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Advice re thyroid pls? plus bit wobbly re thickening

38 REPLIES 38

Re: Advice re thyroid pls? plus bit wobbly re thickening

Thanks Lulu. I've had a look up on the internet and think my thyroid falls well into normal range. Glad your results are improving too.

take care
elinda x

Re: Advice re thyroid pls? plus bit wobbly re thickening

elinda i think that normal.... i believe if it was below 0.5 its considered to be hyperthyroid but it does vary from place to place as others consider under 0.3 to hyperthyroid.... so 1.2 would be considered the lower of the normal range.

glad the results were all normal.... mine are much better now than what they were a few months ago too.

Lx

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi all

Had the results of my blood tests. Everything was normal. TSH level was 1.20 miu/L which I think means that this is functioning quite fast? Haven't discussed with the doc yet but she's put normal underneath.

I am menopausal though which has been shown in the hormone testing. That could be why I'm still have some days feeling so tired.

Have to say that overall my blood results are better than they were before I started all the treatment!

Elinda x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi just wanted to say it's definately worth asking to be tested - it's a simple blood test. I was diagnosed when my 9yr old daughter was 6-9 months old. I would be feeling really tired and worn out by 10.30am and hungry and would eat bananas to try and raise my energy- to no avail. A friend with underactive thyroid told me to ask my gp to test me for it. My gp agreed to test me although we both thought the tiredness was due to having a baby. She called me a day after the test to tell me to come and a prescription for thyroxine- my levels of TFT were 110 when they should be under 5 - she said no wonder I had been feeling so bad!!

Re: Advice re thyroid pls? plus bit wobbly re thickening

Pat
Thank-you-I was worried I'd not been clear enough about my earlier post, so appreciate your response! Not having a BCN must be quite tough at times, on top of the langiuage barrier.
All teh best
C xx

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi cupoftea
I don't take for gospel the aftereffect time span, just good to know that anything I may have could relate to the treatment. I live in France and do have a language problem with the medical people though both sides try. Also there is no such thing as a Breast Nurse so it is doc or nothing. Therefore it is very, very useful having this site. it has set my mind at ease with a lot of things. Probably go and see the doc next month and ask about wisdom of blood tests for thyroid etc. Until then 'keep taking the pills'.
But do keep up the info! Love Pat xx

Re: Advice re thyroid pls? plus bit wobbly re thickening

Thanks very much C, let's hope so.
Elinda x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Elinder,
So good she spent the time and went through things with you. Very positive to hear of great GPs -the one I have now is too, makes a big difference doesn't it. Hope the bloods ok, and you start to gain a bit more energy soon.
C xx

Re: Advice re thyroid pls? plus bit wobbly re thickening

I saw my GP today and she thought my tiredness was probably still my body trying to recover from all the treatment. She's ordered a batch of blood tests including thyroid to check. I'm so lucky to have such a wonderful GP. She spent 20 minutes with me talking through all my concerns.

take care all
elinda x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Mammie

I really hope I haven't given you further cause for concern. This site is great, but I find it much easier to be clear about what I'm saying face-to-face.I'm a bit awkward at timres online.
The trouble sometimes is in sharing our experiences we can cause alarm without intending to, which is why I don't post on certain threads, and try only to look at the ones that relate to me.

I will just clarify-the onc did not say that most women feel that bad for a long time, just that it isn't unusual (in all his years of experience) to come accross women who have some effects that take longer to go.
I had some specific side effects during chemo after reacting badly to the medication, and took me a long while to get stronger afterwards-that isn't the case for everyone by any means- as lots of women on this site will tell you.

In the end his suggestion that the thyroid function be checked was spot on- probably the reason I'd felt so drained for so long was in part down to that, and thyroxine has made huge difference.

Hope that is less alarmist!
C x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Did not realise that there are possible after effects of treatment lasted as long as 17 months and more - that's something to look forward to! as well as all those things that Finty listed I get dizzy spells when getting up sometimes. I do get very sore shoulders and neck.
XXX

Re: Advice re thyroid pls? plus bit wobbly re thickening

Elinda I just checked all the symptoms of an under active thyroid - and they are very similar to chemo side effects - I think I have about 80% of them (tiredness, brittle nails, course hair, dry skin etc)! But would seem a good idea to get it checked - I am going to ask them to add it to the list at my next blood test.

