Thanks so much for updating us & am so relieved for you!
We do all manage to get through it despite the normal wobbly moments.
You really dont know how relieved that I am that you are going to the hospital . The decision was obviously yours to make but I believe youre giving yourself the best chance . The juices etc can be taken aswell afterwards because I think we all probably look more closely at our nutrition and what is deemed good for us . Deal with the here and now first . Big Big hugs . I will be thinking of you on Monday . It is very brave of you to face your fears . Good luck Steph xxxx
Hi Liz I am near Solihull West Midlands. This is my fifth op as I have had some problems. Good that you have support around you this will help in your recovery. I am having Diep and will probably be in for up to a week. Hope all goes well you will be well looked after and it will be over before you know it,I am sure you will be fine it is just fear of the unknown. Just know that you are not going through this alone xx
Nice to see you back here. There is so much going on in the lead up to the surgery that your time will most likely be very occupied. You usually see the surgeon, anesthetist and a nurse at least and if you are scheduled for the morning then hopefully there won't be too much hanging around for you.
Like you, I was told I'd be in for one or two nights after my implant reconstruction. Strangely I actually quite enjoyed my time in hospital. I'd never stayed overnight before so it felt like a novelty. The morphine they gave me after surgery might have had something to do with my elevated mood perhaps
Hi Liz I echo what everyone else has said, all of us understand your feelings completely as we have all been through this. The feelings of shock and fear are normal at the beginning but it does get easier. I am also going for surgery on Monday for recon and have to be dropped at 7.30 and know my husband won't be able to stay as this is their policy and happened last time, they don't have room for relatives. I guess in relation to your thoughts on juicing hopefully things are a bit clearer now you have had time to think I guess you have to ask yourself if you would be comfortable with whatever decision you make and would not regret it? I am scared about Monday but know it will be the only way I can move on X
So glad you've come back, this is always such a shock & we've all had meltdowns at some point - goes with territory!
Treatment for bc is excellent these days & it probably doesn't feel like it now, but thank goodness it was picked up when it was, so it can now be dealt with.
I had day surgery as well, quite frankly, I was so relieved it was going ahead, as it depended on my MRI results & I was getting rid of the little sod, that my blood pressure went down. The team were lovely.
You will soon be out the other side & as when going through this, the reality is never as bad as our imaginings when the mind goes into overdrive.
do let us know how you get on, there's loads of support here & we've all been there.
Regarding your question as to whether it is normal for your partner to have to leave you at 7 am at the hospital, all I can say is that is what happened at my local hospital when I had my surgery.
It was a day surgery unit and I was told that there was no room for relatives.
There was a few of us in the same circumstances and we chatted amongst ourselves.
It was really well organised and we quickly went to theatre.
I felt very well cared for.
The anaesthetist told me that just a few years ago we would have been in hospital for four days.
I wish you well.
Hi Liz I really can understand how you feel. My treatment was the first time at 51 that I'd had surgery & I was scared, too. I think I'm echoing everyone else when I say I couldn't have turned the surgery down. Knowing that after surgery the lump would be gone & hopefully the cancer as well. I couldn't have not left that lump inside me & trusted to natural methods. None of us know for sure what would have happened if we hadn't gone along with the surgery or had any other treatment. I know what I would call miracles do happen & some people's cancer does seem to disappear but I would hazard a guess that this is very rare. Please think about it & hopefully talk to people that can give you more information. Being healthy with juicing etc is all good & by all means carry on with that but at the moment all the evidence seems to side with surgery & follow up treatment. Please keep in touch with us all & let us know how you get on & what decision you finally make. At the end of the day it is your decision & I wish you all the best with whatever you decide xx
Lots of good advice here from everyone. I had a mastectomy and reconstruction August bank holiday weekend 2015. I'd never had surgery in all my 51 years and was utterly terrified. I honestly thought that my life was over and I'd never enjoy anything again. The reality was far less traumatic than I'd feared and I made a pretty speedy recovery. I'm also really pleased with the outcome of the reconstruction - the surgeons can do amazing things. As others have said, the people who will be looking after you are experts and always so kind. You will be very well taken care of I assure you.
Please don't discount conventional treatment. One of the things that has kept me optimistic throughout treatment and recovery is the thought that our very wonderful but cash strapped NHS would not spend so many resources on treating people for this disease if they didn't have the evidence that it was sucessful in the vast majority of cases. There are lots of us who have been through what you are going through now and come out the other side to enjoy life once more.
I remember reading about apricot kernels several decades ago but am absolutely sure that if they had been found to be of real benefit in curing cancer then I'm sure they'd be utilized in mainstream treatments by now. As someone says below, there is an awful lot of "woo" out there, especially on the Internet, and if you look closely it's all to do with someone making money at the end of the day.
