I finally got my follow up appointment last thursday. It was with an oncology registrar - I hadn't met her before and she didn't know my story, so I found myself having to tell her a lot while she flicked through my file.
Anyway, she did a thorough physical examination of my scar, remaining breast, both armpits and both sides of my neck and said all was well. She confirmed that the CT scan I had in August showed that there was nothing to be concerned about, and she praised me for the amount of movement I had in my arm after having lymph nodes removed.
She didn't actually mention "no evidence of disease" or being in remission, but it was obvious that's where I am at.
Apparently I'll get an appointment in the post for a mammogram next Spring, and I'll get an annual appointment with someone in oncology in a year's time. Meanwhile, I have an appointment to see my surgeon/consultant in February.
So that's it until those milestones come round. Still, I got there. What a journey!
I finished my radiotherapy early June this year and as Chascat says, i walked out of radiotherapy on the last day and no one saw me, to discuss the end of treatment. About a month after I received a copy of the letter sent to my gp which said I would see the consultant in the summer. Well, i keep waiting for that appointment to come through in the post but so far no letter has arrived. I feel I need a final chat as I feel like I am in limbo.
Glad to hear it is not just me who feels like this.
I do know my hospital only does follow up mammograms every 18 months whereas a lot on the forum seem to get a checkup mammogram annually.
I had all my treatment at Guys, I London and I did have an end of treatment appointment with a nurse practitioner. I was not aware that I was due one, just got the appointment details in the post. I was there fir about 40 minutes and covered my treatment, worries and what would happen next. She followed this up with about half dozen written up sheets covering what we had discussed and got me an appointment I had asked for. It did provide a sort of full stop but I would have appreciated knowing that I was due to have it, say at the beginning of treatment. Everything does feel a bit disjointed as you move from surgery to oncologists etc.
I haven't had my final chat yet. I had MX and SNB 12/12/2012, chemo Feb-May 2013, no rads (my choice) and I've been on anastrazole since June 2013. I've had a few non cancer related issues that my onco wanted to make sure got sorted before she will 'sign me off'. Next appointment with her is September 30th. I think the rest of the February Valentines 2013 had a 'signing off' meeting after rads.
Wasn't sure where to post this.
I finished my treatment (radiotherapy after chemo and mx/anc) in early July. Since then, I had a CT Scan in August to double check a section of bone at the base of my spine which appeared to have thickened in the CT scan that I had at the end of my chemo.
I did have a follow up appointment booked with an oncologist for a couple of weeks ago, but the hospital wrote to cancel it and the letter said they would give me a new appointment as soon as they were able to, but I've heard nothing since.
In fairness, i feel so well that I'm sure that scan was nothing to worry about, but it would be nice to be told. I also expected to see someone after my rads, but didn't, so I assume this follow-up appointment that I'm waiting for is the final chat, so to speak.
How did it end for the rest of you? Is this normal?
I've been taking Tamoxifen for a month and a half now, and not having too much trouble with that, and I have an appointment to see my surgeon again next February, but other than that, I'm on my own, I guess?