Re: Advice re thyroid pls? plus bit wobbly re thickening

Best of luck with it.
C x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Thanks very much. Yes, that's exactly how I feel. It could still be the impact from all the treatment as I was very ill during the chemo but worth asking my GP when I see her tomorrow about thyroid.
Elinda x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi Elinda
I felt very much as you describe-with periods of complete fatigue-just suddenly wiped out with no warning, rather than a build up of tiredness if that makes sense. That was it really.

I was having blood tests anyway because my white cells were low for long time after chemo, and had dizzy spells, but I don't think these were related to thyroid, and onc wasn't concerned because they righted themselves.

I saw the onc a year after Rads (17 months after chemo) he wasn't surprised that I still felt this way-said it wasn't unusual to have chemo effects for quite a long time, or have some long term changes as a result of the onslaught on the body from treatment.
He wasn't concerned about the other symptoms, but suggested checking out thyroid just in case the continued tiredness was down to that instead of chemo after-effects.
Hope of some use, take care,
C x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Can I ask you what symptoms you had for underactive thyroid?

I'm wondering whether to ask my GP for a blood test as my energy levels are so low although I finished treatment 6 months ago - I feel so sluggish all the time. I go for a walk every day, have a very healthy diet so I'm wondering why my energy isn't picking up. I'm on tamoxifen and 46 yrs.
Elinda x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi all - Very interesting thread, I too have underactive thyroid and for 12 years was on 100mg levothyroxine, which was reduced this time last year to 87mg (half of a 175 tablet). I think I had better ask for another blood test as this change was shortly before BC found. I had been very sluggish this time last year and leading up the THE mammo. Had no idea there could have been any link however tenuous!
I am guessing that a blood test now (last chemo 15 May, last radio 31 May) may be a bit unsettled just yet. Any ideas?

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi All

Glad to hear the statins have worked so well for you Lulu.

Thought I'd update as I've had several appointments recently. The breast lump I was concerned about is due to implant and redundant tissue-u/s looked normal, so glad about that.

Saw GP who wasn't aware of any link between bc and thyroid probs, but said that didn't mean there wasn't one. She couldn't tell me which auto-immune thyroid disease I have, but said it doesn't make much difference to what they do, and that there were no long term implications apart from being on thyroxine and checking bloods. For now I'm going with that, and am taking the thyroxine which I have to say has made a big difference already-I thought I'd just been exhausted for 18 months because of the after effects of chemotherapy!

Consultant onc nodded that hormonal disruption effects the thyroid, but was not being drawn on a causal link. She looked at the levels and said 'no wonder you've been feeling so tired for so long!', so I'm very pleased the team encouraged me to check out the thyroid in the first place.

Not much new or different I'm afraid, and still interested in the number of women who seem to have both bc and thyroid probs, but clearly not enough conclusive research to link them...

Hope everyone doing ok
C xx

Re: Advice re thyroid pls? plus bit wobbly re thickening

i asked my consultant about this and also a connection with cholesterol but he said he wasnt aware of any actual evidence.

i had my bloods redone at the lipic clinci and they are all normal... well cholesterol is still borderline but has dropped for 9.6 to 5.6 on 6 weeks of simvastatin.... thyroid is now 1.8 so also normal too.

totally chuffed at how well the statin has worked.

if i come across anything else ill let you kmow.
Lx

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi all, I just felt I needed to add to this discussion as I too was unaware of a possible link between BC and thyroid problems. I was diagnosd with an under-active thyroid a few months after having my daughter, who is now 9, and have been taking levothyroxine ever since; I was diagnosed with exensive DCIS in Feb after having needle biopsy in Oct and WLE in Jan and have since had bilateral mx. I would be very interested in any other information//research anyone knows about. Take care, Samm.

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Re: Advice re thyroid pls? plus bit wobbly re thickening

I am beginning to wonder if it is just that both things can be stress related and it is not that there is a direct link. Maybe, if the body is stressed, this can cause thyroid problems and bc - as well as a lot of other things, probably.

Ann x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

I am also just over 2 years dx and a couple of months ago went to GP for some routine blood tests. I have come back border line underactive thyroid. I had asked for the blood test as I have a strong family history of thyroid problems. My sister has had problems for nearly 30 years and my maternal grandmother also had it. she died of cervical cancer at 51. I was dx with lobular HER2 cancer. My sister so far clear. I have previously read of a possible link with bc and thyroid problems. I will go back to my GP later this year again to be rechecked.