Absolutely no harm in making sure you are looking after yourself nutritionally. It's one thing I addressed when going through treatment and I believe it helped in my recovery. My BCN told me that it helps to eat really good quality protein leading up to and recovering from surgery.
Anyway, hope you don't mind me putting my tuppeneth in. Stick around here as everyone is so wonderfully supportive and let us know how you get on. Good luck on Monday. You are going to be fine.
You havent said what grade DCIS it is that you have . Low grade at this moment in time is a controversial subject ... Im sure you already know all of this though . It could grow so slow and never effect you ( so they say ) But and the big But was it could not be guaranteed !
Im 54 and consider myself to be very young at heart and Im out and about dancing usually ( massive fan of soul music ) I have children and grandchildren . There was no way I was going to take any chances of limiting my life span if I had any say in it .
The NHS offers you the surgery/treatments that have been deemed effective from research & trials . Some of which they may still say does not have guarantees attached .. but its all performed safely by highly skilled and professional people .
I have never heard from people that I know or ladies on this site that they have been offered juicing . It may be there has never been enough research ...that alone would be enough for me to rule out any contemplation .
It is your choice and your choice alone but if it was me Id want to preserve the life I have with what has been proved to be the most effective ... which is what youve been offered . !!
From reading your post I get the feeling that youre very spooked and frightened of the unknown . It is easy to want to avoid fear and I completely understand that ... but this my darling is a very serious situation . Im 6 weeks in from having my single mastectomy and recon . The care I received from the hospital and all staff was exceptional . I went to sleep in anaesthetic room and when I was woken up it really did feel as though only five minutes of my time had passed .
I went to a look good feel good session last Thursday , its a national charity thing ( Maggies ) it puts things on for cancer patients . I went to a make up session and got a fab goody bag . The relevance of me mentioning it is there was several ladies young like you there , theyd also had mastectomies and were going through chemo ...theyd met at their treatment and they were so vibrant and positive and just looking forward to moving on .
If you choose not to go ahead on Monday you ( and only my opinion ) will be left with the uncertainty of whether the juices will work , how long it will take before you see any difference and if you see any difference .And also whether not having the surgery was the right thing . That is an awful amount of stress to put yourself under .... far more than I could cope with or would want to .
Not sure if there is nurses available on this site over weekend but I would try if I were you and / or phone hospital because you can be specific when speaking about what your actual fear is .. and obviously the nurses have the expertise to advise you .
You must follow your own instinct and make the right decision for you , perhaps you could go to the hospital on Monday ( or you may be going in on Sunday ready for Monday ) in anticipation of having the op but only make your final decision when youre there and have relayed /spoken to your Consultant again . NO ONE can force you into having the surgery ..and Im sure that you wouldnt be the first person to withdraw on the day of surgery either . And no they couldnt refuse treatment at a later day . Good luck ...I truly hope you make a decsion that youre happy with . Big hugs Steph xxx
Just to add, Liz,
With a DCIS diagnosis, surgery offers the best chance of a complete recovery.
We've all had wobbles, I had lumpectomy to remove my bc, so less invasive that your surgery, but even so, I remember having some thoughts you describe, but fortunately, it was very short lived!
I've just had a single mastectomy with SNB and was terrified of having the operation, I was worried I would die.
I went into surgery and the last thing I remember was a Nurse pushing my hair behind my ears (she had cold fingers), then she took my hand and bent down to me and said, 'I am going to look after you Susan, I'm going to be right here next to you all the time' and then I woke up and it was done. I never saw that nurse again, but if I did I would hug her - she helped me so much.
Recovering from the operation has been quite quick and I went back to work this Monday, driving my car, still a little bit tender, but o.k. I didn't even wear my false boob.
I didn't have a choice on a surgery, mine was grade 3 aggressive - but even with your diagnosis I would still have the surgery, I need to know that I did everything possible to cure myself.
Sending you big hugs.
Hi Lz. I thought I would add if your reticence is fear for the operation I had some further thoughts. On the day of both my ops (I ended up having two ) i had 2/3 really detailed conversations, with my surgeon, anaesthetist and radiologist, going down to the theatre the theatre nurse was frankly one of the best clinical professionals I have ever met, and I know a lot.
Hello Liz. I can absolutely understand your fear with regard to the operation, I too was terrified and I amazed myself that I got through it. In fact the only thing that got me through was doing the best I could for my family.
I can't give you advice, but I would ask myself if the NHS is offering juicing as a recognised effective treatment package for your condition. Please don't be frightened of your consultant, they are there to care for you and understand how frightened you are, they do not make judgements. On the day of my operation my surgeon came to see me and we had a really re-assuring chat before I continued. I found that very helpful.
I wish you all the best.