were better than oh s,kids looked at me gone out, shall see if same happens with tax,
waiting for district nurse to come and give me jab for white blood count,any advice on se for this thanks
beautiful day want to get out there when ds has been,enjoy the sun all, will keep you posted on se with tax
julie m x
day 2 of 1st tax and so far so good , dont feel so yucky or sicky as on the fec, was never sick on fec anyway. feel alot more chirpper as well. have got yucky mouth but started taking thrush pills last night so they should kick in soon. taste buds are on there way out too but thats normal for me at this stage too. have been suffering with alot of laughing bottom (wind)as my OH calls it, i blame the chemo LMAO litteraly LOL
my ONC saidd that the aches can start on days 3 or 4 if you are to get them so as tomorrow is day 3 we shall see hey.
im off to bed now but i'l keep you posted on how its going
hope everyone is ok
love Sally xx
PS many thanks for all the advice on Tax it has helped and made it not sooooo scarey after all. xxxx
Hi Girls, hi Pauline
Sally and Julie , i wish you relax time with minimal SE
with all my heart..
Well i call this group " My Tax Sisterhood " as we started all together this journey allmost at the same time and believe me i hope we can reunite next summer and have a laugh all together,
my house and my friends house will be allways open to you all..
Hugs and prayers from Istanbul
PS : first days i allways have severe constipation problems, despite my 2 liters daily water and mostly veggie based food, therefore magnesie calcinee and/or dupholac helps a lot.
But for people with diabetes or similar problems duphalac being glucose based, is not suggested, even thoughits so mild that its a pediatric laxative as well..
HI,Sally ,Julie m it is so nice to hear your comments about first TAX not been that bad so far as i was getting really anxious as the time comes close to my first one 19.08.so it is good to know what to expect Thank you to everyone else for giving their advice how to cope with TAX..I will be day after you Debs.....so i enjoy been normal again...doing gardening shoping have new car as well a bit more reliable to take me to my rads every day for month,later on when chemo is over...love to you all Pauline will be thinking of you next thursday....Christina
sally and julie, glad to hear it went well on the day for both of you. sounds like this one has been better for both of you. hopefully it will continue to be kind to you. I hope mine goes as well.let us know how it goes.
Seda, hope you have a big appartment, you will be needing it with all of us going with you.
V thanks for the advice about Vit B6, will look into that one.
Luv to you all, pauline xxx
well had first tax yesterday,was very calm and had no allergic reaction,which i think happenens within the first 5-10 min,if its going to happen, but i also beleive you can work yourself up,felt fine all evening apprat from abit of indigestion which i have tabs for,have been out shopping today,nurse did say that first couple of days your steriods make you feel better, mine run out today so will let you know, but noooooooooooo sickness which i did have with first 2 fec, no nausea at min either, so making the best of this sunny day ,
i am drinking 2 litres of fizzy water a day,have also bought a kiddy tooth brush and milder tooth patse,i also rinse my mouth with hot salt water before i have my first drink,it worked with fec but will see hoe it goes with tax,also mouth wash every nite not just chemo week,will let you no how se go
and thankyou to everyone else who has given advise
About the perminate hairloss, my sisters hair took along time to come back until they dicovered she had over-active theroids, treated her for this and her hair grow back lovely
Seda, i would love to come turkey next year , as i should have been going on hols today,but due to differal of treatment had to cancel,
be back soon julie m
Hi, I had my last taxotere last week and the best things I discovered were:
Take 50mg Vit B6 three times a day for the numb/red hands and feet
Use children's toothpaste - I tried the biotene but found that my teeth didn't feel clean. Children's toothpaste doess't sting your mouth and tastes much nicer!
Hope this helps...
Hi Pauline thanks for your msg. send my love to julie ad hope she doing ok too.. feel alot etter now on tax compaired to fec. used to feel really washed out and sicky on fec at this stage but dont feel anyting like that....now it all might change soon but who knows im all stocked up for it .
hope your doing ok too
will keep you posted
tke care Sally xx
sally glad to hear it went well, fingers crossed it stays that way. Keep us up to date on your progress, it will be a bit like a blog on here,we will all be watching with interest.
Julie m Hope yours went well too, fingers crossed for both of you
Luv Pauline, 6 days to my Tax 😞 xxxx
well thats the 1st tax done
no allergy to it..... feel ok just tired due to not getting to sleep till 2 this morning due to nerves and acid due to steriods. told i can take omeprozole the day before steriods next time and also given weaning off doses of steriods to help with the crash from them so will be interesting to see if they work. to start taking thrush pills tonigh so hopefully i wont suffer too much with oral thrush.. the nurse couldnt have been more helpful wich was brill.
just waiting for the SE to kick in early next week. but will keep you posted on how i get on.
Thanks again ladies for all you help and advice its really helped me.
Only 2 to go now yipee
love Sally xx
I have just had my second Tax today and must admit that I was really scared before my first one and still just a little bit scared today
But I found the SE different to FEC in so much as I did not have such a bad reaction to the injections and had no feeling of sickness
however I had a bit of a cough and sore nose which my Gp helped with he has given me alupent syrup to open up my airways and a cream for my nose and cough has got better but voice seems husky at times, tiredness has been more but not in so much as had to go for naps but just not functioning 100% and have not worked as yet on TAX as not felt up to it where as I did on FEC for weeks 2 & 3
Aches and pains were not as bad as I feared that they would be mostly they were in area where I am prone to them due to previous whiplash injury
I am trying dark nail varnish to try and stop any problems with my nails
wiil keep you all posted on how I go this time
Just a quickie....re the hair loss.
I had read a thread on here re: permenant hair loss following TAX. I ran this passed my BCN and Onc. Neither they, nor any of their associates have ever known a patient whose hair hasn't re-grown. I'm not saying it doesn't happen but please don't let a few cases plague you.... You all have enough to cope with right now.
My hair has grown back twice as thick and in ringlets, and the cold cap worked for me too - I'm not the only one... read some of the positive blogs
Look forward to a new hairdo!!!
YOU will do it.....
The first time when i arrived to the Chemo center, i was terrified inside but when the infusion start to go thru my veins i said to myself : what is in this bottle will be as much as good and beneficiary for me as if it was vitamin c, and e if i would take so much vitamin c it will give me some SE...
and next 14th of august i am doing my 4th round, the worst side effect i got was the fall of my hair :)))
You know what, lets get vber this all together, and next summer i invite you all to have wonderfull hollidays in Turkey
What abt that ????
Hugs and blessings to all
sally, mine is next thursday, and dreading it. julie m is with you tomorrow. will be watching closely how all you girls get on. good luck
Luv Pauline xxx
is yours tommorrow too, sorry lost the plot abit at mo as to whos having what when..if it is, all the best too i do hope its nice to us..
take care love Sally xx