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Emily - My Mum also had bc but nothing wrong with her thyroid gland. Mind you, she did have an operation on her para-thyroid gland, come to think of it, but that was a whole different story.

I think the main cause of my bc was being on HRT for so long, together with many years of intense stress. I suppose that could have been the cause of thyroid problems, so linked in a way.

Ann x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi Ann

When I had my thyroid removed they tested it and said it was all ok and not cancerous, I have been on thyoxine since but they never mentioned any side effects like osteoporosis.

My mum has a friend who also had a lump removed from her neck many years ago and later developed bc so there is definitely a conection somewhere, they need to do more research into this.

Emily x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Emily - My bc surgeon also specialises in thyroid glands as well. I know this because I, too, have a goitre which he commented on and although I had had it checked out some years before, he arranged for another scan. As before, it showed that it is multi-nodular and the only solution would be surgery like you. At the time, last August, he said we needed to concentrate on the bc, obviously.

I have been on thyroxine for over 10 years and started at the same time as HRT. No-one ever mentioned osteoporosis as being a side effect and when I had a bone density scan before I started Letrozole, my bones were average for my age. I was hoping that they would be better due to the HRT but if thyroxine makes them worse, maybe it evened out. There seems to be disagreement about whether it does actually cause osteoporosis, though - as there seems to be about most things.

I asked my surgeon if there was a link and he said that it had been speculated but nothing proven.

Ann x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi

Thanks veggiebab and Lulu.
I think I wasn't very clear in my last post-I'm not concerned that taking the thyroxine in relation to the tamox is contra-indicated.
I just wonder generally about disruption to hormone levels in the body long term and how they might be connected. I'm holding on starting on thyroxine until I get a chance to speak about the results, just because at the moment although my TSH levels are high, and antibodies too, I am not exhibiting many symptoms and there is some uncertainty about medicating at this stage which I want to be clear about first.

My wondering about the links is really to do with your second point Lulu-that I have had so much hormone disruption I wonder if this is linked to the high TSH levels and high antibody levels. I also have a question mark over my general immunity.
It is probably all academic, in that it makes little difference to the outcome, and as a pragmatist I'll just take the drugs! I won't know if I had those antibodies present before dx- but I am interested in whether the links are causal and also whether fluctating antibody levels can stabilise-I have read some research that suggests thyroid antibody levels do sometimes level out.

Think I am talking in circles now-apologies, the heat and a school fun run to blame !
Take care everyone
C x

Re: Advice re thyroid pls? plus bit wobbly re thickening

from what i understand oestrogen can have an effect on thryroid hormones but thyroid hormones doesnt have an effect on oestrogen... so for hormone positive cancers is should be fine to continue with your thyroxine.... your GP and pharmacist wouldnt issue it if there was a chance they could interact or if it was contraindicated.

you can ask your gp or pharmacist to check this for you... apparently tamoxifen can suppress thyroid function.... so perhaps thats why some who were found to have thyroid dysfunction or deterioration of thyroid function after BC.

Lx

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi Cupoftea
I was er+ and have been hypothyroid on Levothyroxine for years before. I read that thyroxine can disrupte your thyroid so asked my Gp for an early blood test but it came back ok. Hope you're doing ok.
xxx

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi
Thanks for the replies. My concerns are the same- I have been given a prescription for levothyroxine, yet to start taking it, but am also 100% er +, and I do wonder about the link.
I have read that during periods of hormone disruption such as pregnancy and menopause, thyroid antibodies can go up, which is what made me want to know more about a possible link. I also developed other antibodies during pregnancy and I do feel that my immune system has somehow become disrupted, but have no scientific basis for that.
C x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

interested when i read this thread, i was diagnosed with thyroid probs ten years ago and have been on a theraputic dose of 125mcgs daily since then, what worries me is the fact that these are hormones and i am strongly 8/8estrogen and have her2 status pos. i am 57yrs and post menopausal for ten years. just wondered if there was a connection?

Anne x

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Re: Advice re thyroid pls? plus bit wobbly re thickening

Interesting thread ladies. Think I have
posted before about this. Basically I was diagnosed with auto immunity and an underactive thyroid 13 years ago. Diagnosed with bc last august. Wonder if there is a link? Agree that little research has been carried out into auto immunity. Interested to hear from
others.

Al
xx

Re: Advice re thyroid pls? plus bit wobbly re thickening

Thanks Lee
I did try that, but probably pressed something wrong, which I keep doing lately! I'll have another look.
C x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi C,

if you click on Forums this will take you to a page which allows you to search all the forums. Inputting "thyroid" comes up with over 400 posts! I'm sure you will recognise the title of the one you were following.

Hope you find it!

Lee x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi
I wish I could find the original thread I saw, it had a bit more information. I'm going to ask more about it when I see my GP and onc, will post if get any further information.
C x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi

Just been reading this thread and found it very interesting.

I had my thyroid removed 15 months ago as I had a very large goitre and now in February was diagnosed with Breast Cancer. This seems quite a coincidence, it was the same surgeon that operated on me for my thyroid and bc but nothing was ever mentioned that there could be a link.

When I have my next appointment I shall be asking about this.

Take Care Emily x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi there,

fascinating discussion, I hadn't picked up on any connection between thyroid function and bc but will look into it now. I was finally diagnosed with hypothyroidism about 11 years ago and it had clearly been undiagnosed for a good while (despite my telling GPs twice that I thought something was seriously wrong with me neither of them did a thyroid test! had to wait until it had tipped me into the menopause and luckily I have a friend who is a very conscientious consultant gynaecologist who tested for this along with hormone levels and found me to be seriously wanting!) as I had very serious problems and needed quite a large dose of levothyroxine which, obviously, I'm still on.

It will be interesting to see how many others are affected by this.

Lee x

Re: Advice re thyroid pls? plus bit wobbly re thickening

Hi Lulu34

That is a help, thank-you so much.

It sounds as if you are having a round of appointments too, it gets wearing wondering where results are.

I feel that I know a fair bit about my bc now, but realsied I know very little about autoimmune thyroid disease and have found it much harder to get specific info. The research I looked at briefly was quite inconclusive-as always-but suggested that there is a higher incidence of thyroid disfunction among bc patients than in the general population, but how significant that is I am in the dark about!
My TSH was high , although free T4 normal. My levels of Thyroid antibody looked terrifyingly high to me (890+,when normal is under 40). I know antibody titres can be high and are not necassarily cause for great alarm, but have to admit I was alarmed!

Hope your results come through soon, and wish you all the best with the cardiology appt.

C xx

Re: Advice re thyroid pls? plus bit wobbly re thickening

hi CofT

i have just been speaking to some of my BC friends about dodgy thyroid and cholesterol results following BC.

im currently waiting on my thyroid antibody test coming back which should tell me if i have an autoimmune thyroid disease, but think its maybe gone missing as it was sent away 4 weeks ago so not sure whats happened to it.

i have borderline high TSH so very mildy hypothyroid, which was what prompted the antibody test, which was prompted after astonishingly high cholesterol test and they wanted to rule out hypothyroid... so now on simvastatin and off to the cardiology clinic next week to get it all checked out.

but i havnt heard of any links specifically relating thyroid to BC although there is a lot of speculation that it could be.

sorry i havent been of much help really....

hope your lumpy bit turns out ok too.

lxx

Advice re thyroid pls? plus bit wobbly re thickening

Hi ladies
I will do the wobbly bit first. I have a lumpy thickening to be checked out tomorrow, chest wall of mx breast just over the implant. Hopeful it is due to recent implant exchange, but just needed to admit I am feeling bit sick about it.
Re thyroid: I know there was another thread on here about thyroid problems and bc, but I didn't save it can't find it now, so am hoping someone may have some experience or be able to direct me to it.I'm 2 years post dx, had blood tests since chemo/surgery/rads finished just over a year ago because my white cells stayed low since then, and I was having some dizziness etc. Thyroid function was tested as routine. I wasn't expecting problems, but came back showing auto-immune thyroid disease. I was told this over the phone (I know GP was trying to save me coming in, knowing how many otehr appts there are),left a results print out to show onc and prescription (haven't started it yet) at the counter. I can't seem to book a gp appt for ages, and now realise that because I was pre-occupied I didn't ask the right questions and know very little about it-not which type, are long term osteoperosis risks of levothyroxine increased becasue of tamox etc.
I know that some research suggests a link between bc and thyroid probs-just wondered if anyone on here had any words of wisdom until I can get a face-to-face appt.Thanks
C